Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,084 members•4,658 posts

All posts for October 2020

Clumsy

Hi All, May I thank you in advance for reading my post. My mother used to say “do a job and make a job” and that’s exactly what I do. I am so clumsy now...

Hi All, May I thank you in advance for reading my post. My mother used to say ...

Jacqui-A

•4 years ago

5 Replies

The dolls house

Seems only one picture per post, so here’s the dolls house. Nigel

nigelrheath

•4 years ago

5 Replies

Hobby sharing

I have developed a love of wood into my newest hobby, utilising my years of diy around the house. I have a store of useful bits of wood, which my long...

I have developed a love of wood into my newest hobby, utilising my years of diy ...

nigelrheath

•4 years ago

1 Reply

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Juiceplus supplements

Morning all, A friend has recommended JuicePlus vegetable and fruit capsules for their antioxidant properties. She swears by them, had lots more energy and...

Morning all, A friend has recommended JuicePlus vegetable and fruit capsules for...

dansybelle

•4 years ago

5 Replies

Head pains?

Previous I have suffered from kind of oval plaques of pain on my head, which my neurologist said was caused by my neck and the physiotherapist then sorted for...

Previous I have suffered from kind of oval plaques of pain on my head, which my ...

ww-wibblywobbly

•4 years ago

9 Replies

All About Ataxia, 16-30s, 3rd/4th November.

Dear all Ataxia UK are holding an All About Ataxia seminar for anyone aged 16-30. The details are as follows- Are you aged 16-30? Do you have a recent...

Dear all Ataxia UK are holding an All About Ataxia seminar for anyone aged 16-30...

HarryB

Administrator•4 years ago

3 Replies

Indoor handrails

I was given some of these stairs handrails that I've installed myself. The one in my living room is in the photo and is easier than furniture surfing my way...

I was given some of these stairs handrails that I've installed myself. The one ...

Sailor_Girl

•4 years ago

3 Replies

How to add photos to a reply to a post?

Does anyone know a way to do this? Sometimes people who are more tech savvy than me (which is most people!) can work these things out and let others know It...

Does anyone know a way to do this? Sometimes people who are more tech savvy tha...

Sailor_Girl

•4 years ago

3 Replies

Front door support rails

These were already in place at our rented house.

wobblybee

•4 years ago

3 Replies

Outdoor grab rails

Grab rails fixed door to garage.

wobblybee

•4 years ago

2 Replies

My Hobbies

I crochet a lot, its my therapy. Here are some of my projects

isabelalfaiate

•4 years ago

5 Replies

Revitive - any good

I have been offered a trial on revitive Any one tried one?

Pineapple12

•4 years ago

4 Replies

Hobbies

A few weeks ago I had a telephone conversation with my Neurologist he mentioned that because I have difficulty in walking, need a stick, have dizzy and balance...

A few weeks ago I had a telephone conversation with my Neurologist he mentioned ...

Hidden

•4 years ago

14 Replies

PIP query

I am in receipt of PIP at the lower rate, how does it carry on after 4 years? I only ask, as I have had a few ads on FB this past few days, and one of the...

I am in receipt of PIP at the lower rate, how does it carry on after 4 years? I ...

Butcherpete

•4 years ago

8 Replies

Flu jab

🙂Today I went for my annual flu jab, I’m not great with needles but since my granddaughter (aged 1) had 4 jabs on Wednesday, I put on a brave front. Imagine...

🙂Today I went for my annual flu jab, I’m not great with needles but since my gr...

wobblybee

•4 years ago

4 Replies

Speech therapy

Hi everyone and thanks in advance for your replies. I wanted to know about speech therapy lessons. I have SCA1 and my speech is becoming slurred. I went to...

Hi everyone and thanks in advance for your replies. I wanted to know about speec...

Amynah

•4 years ago

5 Replies

CANVAS

Hi I’m a CANVAS sufferer , anyone else with that “label”

Oroklinibabe

•4 years ago

12 Replies

Diagnosis??

Hi all How is Cellebella Ataxia diagnosed? Is it common for Ataxia people not to be able to get diagnoses? Thanks Angela

Hi all How is Cellebella Ataxia diagnosed? Is it common for Ataxia people not to...

Fortoday

•4 years ago

31 Replies

Hello

I'm new here and joined to meet others with Ataxia and hopefully pick up some useful knowledge.

I'm new here and joined to meet others with Ataxia and hopefully pick up some us...

IrishLeprechaun

•4 years ago

8 Replies

Experience of occupational health?

Hi all, I’d be interested to hear of anyone who has had similar experiences of occupational health as I’m trying to figure out how to navigate an appointment...

Hi all, I’d be interested to hear of anyone who has had similar experiences of o...

MaryRH

•4 years ago

4 Replies

Personal alarms

I wanted to know if any of you are using personal alarms. I have been advised by the social services that I should have one, do people with ataxia SCA1 use...

I wanted to know if any of you are using personal alarms. I have been advised by...

Amynah

•4 years ago

7 Replies

2020..Possible treatment for Idiopathic Cerebellar Ataxia

Diagnosing and treating primary autoimmune cerebellar ataxia (PACA) Many people with ataxia are not given a specific diagnosis for the cause of their ataxia....

Diagnosing and treating primary autoimmune cerebellar ataxia (PACA) Many people ...

wobblybee

•4 years ago

10 Replies

Episodic Ataxia

Hi guys, yesterday my neurologist Dr P Shar for short, face to face at Sheffield diagnosed with the above. I had undergone many tests, mri, nerve conduction...

Hi guys, yesterday my neurologist Dr P Shar for short, face to face at Sheffiel...

Pacitto

•4 years ago

3 Replies

Niemann Pick Type C and IBIO01 N- acetyl-L -leucine

http://intrabio.com/2020/09/30/intrabio-reports-positive-data-from-ib1001-multinational-clinical-trial-for-the-treatment-of-niemann-pick-disease-type-c/

http://intrabio.com/2020/09/30/intrabio-reports-positive-data-from-ib1001-multin...

wobblybee

•4 years ago

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for October 2020

Clumsy

The dolls house

Hobby sharing

Juiceplus supplements

Head pains?

All About Ataxia, 16-30s, 3rd/4th November.

Indoor handrails

How to add photos to a reply to a post?

Front door support rails

Outdoor grab rails

My Hobbies

Revitive - any good

Hobbies

PIP query

Flu jab

Speech therapy

CANVAS

Diagnosis??

Hello

Experience of occupational health?

Personal alarms

2020..Possible treatment for Idiopathic Cerebellar Ataxia

Episodic Ataxia

Niemann Pick Type C and IBIO01 N- acetyl-L -leucine

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive