Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for December 2017

suggestions please

Hello dear friends. I wonder if anyone could advise me on how to alleviate stiff limbs. By this I specifically mean back of the legs. The stiffness...

Hello dear friends. I wonder if anyone could advise me on how to alleviate stiff...

piglet3

•6 years ago

16 Replies

Hint of a direct link. Exercise to proteins.

Anyone who has read my posts knows that I am continually harping on exercise. Exercise has been shown to delay symptoms of numerous neurological diseases, but...

Anyone who has read my posts knows that I am continually harping on exercise. E...

sunvox

•6 years ago

1 Reply

Help xxxx Tracheotomy

My Mum, my nephew and his Mum and me all have Fred's Ataxia. I do loads of exercise and go out and think positive so does my Nephew. My Mum and sister did/do...

My Mum, my nephew and his Mum and me all have Fred's Ataxia. I do loads of exerc...

HazelCarr123

•6 years ago

2 Replies

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Mycophenolate

Has anyone been prescribed mycophenolate to treat the symptoms of their ataxia? I go to see Professor Hadjivassiliou in Sheffield and he suggests I take this...

Has anyone been prescribed mycophenolate to treat the symptoms of their ataxia? ...

2rayvon4

•6 years ago

27 Replies

Pip

Good news got my pip payment enhanced rate on both care and monilitu

xray25

•6 years ago

9 Replies

2018

Merry Christmas and a happy new year To everyone Hope 2018 is a excellent one for all of us 😎😎👍👍

Merry Christmas and a happy new year To everyone Hope 2018 is a excellent one ...

Art69

•6 years ago

4 Replies

HAPPY CHRISTMAS!

All have a great day and eat and drink too much. Love you all heaps xxxxxx

Litty

•6 years ago

1 Reply

Merry Christmas

merry Christmas to all fellow ataxia sufferers, carers, families and all who are touched by this illness. Have a lovely day everyone. Wishing you all the best...

merry Christmas to all fellow ataxia sufferers, carers, families and all who are...

wibblywobbly

•6 years ago

5 Replies

Merry Christmas

Hi just wanted to say Merry Christmas to everyone and thanks for all the advice and support through this year of my husband getting diagnosed. You have all...

Hi just wanted to say Merry Christmas to everyone and thanks for all the advice ...

rankin1st

•6 years ago

8 Replies

Sleep

Hi just curious about how much sleep people need. I have CA and need about 10 hours a night. Currently I am only getting around 8 thanks to my wife's alarm and...

Hi just curious about how much sleep people need. I have CA and need about 10 ho...

SamGH

•6 years ago

12 Replies

Mri with laser treatment

Has anyone heard of a treatment where you go to have an mri done they use a laser and put your head in like a football helmet apparently it works for...

Has anyone heard of a treatment where you go to have an mri done they use a lase...

foffee11

•6 years ago

2 Replies

writing

so frustrated this time of year is so challenging with so many tasks...writing cards and wrapping presents..do other people find this hard ???

so frustrated this time of year is so challenging with so many tasks...writing c...

claire01

•6 years ago

21 Replies

Gripping items

Hi friends Just wondering if anyone has trouble with trying to grip or hold things with there and try and move around,I am having trouble picking up items and...

Hi friends Just wondering if anyone has trouble with trying to grip or hold thin...

Art69

•6 years ago

14 Replies

Upcomming CRISPR trials

Just wanted to link this to you guys aswell. Very exiting news. https://www.technologyreview.com/s/609722/crispr-in-2018-coming-to-a-human-near-you/

Just wanted to link this to you guys aswell. Very exiting news. https://www.te...

Zephyr10

•6 years ago

4 Replies

Balance wear

I got it from Denmark to improve balance

ilhana

•6 years ago

10 Replies

I supper vertigo almost 3 wks now. I consult 3 doc. And diagnose vertigo. I feel dizzines,spinning,nause and sometime cant slep. Im frm phil

My doc. Prescribe 16mg betahistne for 1 wk and i feel better but when i get exercise may head was put down to the flow suddenly i feel spinning. What should i...

My doc. Prescribe 16mg betahistne for 1 wk and i feel better but when i get exer...

Ariesodchigue

•6 years ago

3 Replies

Burst pipe

I had a bad burst last Mon. and luckily my mum stays in same street. Been there a week but it's dries out enuf. Imagine, I'm a plumber but stopcock under sink...

I had a bad burst last Mon. and luckily my mum stays in same street. Been there ...

celtic1888

•6 years ago

1 Reply

Dancing

What a happy, colourful, joyous, clean show Strictly come Dancing has been (and it's all finished 'sob'). I am thinking of joining next year but need a very...

What a happy, colourful, joyous, clean show Strictly come Dancing has been (and ...

tedjohnson

•6 years ago

6 Replies

My darling Dad died. I’m mortified and can’t cope xx

I lost my amazing pops whilst on holiday in Florida but came back to major annamosity bacause I couldn’t be there because I can’t drive yet my sister won’t see...

I lost my amazing pops whilst on holiday in Florida but came back to major annam...

bevvick1964

•6 years ago

14 Replies

Pip

Had pip asse#mentioned 2 wks ago dose anyone mo how long you wait for results the suspension is stressing me out so much xxx

Had pip asse#mentioned 2 wks ago dose anyone mo how long you wait for results th...

xray25

•6 years ago

9 Replies

Ophthalmology

I have a appointment next month with the eye clinic. Does anyone know what they are looking for? . Many thanks

I have a appointment next month with the eye clinic. Does anyone know what they ...

12daisy

•6 years ago

8 Replies

PIP assessment is here

Got a letter Monday. Assessment Thursday. U know what to expect but anyone got advice?

Got a letter Monday. Assessment Thursday. U know what to expect but anyone got a...

SamGH

•6 years ago

21 Replies

My College Assessment

It was a fun day today at College. I did walk during the assessment but tired out about 2 minutes every time, I would need to wait and reset so I could go...

It was a fun day today at College. I did walk during the assessment but tired ou...

illerpath

•6 years ago

22 Replies

Treatment for Huntingdon 's

There has been a breakthrough in the treatment of Huntingdon ' s. They think it could work for other neurodegenerative diseases..If you go on the BBC website...

There has been a breakthrough in the treatment of Huntingdon ' s. They think it ...

Don21

•6 years ago

12 Replies

Finally a diagnosis

I met this morning with Professor Cader at The John Radcliffe in Oxford. After a detailed discussion and some tests he told me I have , wait for it......

I met this morning with Professor Cader at The John Radcliffe in Oxford. After a...

Woodturnerman

•6 years ago

10 Replies

This is a really stupid question......but

For some bizarre reason i get migraines, dizziness and nausea from wearing a hat. I get them randomly anyway but if I don a hat, it's guaranteed. Does anyone...

For some bizarre reason i get migraines, dizziness and nausea from wearing a hat...

PeteW

•6 years ago

11 Replies

Soundcloud. https://soundcloud.com/user-29834999/illerpath-missing-you

Please listen to my music in your free time it will make me very happy, this was made 9 months ago... If the link does not work-...

Please listen to my music in your free time it will make me very happy, this was...

illerpath

•6 years ago

12 Replies

Tips and tricks that may be useful

I Thought I'd share a couple of tips as some may find useful. Sticky Gel Pads (AMazon) -- I'm allways bashing my coffee table with my wheeelchair and my drink...

I Thought I'd share a couple of tips as some may find useful. Sticky Gel Pads (A...

PeteW

•6 years ago

4 Replies

Neuro reset

Hello has anyone come across this US based company that has invented various simple devices that apparently stimulate neuro-pathways and help with...

Hello has anyone come across this US based company that has invented various sim...

KIrvine2017

•6 years ago

8 Replies

Bus woes

Hi everyone. I wanted to share this https://twitter.com/samghyde/status/938759149768364032

Hi everyone. I wanted to share this https://twitter.com/samghyde/status/93875914...

SamGH

•6 years ago

1 Reply

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for December 2017

suggestions please

Hint of a direct link. Exercise to proteins.

Help xxxx Tracheotomy

Mycophenolate

Pip

2018

HAPPY CHRISTMAS!

Merry Christmas

Merry Christmas

Sleep

Mri with laser treatment

writing

Gripping items

Upcomming CRISPR trials

Balance wear

I supper vertigo almost 3 wks now. I consult 3 doc. And diagnose vertigo. I feel dizzines,spinning,nause and sometime cant slep. Im frm phil

Burst pipe

Dancing

My darling Dad died. I’m mortified and can’t cope xx

Pip

Ophthalmology

PIP assessment is here

My College Assessment

Treatment for Huntingdon 's

Finally a diagnosis

This is a really stupid question......but

Soundcloud. https://soundcloud.com/user-29834999/illerpath-missing-you

Tips and tricks that may be useful

Neuro reset

Bus woes

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive