Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,037 members • 4,576 posts

All posts for May 2024

help!

Got another question to ask all my ataxia friend’s are normally quick to answer so here goes. I have SCA2 my mum and her 2 sisters are ataxia free so I think...

Got another question to ask all my ataxia friend’s are normally quick to answer ...

weegiz12345

•2 days ago

9 Replies

SCA type 48

Hi everyone, My mother has just been diagnosed with Spinocerebellar Ataxia 48. We have been told it’s very rare but this could be due to only recently finding...

Hi everyone, My mother has just been diagnosed with Spinocerebellar Ataxia 48. ...

RN12120

•3 days ago

5 Replies

My attempts at managing SCA3

I have a COMPEX SP8.0 (it is not cheap, and it is the best EMS on the market) and it can be adjusted based on its measurement of the muscles. I am not taking...

I have a COMPEX SP8.0 (it is not cheap, and it is the best EMS on the market) an...

Bikebug

•7 days ago

7 Replies

Want to take advantage of all our features? Just log in!

Best aid for progressive mobility decline. E- Traveller Electric Rollator.

I have SCA3 and have looked into best devices to assist getting around safely. I can recommend the E-Traveller Electric Rollator. It is available from...

I have SCA3 and have looked into best devices to assist getting around safely. ...

Bikebug

•8 days ago

6 Replies

Russia

You have to be hard to have ataxia so I think we should all get together to beat Russia we will become the SAS ie the Special Ataxia Service Russia will not...

You have to be hard to have ataxia so I think we should all get together to beat...

paul456

•8 days ago

7 Replies

Genetic diagnosis

Hi all, sorry I haven't posted anything for ages but sometimes life is like that. I have finally got some sort of diagnosis. I had more genetic testing a...

Hi all, sorry I haven't posted anything for ages but sometimes life is like that...

ww-wibblywobbly

•9 days ago

3 Replies

Many thanks!

Thank you so much to all the people who took the trouble to answer my query about how much exercise to do. There was so much good advice and sharing of...

Thank you so much to all the people who took the trouble to answer my query abou...

Libra7

•9 days ago

1 Reply

I can people with cerebellar ataxia teach themselves to walk again?

Hi folk, I have not written anything on here for a while, but I have two questions. The first one is, can people teach themselves to walk again to cerebellar...

Hi folk, I have not written anything on here for a while, but I have two questio...

AnneMenzies

•9 days ago

6 Replies

Can you do too much exercise?

I wonder if any one else has the same experience as me. We all know how important exercise is for neurological conditions so I followed the conditions of a...

I wonder if any one else has the same experience as me. We all know how importa...

Libra7

•10 days ago

13 Replies

Lost site

I lost this site gain. Why?

klazien

•13 days ago

Be the first to reply

pharmacological coma

Is it possible to resort to pharmacological coma when a person suffering from ataxia has to remain tied to the bed and is fed artificially?

Is it possible to resort to pharmacological coma when a person suffering from at...

michelagvolpe

•13 days ago

3 Replies

CEREBAL ATAXIA

Wounded on patrol in the Middle East and a Motar Shell hit my section and I received gunshot wounds to head, eyes, brain with Shrapnel entering my Cerebellum...

Wounded on patrol in the Middle East and a Motar Shell hit my section and I rece...

Guards

•14 days ago

4 Replies

Search posts

Latest poll

See all polls

How long have you or your relative/friend been diagnosed with ataxia?

Vote

Topics

All posts(503)

All things Ataxia UK(464)

Research projects(38)

Our publications(1)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for May 2024

help!

SCA type 48

My attempts at managing SCA3

Best aid for progressive mobility decline. E- Traveller Electric Rollator.

Russia

Genetic diagnosis

Many thanks!

I can people with cerebellar ataxia teach themselves to walk again?

Can you do too much exercise?

Lost site

pharmacological coma

CEREBAL ATAXIA

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive