Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,084 members•4,658 posts

All posts for July 2019

Vitamin D

Hi all I hope you are all okay. I'm currently away and have noticed that the stiffness in my legs is easing but home ward bound in a couple of days and was...

Hi all I hope you are all okay. I'm currently away and have noticed that the st...

Pineapple12

•5 years ago

6 Replies

doom and gloom

Is baclafen helpful to anyone? I still shake when I walk, don t have any speech problems, have sca 2 and am frightened what else will happen? I use to be...

Is baclafen helpful to anyone? I still shake when I walk, don t have any speech...

auntiesally

•5 years ago

7 Replies

Should I

I am thinking of buying the Iqoro? does it work? Would other members recommend it?

I am thinking of buying the Iqoro? does it work? Would other members recommend i...

stjamesangel

•5 years ago

6 Replies

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AOA2, anyone out there with same or parents of?

Hi all, my son, now 19 has been diagnosed with AOA2 with occular apraxia, it now seems my younger son, 13 has the same condition and is undergoing genetic...

Hi all, my son, now 19 has been diagnosed with AOA2 with occular apraxia, it now...

cocofrance

•5 years ago

18 Replies

Good tasty recipes for gluten free, source of flours etc

A recommendation for three good things for gluten ataxia sufferers! I am sure there are many others but these have helped my specific problems with foods...

A recommendation for three good things for gluten ataxia sufferers! I am sure th...

pinjem

•5 years ago

5 Replies

Ataxia is Parkinson Disease ?

Is Parkinson disease (PD) and Ataxia is from the same family of disorder? I have seen the same medicines are working in both conditions. An elaboration would...

Is Parkinson disease (PD) and Ataxia is from the same family of disorder? I have...

kuchee

•5 years ago

12 Replies

IQora. A device to try for help with swallowing difficulties.

This has been successfully trialled by the NHS in some areas of the UK. For full information google IQora. What is IQoro®? IQoro has been developed for people...

This has been successfully trialled by the NHS in some areas of the UK. For ful...

wobblybee

•5 years ago

3 Replies

Wheelchair

Can anybody tell me where I could get an 16inch wide self propelling wheelchair with swing in & out legs,also removable arms or swing up arms Many Thanks

Can anybody tell me where I could get an 16inch wide self propelling wheelchair...

murcia

•5 years ago

13 Replies

Angela Trafford, Raunds, Northants.

Does anyone know the above person - a former friend before I moved to London. She had Ataxia, before I knew what it was!? There are so many questions I...

Does anyone know the above person - a former friend before I moved to London. Sh...

Pukkaone

•5 years ago

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Wing Walk

As you know my WIng Walk for Ataxia was cancelled again at Wickenby so I’ve decided to do it at RFC Rendcomb Airfield near Cirencester instead on Saturday 10...

As you know my WIng Walk for Ataxia was cancelled again at Wickenby so I’ve dec...

Staggy1

•5 years ago

3 Replies

OT vest for Sale

I have ordered an large weighted OT Vest from US for my husband, but it came as wrong size (3lb small). My husband can’t fit in. I think it might be useful for...

I have ordered an large weighted OT Vest from US for my husband, but it came as ...

phelp

•5 years ago

1 Reply

Come fly with me

Afternoon call hope by the Grace of God all are keeping well and healthy. I have Ataxia of the Cerebellum can you fly on long haul flight thank you all

Afternoon call hope by the Grace of God all are keeping well and healthy. I have...

Shahidzak

•5 years ago

5 Replies

Speech with Ataxia

Wondering if you loose the ability to speak with Ataxia or just speech is muffled.

Wondering if you loose the ability to speak with Ataxia or just speech is muffle...

HOTRODS

•5 years ago

5 Replies

Nerve Pain and Kay Walker

Hi guys, I have lost the ability to walk over the last couple of weeks due to my ataxia increasing and making it unsafe to walk I just wobble and fall;...

Hi guys, I have lost the ability to walk over the last couple of weeks due to my...

Grapes12

•5 years ago

13 Replies

SCA type 2

Hi I have SCA type 2 and have had it for almost 10 years. I have a walking stick which I need to use when walking alone. This last year my ataxia has...

Hi I have SCA type 2 and have had it for almost 10 years. I have a walking stic...

weegiz12345

•5 years ago

30 Replies

Writing, typing any suggestions?

I dictate emails but spend a lot of time adding punctuation and rewriting, I cannot see the huge keyboard I have clearly, and never learned typing. I can cope...

