Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,084 members•4,658 posts

All posts for October 2016

Ataxia and stress

Hi, going through relationship difficulties at the moment, and just wonder whether sometimes whether ataxia can be brought on by stress, or made worse by...

Hi, going through relationship difficulties at the moment, and just wonder wheth...

•8 years ago

Frankinsense

Is it true frankinsense is good for ataxia

Is it true frankinsense is good for ataxia

•8 years ago

Drunk?

I cry a lot, as I have no control of what is happening to me, only diagnosed 4 months ago.

I cry a lot, as I have no control of what is happening to me, only diagnosed 4 m...

•8 years ago

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Epilepsy and ataxia

Hi does anyone suffer with seizures as well as ataxia I had massive fit yesterday

Hi does anyone suffer with seizures as well as ataxia I had massive fit yesterda...

•8 years ago

Epilepsy and ataxia

I just had ambulances up yesterday epileptic fit seemed to last forever my dr warned me sleeping pills and Prozac might cause this patch of fentanyl needed...

I just had ambulances up yesterday epileptic fit seemed to last forever my dr wa...

•8 years ago

Ayurvedic Treatments

Hi, does anyone have any experience or info on using Ayurvedic Treatments to treat Ataxia? I found this on some evidence of helping with balance problems:...

Hi, does anyone have any experience or info on using Ayurvedic Treatments to tre...

•8 years ago

shoulder an neck pain

i have pain in my neck which radiates into my shoulder + scapula(feels like something is sticking underneath), my arm and hand affecting all my fingers (thumb...

i have pain in my neck which radiates into my shoulder + scapula(feels like some...

•8 years ago

Exercise machines

I have been confined to a wheelchair for the last few years, or get around the house, very slowly, using a walker so exercising the legs is not an option....

I have been confined to a wheelchair for the last few years, or get around the h...

•8 years ago

Another symptom

hi all, I have a genetic ca from an unknown, to date, recessive gene. Was diagnosed in 2010 after a few years of balance and walking problems just wondered if...

hi all, I have a genetic ca from an unknown, to date, recessive gene. Was diagno...

•8 years ago

Mobility scooter

Hi I'm thinking of getting a scooter one that can go a fair old distance and not be fazed br rough terrain I'm 6'3 20stone any comments good and bad break...

Hi I'm thinking of getting a scooter one that can go a fair old distance and not...

•8 years ago

Some good benefits news for a change

Got my ESA after the Work Capability Assessment in July but was placed in the 'Work' group rather than the 'Support' group (even my local job centre thought...

Got my ESA after the Work Capability Assessment in July but was placed in the 'W...

•8 years ago

Should I exercise or "spare" my energie for the future?!

Hi there, I was recently diagnosed with Cerebelar Ataxia, still waiting on the Genetics Doctor and I was told it is a progressive and degenerative condition. I...

Hi there, I was recently diagnosed with Cerebelar Ataxia, still waiting on the G...

•8 years ago

Told by Consultant 'no' to learning to drive

Consultant has said 'no' to learning to drive in the UK. When I mentioned that if an assessment of driving 'off road' could take place in both an automatic and...

Consultant has said 'no' to learning to drive in the UK. When I mentioned that i...

•8 years ago

German Centre for Neurodegerative deseases

has anyone been/going there?

has anyone been/going there?

•8 years ago

What exercises can help?

Hello all, I have Premature Senile Decay of the Cerebellum, diagnosed about two years ago. I should be very interested to hear what exercises other...

Hello all, I have Premature Senile Decay of the Cerebellum, diagnosed about t...

•8 years ago

Meeting other people

Hi is there any support groups in the Huddersfield area

Hi is there any support groups in the Huddersfield area

•8 years ago

Thanks

Hi I am from South Africa and I just wanted to say Thank's for this site. I have read so many useful articles and got many questions answered

Hi I am from South Africa and I just wanted to say Thank's for this site. I have...

•8 years ago

Ataxia UK Webinar

As part of the Partnerships in Clinical Trials conference happening this November in Vienna, we are running a webinar on Wednesday 19th October from 2pm to...

As part of the Partnerships in Clinical Trials conference happening this Novembe...

•8 years ago

stick

You may have seen the article in the ataxian called called "using the force" [not my title i simple y call it stick holder] well if I have done it correctly...

You may have seen the article in the ataxian called called "using the force" [no...

•8 years ago

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query?

Does anyone know what happened to the American group "Living with Ataxia"? They seem to have vanished. I can't believe some software glitch can go on for a...

Does anyone know what happened to the American group "Living with Ataxia"? They ...

•8 years ago

Recommended specialist centres

Can anyone recommend which specialist centre to be referred am considering the one in Oxford or London? My husband is currently under a local neurologist who...

Can anyone recommend which specialist centre to be referred am considering the o...

•8 years ago

Movement improvement after physiotherapy

I would like to ask people about their experience of physiotherapy. I sometimes read in this forum that people do physiotherapy and that this helps them but...

I would like to ask people about their experience of physiotherapy. I sometimes ...

ConantheLibrarian

•8 years ago

WORK!!

I honestly thought that today i was going to find out if im to keep my job or not. Walked into office to have the bombshell dropped that they are making one of...

I honestly thought that today i was going to find out if im to keep my job or no...

•8 years ago

Anyone northern Irish with children

I suffer from spinocerebellar ataxia type 2 and I feel a bit lonely! My husband is amazing and has encouraged me to post etc on here but I would love to meet...

I suffer from spinocerebellar ataxia type 2 and I feel a bit lonely! My husband...

Clairemariegibson

•8 years ago

Time and tide

"xxxxxx has apointments in May with the RLH (Royal London Hospital ) and in June with the Homerton to assess the results of the last year of treatment"...

"xxxxxx has apointments in May with the RLH (Royal London Hospital ) and in June...

•8 years ago

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Regarding medication

Hi I am just wondering if any one else takes the diamox medication to help control there ataxia? My sister has just started on it however she said it leaves a...

Hi I am just wondering if any one else takes the diamox medication to help contr...

•8 years ago

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Informing DVLA

Hi, I want to find out how anyone else has got on with keeping their driving licence after informing the DVLA of ataxia (I have FA) I have not told them before...

Hi, I want to find out how anyone else has got on with keeping their driving lic...

•8 years ago

Genetic testing and family planning

Bit depressing but very interesting to know what you think as ataxia’s and carers. Last night’s tv programme on Downs Syndrome got me thinking. I am confused...

Bit depressing but very interesting to know what you think as ataxia’s and care...

•8 years ago

Dizziness part of ataxia

I was recently diagnosed with SCA type 2. I have nystagmus and slightly slurred speech as well as a shrunken cerebellum! I have no weakness in my legs or...

I was recently diagnosed with SCA type 2. I have nystagmus and slightly slurre...

Clairemariegibson

•8 years ago

falling down and getting up

Normally when I fall down and I crawl to a nearby chair/sofa/bed and try to stand up. a few days ago, I fell down and then crawled up to the sofa, to stand up...

Normally when I fall down and I crawl to a nearby chair/sofa/bed and try to stan...

•8 years ago

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