Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,141 members•4,725 posts

All posts for November 2021

Genetic/Inherited/Cerebellar Ataxias - Psychology Research Study

This may be of interest to some people here: https://twitter.com/Dee_Murphy20/status/1465342278759763968 There's a video explaining what the research study is,...

This may be of interest to some people here: https://twitter.com/Dee_Murphy20/st...

•3 years ago

Tips for coping with Gluten Ataxia

Ataxia UK Annual Conference: Gluten-free diet tips for gluten ataxia patients At the 2021 Ataxia UK Annual Conference, there was an interesting session from...

Ataxia UK Annual Conference: Gluten-free diet tips for gluten ataxia patients At...

•3 years ago

GPs

As far as being a help to ataxia suffers some GPs are like a lighthouse in a desert VERY BRIGHT but no use whatsoever.

As far as being a help to ataxia suffers some GPs are like a lighthouse in a des...

•3 years ago

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Cold weather

Does anyone else find their ataxia symptoms worse in this cold weather? Stiffness and gait for me is really affected and then like a chill which can be...

Does anyone else find their ataxia symptoms worse in this cold weather? Stiffnes...

•3 years ago

Slipper Socks

My thermal slipper socks arrived this morning(ordered on eBay) they are so warm, and have a Non Slip sole….. thank you to those who suggested them🙂👏👏👏❤️

My thermal slipper socks arrived this morning(ordered on eBay) they are so warm,...

•3 years ago

Covid & disability. Not everyone can wear masks

Not everyone you see can wear masks. Disability comes under various disguises & a huge umbrella.

Not everyone you see can wear masks. Disability comes under various disguises & ...

•3 years ago

Ataxia UK Gift Shop

I've just ordered my Ataxia Worrier fleece, ladies tshirt and brooch/badge x

I've just ordered my Ataxia Worrier fleece, ladies tshirt and brooch/badge x

•3 years ago

Idiopathic Cerebellar Ataxia

I have been off my Venlafaxine 75 mg for 12 days. I still feel foggy brain, not thinking/performing at 100%. I thought it was caused by the meds for...

I have been off my Venlafaxine 75 mg for 12 days. I still feel foggy brain, not ...

•3 years ago

Slippers

I wear a bootie type slipper with velcro fastening, with my wide gait walking I find the slipper collapsies on the inwards side of the slipper. Has anyone got...

I wear a bootie type slipper with velcro fastening, with my wide gait walking I ...

•3 years ago

National Ataxia Federation

The NAF in the US ( I am in the UK) has a large website with a different slant to Ataxia UK. There are several factsheets to download and one is about...

The NAF in the US ( I am in the UK) has a large website with a different slant t...

•3 years ago

Ataxia Awareness

Hi all, how great is the awareness surrounding Motor Neurone Disease at the moment and the publicity in the media. The £50 million pounds that the government...

Hi all, how great is the awareness surrounding Motor Neurone Disease at the mome...

•3 years ago

ENT dysphagia

We need a recommendation for a good ENT (happy to see them privately) who specialises in dysphagia (swallow) difficulties. We live in Essex but are happy to...

We need a recommendation for a good ENT (happy to see them privately) who specia...

•3 years ago

Rollator/walker + rehabilitation center

I recently posted about thinking about getting a walker. Thank you everyone for your replies and very helpful information. It's much appreciated x🤗. I have...

I recently posted about thinking about getting a walker. Thank you everyone for...

ww-wibblywobbly

•3 years ago

Question about SCA2

Sorry, this question is probably asked often. I’ve recently been diagnosed with SCA2 (37 CAG) and turning 52. I have very little symptoms other than a little...

Sorry, this question is probably asked often. I’ve recently been diagnosed with ...

•3 years ago

MyTherapy Mobile App Alternatives

I use the MyTherapy mobile app - https://www.mytherapyapp.com/ - to stay on top of my daily self-managed medication, therapies, and measurements - it's really...

I use the MyTherapy mobile app - https://www.mytherapyapp.com/ - to stay on top ...

•3 years ago

Answer to a question

Transcranial Magnetic Stimulation Therapy-TMS and Electroconvulsive Therapy-ECT

Transcranial Magnetic Stimulation Therapy-TMS and Electroconvulsive Therapy-ECT ...

•3 years ago

Walkers/rollators

I think I should be considering a walker soon. My balance has deteriorated dramatically in the last two years. I now use two sticks for short distances, the...

I think I should be considering a walker soon. My balance has deteriorated dram...

ww-wibblywobbly

•3 years ago

CT Scan

Hi. I recently had a ct scan but I’ve now received a letter saying that because there was a lot of calcium they could not get clear images. I now need a...

Hi. I recently had a ct scan but I’ve now received a letter saying that because ...

•3 years ago

Armistice Day. 11th November.

Today in the Uk it is Armistice Day, when we commemorate the end of the First World War, and all of those who paid the ultimate sacrifice in the defence of...

Today in the Uk it is Armistice Day, when we commemorate the end of the First Wo...

•3 years ago

Wheelchair

I use a walker inside and a different one for walking round my village which I clean the wheels if it gets dirty as I have to bring it into the house. I also...

I use a walker inside and a different one for walking round my village which I ...

•3 years ago

Lest We Forget.

https://youtu.be/UixYxsPFoqc Armistice Day 11th November They shall grow not old As we that are left grow old Age shall not weary them Nor the years......

https://youtu.be/UixYxsPFoqc Armistice Day 11th November They shall grow not ...

•3 years ago

Ataxia

If anyone has questions about TMS or ECT, I have had a number of these treatments. Would be happy to answer any questions.

If anyone has questions about TMS or ECT, I have had a number of these treatmen...

•3 years ago

Friedreich's Ataxia Diagnosis - questions to ask the neurologist?

Hi all I am a first time poster on the site. I have recently been diagnosed with Friedreich's Ataxia through genetic testing. I have had an ataxic gait and...

Hi all I am a first time poster on the site. I have recently been diagnosed with...

•3 years ago

Pain. Please help?

Hey I'm hoping someone can help me because my doctors are useless. I'm on cocodomol 30/500 x 8 per day and was.on pregablin 200mg x 3 daily. Pregablin was...

Hey I'm hoping someone can help me because my doctors are useless. I'm on cocodo...

•3 years ago

Seeing a Neuro Surgeon this evening.

Feeling concerned as the website says they operate when you are awake.

Feeling concerned as the website says they operate when you are awake.

•3 years ago

Overview of the Ataxias

🙂 This is lengthy, but it does have useful, interesting information. Overview of Adult Onset Cerebellar Ataxia Pravin Khemani, MD The ataxias are clinically...

🙂 This is lengthy, but it does have useful, interesting information. Overview ...

•3 years ago

Had another consultant this evening I don’t have Ataxia

I will be leaving this group soon. I was diagnosed pre MRI with Ataxia. Tonight my consultant told me I don’t have Ataxia but I do have a Brain Tumour called...

I will be leaving this group soon. I was diagnosed pre MRI with Ataxia. Tonight ...

•3 years ago

Things you dont know about ataxia

Things you font know about ataxia does it affect bowel movement and digestive system or is it just the normal symptom you hear about

Things you font know about ataxia does it affect bowel movement and digestive sy...

•3 years ago

Upcoming All About Ataxia Seminar - 13 & 14 November

Read more and register for this event here: https://www.ataxia.org.uk/ataxia-uk-events/all-about-ataxia/ What is All About Ataxia? ‘All About...

Read more and register for this event here: https://www.ataxia.org.uk/ataxia-uk-...

Anastasia-Ataxia-UK

•3 years ago

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