I dictate emails but spend a lot of time adding punctuation and rewriting, I can...

pinjem

•5 years ago

4 Replies

Has anyone tried medical marijuana?

If so have you found it helpful? Which symptoms has it helped? Has it replaced any of your medications? What CBD/THC mix do you use? I'm curious because it...

If so have you found it helpful? Which symptoms has it helped? Has it replaced a...

Hidden

•5 years ago

10 Replies

Access to work

Hi I have a taxi to and from work paid by access to work, should I tip these drivers? there's lots of different ones and i used to have a bus pass so used to...

Hi I have a taxi to and from work paid by access to work, should I tip these dri...

weegiz12345

•5 years ago

12 Replies

Son with Ataxia

My son is 7 years old and has been dealing with a walking disorder that they have yet to actually diagnose but they are leaning towards cerebral ataxia. He...

My son is 7 years old and has been dealing with a walking disorder that they hav...

sharpdesigns16

•5 years ago

1 Reply

Ataxia and pregnancy

Hi all, Hoping to get some info from mothers who have ataxia and have gone through a pregnancy. Feel free to inbox me if you'd prefer. My wife has FA and is 7...

Hi all, Hoping to get some info from mothers who have ataxia and have gone throu...

Adam1420

•5 years ago

8 Replies

I got PIPS renewed

I was told over the phone on Thursday evening that I have been awarded my PIPS. I am getting the higher rate for daily living allowance and the basic rate for...

I was told over the phone on Thursday evening that I have been awarded my PIPS. ...

KiwiBob

•5 years ago

4 Replies

Trehalose

This has been posted on my FA parents group...

simon111

•5 years ago

2 Replies

Power plate

Hi everyone,my 15 year ,almost 16,old son has friedrichs ataxia He has scoliosis as a result,6 months ago at his hospital check up it was 78 and 74 degrees...

Hi everyone,my 15 year ,almost 16,old son has friedrichs ataxia He has scoliosi...

simon111

•5 years ago

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Coughing

Just wondering if coughing and sometimes chocking while in a coughing fit could be related to SCA.

Just wondering if coughing and sometimes chocking while in a coughing fit could...

HOTRODS

•5 years ago

12 Replies

Carers Allowance...

My partner applied for Carers Allowance, what I would like to know is (from those who know) will I loose any UC we get, which includes a housing allowance. IF...

My partner applied for Carers Allowance, what I would like to know is (from thos...

peterallison

•5 years ago

4 Replies

Massage?

I had a massage from the physiotherapist this morning and I am now exhausted and in agony!! This happens every time I have a massage. Thankfully I'm not very...

I had a massage from the physiotherapist this morning and I am now exhausted and...

ww-wibblywobbly

•5 years ago

9 Replies

Numb toes

I have cerebellar Ataxia, does anyone else have numb toes if you stand for awhile. Why is it so hard to walk down a hill, but so easy to walk up a hill with no...

I have cerebellar Ataxia, does anyone else have numb toes if you stand for awhil...

Plain

•5 years ago

28 Replies

HELPING

OK I am getting worse but I want to stay as good as I can. You may have heard of all these - I had not and they are all helping. Wedge cushion - good for...

OK I am getting worse but I want to stay as good as I can. You may have heard of...

Litty

•5 years ago

10 Replies

PoNS function

Has anyone heard of the latest treatment for Ataxia called PoNS function. I read the article and would like to know if anyone tried this and is it a successful...

Has anyone heard of the latest treatment for Ataxia called PoNS function. I read...

HOTRODS

•5 years ago

4 Replies

Hemp Oil

Hi, I an wondering if anyone with Ataxia has tried Hemp Oil. My husband just started taking it days ago. He thought he would try it and give it a chance to...

Hi, I an wondering if anyone with Ataxia has tried Hemp Oil. My husband just sta...

HOTRODS

•5 years ago

5 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for July 2019

Vitamin D

doom and gloom

Should I

AOA2, anyone out there with same or parents of?

Good tasty recipes for gluten free, source of flours etc

Ataxia is Parkinson Disease ?

IQora. A device to try for help with swallowing difficulties.

Wheelchair

Angela Trafford, Raunds, Northants.

Wing Walk

OT vest for Sale

Come fly with me

Speech with Ataxia

Nerve Pain and Kay Walker

SCA type 2

Writing, typing any suggestions?

Has anyone tried medical marijuana?

Access to work

Son with Ataxia

Ataxia and pregnancy

I got PIPS renewed

Trehalose

Power plate

Coughing

Carers Allowance...

Massage?

Numb toes

HELPING

PoNS function

Hemp Oil

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive