Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,084 members•4,658 posts

All posts for February 2017

Ataxaia type 2 and exam provsion

I have a daughter suffering from Ataxia ia type 2. She gets random bouts of vertigo that debilitates her for a few hours. Does anyone else have a child in a...

I have a daughter suffering from Ataxia ia type 2. She gets random bouts of vert...

•8 years ago

OT Vest

About two months ago I bought a weighted vest and it seems to have really helped me, if anybody else is thinking about trying one I would be more than happy to...

About two months ago I bought a weighted vest and it seems to have really helped...

•8 years ago

Genetic councelling

So saw a gentic councillor today for sca 6. She was very positive. Partner being diagnosed currently has no symptoms but runs in his family. Told me if I...

So saw a gentic councillor today for sca 6. She was very positive. Partner bein...

•8 years ago

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Critical illness insurance/ contribution waiver

Hi has anyone had any experience of successfully claiming on critical life insurance or indeed claiming for contribution waiver on their policy? Many thanks

Hi has anyone had any experience of successfully claiming on critical life insur...

•8 years ago

cerebellar ataxia and thyroid

does anyone who is diagnosed with cerebellar ataxia have thyroid problems/ So many of the symptoms are the same, ie balance ,dizziness, muscle incoordination...

does anyone who is diagnosed with cerebellar ataxia have thyroid problems/ So ma...

•8 years ago

Pip Assessment

Received my appointment today for a face to face for 8.30am I'd have to get up @5.30 to get ready to leave @ 7am to get in to Bristol in rush hour, changed...

Received my appointment today for a face to face for 8.30am I'd have to get up @...

•8 years ago

Children

I was told my ataxia had a 50/50 chance of being carried on to children and because of my age and as it had never happened, I decided to not have children. I...

I was told my ataxia had a 50/50 chance of being carried on to children and beca...

•8 years ago

tiredness & fatigue

Hello from an ataxian living in Austria :) Well, I've FA and I'm getting more and more tired ... Every day I'm getting out of my wheelchair noon and take a...

Hello from an ataxian living in Austria :) Well, I've FA and I'm getting more an...

•8 years ago

Just get on with life

I was diagnosed with Genetic Cerebellar Ataxia about 7 /8 years ago. My job involved a lot of talking, but apart from speech being difficult, my advice is...

I was diagnosed with Genetic Cerebellar Ataxia about 7 /8 years ago. My job inv...

•8 years ago

Ataxia and depression

hello I am new here so I'm sorry to be sad. I have been living with cerebellar ataxia for over 20 years but have also had quite severe depression.my mental...

hello I am new here so I'm sorry to be sad. I have been living with cerebellar a...

•8 years ago

Go and whistle. 🎃🎃🎃

I recently fell in the house and my wife didn't hear me call . My mobile phone was in another room ( naturally! ). I thought perhaps she was upstairs but then...

I recently fell in the house and my wife didn't hear me call . My mobile phone w...

•8 years ago

Plopony🐴

🤗 I was diagnosed hereditary SCA. I have not yet taken the genetic test to determine what type. I suffer with headaches and nausea on a regular basis along...

🤗 I was diagnosed hereditary SCA. I have not yet taken the genetic test to dete...

•8 years ago

Reasearch medical marihuana for ataxia

Hello. These times of news sharing it is hard to not notice all the videos and reports on what tremendous effects CBD oil and cannabis has on different...

Hello. These times of news sharing it is hard to not notice all the videos and ...

•8 years ago

Another newbie

Hi everyone My husband was diagnosed with SCA about 6 years ago. He's now just 50. They haven't been able to identify the affected gene but his neurologist is...

Hi everyone My husband was diagnosed with SCA about 6 years ago. He's now just 5...

•8 years ago

A response to 2Sunny regarding recent posts on trehalose and nicotinamide riboside

You quite rightly preface all your remarks by stating that you are not a doctor; but then you proceed in an attempt to convince people that they should...

You quite rightly preface all your remarks by stating that you are not a doctor;...

Partner•8 years ago

Cerebellar ataxia and benefits: PIP or ESA?

Hello everyone, Newbie here and first post. I was recently diagnosed with cerebellar ataxia. After 3/4 years of typical meandering gait I had noticed a...

Hello everyone, Newbie here and first post. I was recently diagnosed with cerebe...

•8 years ago

Trehalose and nicotinamide riboside as treatments for ataxia

Dear All We understand completely, the frustration at having to wait for science to take its course before treatments and cures become available. However,...

Dear All We understand completely, the frustration at having to wait for science...

Partner•8 years ago

Headaches

I was diagnosed in 2011 with CA unknown but for the last year I always seem to have a headache, my gp has ruled out lots of things over the year. On Monday my...

I was diagnosed in 2011 with CA unknown but for the last year I always seem to h...

•8 years ago

cerebellar ataxia from dilantin

looking for someone who has cerebellar ataxia from dilantin . im new here. i have done a lot of research on it but can get so much. maybe i can help you out...

looking for someone who has cerebellar ataxia from dilantin . im new here. i hav...

•8 years ago

Muscle spasms

Hi I am Mum to 2 sons aged 28 and 24 they both have Friedreich's Ataxia. My eldest son is having trouble with muscle spasms, it started in his legs about 3...

Hi I am Mum to 2 sons aged 28 and 24 they both have Friedreich's Ataxia. My elde...

•8 years ago

Sca 6

Is sca 6 slow progressing over years. My partner family seems to get it in their sixties I've heard there is no anticipation either so hoping my partner will...

Is sca 6 slow progressing over years. My partner family seems to get it in their...

•8 years ago

Good day then bad day, why?

Hi, I've recently been diagnosed with late onset Idiopathic Cerebellar Ataxia and seem to have a couple of reasonable days where my balance is copable with...

Hi, I've recently been diagnosed with late onset Idiopathic Cerebellar Ataxia a...

•8 years ago

Partial Possible Treatment for some SCAs.

EDIT: This is a post I made on another site and one that is linked in another post on this site. I am soon going to start a "Go Fund Me" campaign to begin a...

EDIT: This is a post I made on another site and one that is linked in another po...

•8 years ago

Sharing some info from the Living with Ataxia site

Hi all, I just saw a very interesting post on the LWA site and wanted to share with you all:...

Hi all, I just saw a very interesting post on the LWA site and wanted to share w...

•8 years ago

Occasional tremors - experience and "treatment" would be highly appreciated

Hello. I'm 26, I was diagnosed SCA14 when I was 16. My disease has evolved over the years and my symptoms get worse. Some years ago I experienced tremors in my...

Hello. I'm 26, I was diagnosed SCA14 when I was 16. My disease has evolved over ...

•8 years ago

Cerebellar ataxia and cochlear implant

I have cerebellar ataxia, Wondering if anyone had cochlear implant done with cerebellar ataxia, if yes how did you get on?

I have cerebellar ataxia, Wondering if anyone had cochlear implant done with cer...

•8 years ago

Hello all advice please

Hey I'm Louise 38 and had encephalitis aged 4. Now I finding work such a chore

Hey I'm Louise 38 and had encephalitis aged 4. Now I finding work such a chore

•8 years ago

Plopony

I used to ride horses. My goal is to ride again. Does anyone who has SCA ride horses?

I used to ride horses. My goal is to ride again. Does anyone who has SCA ride ho...

•8 years ago

Ataxia

Hi.need some advise.just been diagnosed as aving type sca 17.my family as.went to a neurologist and he did some tests.walking ect.one of my brothers is got an...

Hi.need some advise.just been diagnosed as aving type sca 17.my family as.went t...

Nottscounty1862

•8 years ago

Sca 6 and having a baby

Partner just been diagnosed with sca 6 has no symptoms yet. I already have a 3 yr old which is really upsetting who has not been tested . We were trying for a...

Partner just been diagnosed with sca 6 has no symptoms yet. I already have a 3 y...

•8 years ago

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