Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for August 2017

New to all this

Hi my names tracy,42 years old just been diagnosed with ataxia,awaiting official letter to find out type but have been prescribed acetazolomide slow release to...

Hi my names tracy,42 years old just been diagnosed with ataxia,awaiting official...

Scrunch1974

•7 years ago

15 Replies

Hi I'm New

I've been having loads of health problems recently and the GP's weren't very helpful. As I have private health insurance I asked my GP to refer me and they...

I've been having loads of health problems recently and the GP's weren't very hel...

Bellibeau

•7 years ago

14 Replies

Newbie

Signed up and am posting just to say hi. Have FA, am 45, I enjoy board games, books, and TV box sets. I've just begun a Skype speech therapy course--wanting...

Signed up and am posting just to say hi. Have FA, am 45, I enjoy board games, bo...

BrettDarby

•7 years ago

8 Replies

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Critical illness claims

So frustrating I have 2 insurance but don't seem to be under any of there illness don't meet there criteria what is the use of paying it 👹

So frustrating I have 2 insurance but don't seem to be under any of there illnes...

12taz

•7 years ago

7 Replies

Physiotherapist

Does anyone know of any physiotherapists who treat Ataxia in the Blackpool area?

Does anyone know of any physiotherapists who treat Ataxia in the Blackpool area?...

Ilide

•7 years ago

1 Reply

Weight balance jacket

I have contacted the clinic in Denmark which appears to be the only European country which is supplying this American invention. I am very interested that it...

I have contacted the clinic in Denmark which appears to be the only European cou...

woodesden

•7 years ago

14 Replies

ESA health assessment

Any tips on how to handle this? Husband is employed but been on sick for last year due to ataxia and other health issues including epilepsy. He is very worried...

Any tips on how to handle this? Husband is employed but been on sick for last ye...

rankin1st

•7 years ago

16 Replies

NEW

Hello. My name is Trish. Im new here and am very excited to have found you.Diagnosed wiith a rare form of Ataxia 18 months ago and since then have had little...

Hello. My name is Trish. Im new here and am very excited to have found you.Diagn...

DOTS01

•7 years ago

12 Replies

Disclosure?

Just wondering! Do you think I stand a better chance of finding paid employment as a computer developer by adding details of my brain injury to my c.v. or...

Just wondering! Do you think I stand a better chance of finding paid employment ...

Hidden

•7 years ago

1 Reply

Suspicious messages

Dear all If anyone gets in contact with you saying they have important information and not to reply to that message through HealthUnlocked but to email them...

Dear all If anyone gets in contact with you saying they have important informati...

HarryB

Administrator•7 years ago

9 Replies

Silly notes

Who's had msgs asking them to email someone but it must be done privately seems fishy

Who's had msgs asking them to email someone but it must be done privately seems ...

Guyb

•7 years ago

8 Replies

physio classes

does anyone know of any physio or pilates classes for ataxia in leicestershire

golfingsue

•7 years ago

6 Replies

Mobility Scooters Abroad

Hi both my Husband and I need to hire mobility scooters when we go on holiday and I am looking for recommendations of resorts and hotels that hire them and...

Hi both my Husband and I need to hire mobility scooters when we go on holiday an...

Sharona58

•7 years ago

12 Replies

Anyone else experiencing

With Ataxia I'm experiencing tummy pain &back pain also can't explain as if your muscle are moving espically when your led down also get eiposodes of feeling...

With Ataxia I'm experiencing tummy pain &back pain also can't explain as if your...

murcia

•7 years ago

5 Replies

Your recommended resources

Hi everyone, As part of updating the Ataxia UK website, I'd like to create a resources page to other websites and organisations that people affected by ataxia...

Hi everyone, As part of updating the Ataxia UK website, I'd like to create a re...

SMarley

•7 years ago

2 Replies

I am going for the result genetic test tmr

Hey folks , hope to find some cheer-ups here. My mom got sca3 since 50 from 2010 . I am 29 and decided to do the test after my bro also did the test. The...

Hey folks , hope to find some cheer-ups here. My mom got sca3 since 50 from 2010...

Karyfish

•7 years ago

13 Replies

Severe pain

Hi guys not been here in ages dude to "the black dog" but doing better. I've just woken up with terrible pain in my left arm and having trouble with moving it...

Hi guys not been here in ages dude to "the black dog" but doing better. I've jus...

bevvick1964

•7 years ago

12 Replies

Serum alanine

Ive recently found a liver test report 26 iu/L what does it mean

Guyb

•7 years ago

1 Reply

Ataxia UK London North-Central Branch

Hi everyone, I have had cerebellar ataxia for 14 years. I am a member of Ataxia UK and also help run the local branch at Angel, Islington, London. Very...

Hi everyone, I have had cerebellar ataxia for 14 years. I am a member of Ataxia ...

isa3000

•7 years ago

2 Replies

Riluzole

Hi Has anyone had any positive effects from taking riluzole? I have read that it stops the ataxia symptoms worsening. I know there is a trial in USA at the...

Hi Has anyone had any positive effects from taking riluzole? I have read that it...

1-0-1

•7 years ago

9 Replies

Electric toothbrush helps

Stumbled on this. My electric toothbrush helps a bit with my vision issues--not long lasting or curative. Maybe the vibrations help cerebellum? Has anyone...

Stumbled on this. My electric toothbrush helps a bit with my vision issues--not ...

neta

•7 years ago

4 Replies

Alexander Technique

I have booked a session on Friday to try out the Alexander Technique so will provide an update afterwards.Heres hoping it will be a success? Cheers Phil

I have booked a session on Friday to try out the Alexander Technique so will pro...

Lockmaster

•7 years ago

7 Replies

any advice for use of a kindle

I am looking for advice for a lady with ataxia who has now issues with her hands, losing her dexterity. She would like to buy a new device (kindle type), user...

I am looking for advice for a lady with ataxia who has now issues with her hands...

Maouni1980

•7 years ago

14 Replies

head shakes

Hi not been on for awhile but was wondering if anyone else has a really shaky head that gives a pain, not a headache but just a pain in the top of the head, my...

Hi not been on for awhile but was wondering if anyone else has a really shaky he...

xray25

•7 years ago

7 Replies

Cerebellar syndrome

Was diagnosed with this ten years ago. Viral based cerebellitis, would recover in a year. It didn't. Has got worse over time, and then because of poor balance,...

Was diagnosed with this ten years ago. Viral based cerebellitis, would recover i...

Senoja

•7 years ago

7 Replies

Partner of ataxia sufferer

My partner was diagnosed with spinocerebellar ataxia type 2 just over a year ago.He is in denial and continues to work full time. I also work full time but...

My partner was diagnosed with spinocerebellar ataxia type 2 just over a year ago...

Alip-j

•7 years ago

19 Replies

Advice for partner of ataxia sufferer

My partner is 45 and was diagnosed with spinocereveller ataxia type 2 just over a year ago.He's in denial and continues to work full time.I work full time and...

My partner is 45 and was diagnosed with spinocereveller ataxia type 2 just over ...

Alip-j

•7 years ago

6 Replies

Prenatel testing sca 6

Would you get prenatel testing? Would it change anything ? Im at a loss of what to do. Not get it or get the test done or try kayromapping which is expensive...

Would you get prenatel testing? Would it change anything ? Im at a loss of what...

lola261184

•7 years ago

12 Replies

PIP

When they come back to you after a couple of years to see if you're still the same, they can't take away your pay can they?

When they come back to you after a couple of years to see if you're still the sa...

Caraxxo

•7 years ago

13 Replies

I hate the DWP and they know it!

It seems after 18 months the DWP have found me to be disabled. Hurray! So they paid me a back payment and managed to withhold over a thousand pounds, I had...

It seems after 18 months the DWP have found me to be disabled. Hurray! So they...

DeniseLB

•7 years ago

9 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for August 2017

New to all this

Hi I'm New

Newbie

Critical illness claims

Physiotherapist

Weight balance jacket

ESA health assessment

NEW

Disclosure?

Suspicious messages

Silly notes

physio classes

Mobility Scooters Abroad

Anyone else experiencing

Your recommended resources

I am going for the result genetic test tmr

Severe pain

Serum alanine

Ataxia UK London North-Central Branch

Riluzole

Electric toothbrush helps

Alexander Technique

any advice for use of a kindle

head shakes

Cerebellar syndrome

Partner of ataxia sufferer

Advice for partner of ataxia sufferer

Prenatel testing sca 6

PIP

I hate the DWP and they know it!

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive