Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,027 members • 4,568 posts

All posts for October 2022

Poll Tax

Does anybody get a reduced poll tax for having Ataxic if not check it out might be Ezra money every month and it’s back dated. 😊 take care all and stay...

Does anybody get a reduced poll tax for having Ataxic if not check it out might ...

paul456

•1 year ago

8 Replies

FYI..

https://www.prnewswire.com/news-releases/seelos-therapeutics-doses-first-patient-in-a-registrational-phase-iiiii-study-of-sls-005-in-spinocerebellar-ataxia-3016

https://www.prnewswire.com/news-releases/seelos-therapeutics-doses-first-patient...

nycgeordie

•1 year ago

1 Reply

100,000 GENOME PROJECT

🙂 Some of us took part in this project and wonder why we haven’t received any results..There can be a number of reasons and this link explains .....

🙂 Some of us took part in this project and wonder why we haven’t received any r...

wobblybee

•1 year ago

3 Replies

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To have the Autumn Covid booster or not?

HI all, firstly following 2 of 3 vaccinations/boosters I had quite bad side effects for 5 to 6 weeks. My ataxia symptoms were effected as well and really...

HI all, firstly following 2 of 3 vaccinations/boosters I had quite bad side ef...

penelope2

•1 year ago

8 Replies

Don't know how to make a 2nd post

Any one have more info on ----- Dr Schmahmann’s work on Cerebellar Cognitive Affective Disorder also touches on why issues with the cerebellum which cause...

Any one have more info on ----- Dr Schmahmann’s work on Cerebellar Cognitive Af...

usa2

•1 year ago

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Trama,tinnitus and ataxia

Please read my profile first. At my last semi-annual VA- ENT visit As I normally do, the Dr. cleaned the wax out of my ears using a vacuum device, this time...

Please read my profile first. At my last semi-annual VA- ENT visit As I norma...

usa2

•1 year ago

8 Replies

Ataxia and tinnitus

Has anyone with Ataxia and tinnitus ever uses a deaf aid? I am going deaf ( so my wife says!!) and I wondered if a deaf aid could help with balance as well...

Has anyone with Ataxia and tinnitus ever uses a deaf aid? I am going deaf ( s...

tedjohnson

•1 year ago

6 Replies

Testing for food intolerances

I have seen references on this site to private , not NHS tests for food intolerances. How do I organise one ? For ten years I've suspected food to be a big...

I have seen references on this site to private , not NHS tests for food intolera...

Piero

•1 year ago

1 Reply

Thought process long after diagnosis

Having moved home several times, my medical records have moved back and forth. Despite being advised my records are computerised and available, my...

Having moved home several times, my medical records have moved back and forth. ...

PatsyIpswich

•1 year ago

6 Replies

GLUTEN ATAXIA

How do you get tested for this as I have not had my Ataxia diagnosed and notice symptoms worsen when having wheat products.

How do you get tested for this as I have not had my Ataxia diagnosed and notice ...

Riverway

•1 year ago

4 Replies

Balance

saw this on YouTube https://youtu.be/clI2BHDyc-k

BrettDarby

•1 year ago

3 Replies

Has anyone been involved with trial of Trehalose for SCA3?

Several trials in USA and Malaysia have been established using SLS-005 Trehalose in oral or infusions. Starting an infusion trial in Australia soon.

Several trials in USA and Malaysia have been established using SLS-005 Trehalose...

Bikebug

•1 year ago

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Diverticulosis

I just was diagnosed with Diverticulosis which is very painful. Have to do a special diet, but I really would like to know if it's curable or is this a...

I just was diagnosed with Diverticulosis which is very painful. Have to do a sp...

Maxineto

•2 years ago

6 Replies

Baclofen

Morning all Does anybody take Baclofen and if you do does it work? I’ve been taking it for 10 days now and my legs seem worse ie really stiff ☹️ Thanks

Morning all Does anybody take Baclofen and if you do does it work? I’ve been ta...

paul456

•2 years ago

10 Replies

iron chelation therapy

hello Everyone I hope you are well. My ferritin levels are high and before I see my neurologist on Wednesday I was wondering if anyone else had this too and...

hello Everyone I hope you are well. My ferritin levels are high and before I s...

PaulaG3

•2 years ago

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Medical Retirement

I have not posted for a while. I have some good news. I got Medical Retirement. I stopped work on the 30th September and got medial retirement from the 1st...

I have not posted for a while. I have some good news. I got Medical Retirement....

KiwiBob

•2 years ago

8 Replies

just a question.

I haven’t posted for awhile, so hope you are all keeping well, I was recently released from hospital after having Mini Strokes at night….. here’s a question on...

I haven’t posted for awhile, so hope you are all keeping well, I was recently re...

Veteran250

•2 years ago

25 Replies

How much does money influence outcomes in the UK?

I have been recently ‘diagnosed’ with Cerebellar Ataxia. If I was a billionaire, how would my prognosis change I wonder?

I have been recently ‘diagnosed’ with Cerebellar Ataxia. If I was a billionaire,...

Ostap

•2 years ago

7 Replies

Best mobile phone for Ataxia?

hi all, my brother suffers badly with his eyes, the blurry vision has gone worse and he’s struggling to read books or watch telly. He uses an “old school”...

hi all, my brother suffers badly with his eyes, the blurry vision has gone wors...

Larobby

•2 years ago

5 Replies

? Gluten Ataxia after 10 + years. Is GF diet worth it?

Hi all, I have have suffered with ataxia for over 10 years & last year was advised to start a strict GF diet. After 10 months I haven't noticed any...

Hi all, I have have suffered with ataxia for over 10 years & last year was advi...

jonbon

•2 years ago

25 Replies

Coping with ataxia in colder weather.

Hi everyone, i have some days when it is difficult coping with all the challenges that Ataxia brings. With the weather getting colder and stiffness getting...

Hi everyone, i have some days when it is difficult coping with all the challenge...

penelope2

•2 years ago

5 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for October 2022

Poll Tax

FYI..

100,000 GENOME PROJECT

﻿To have the Autumn Covid booster or not?

Don't know how to make a 2nd post

Trama,tinnitus and ataxia

Ataxia and tinnitus

Testing for food intolerances

﻿Thought process long after diagnosis

GLUTEN ATAXIA

Balance

Has anyone been involved with trial of Trehalose for SCA3?

Diverticulosis

Baclofen

iron chelation therapy

Medical Retirement

just a question.

How much does money influence outcomes in the UK?

Best mobile phone for Ataxia?

? Gluten Ataxia after 10 + years. Is GF diet worth it?

Coping with ataxia in colder weather.

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive

To have the Autumn Covid booster or not?

Thought process long after diagnosis