Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for August 2020

Any advice on Employment Law please?

Please can anyone help.My partner when diagnosed with sca2 was put onto a lighter job and was sent to the work Occ Health.They said he should be reviewed 6...

Please can anyone help.My partner when diagnosed with sca2 was put onto a lighte...

Alip-j

•4 years ago

7 Replies

NAF (National Ataxia Foundation) virtual meeting re Ataxia and DRPLA.

https://ataxia.org/el-pfdd-meeting/

wobblybee

•4 years ago

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I have been diagnosed with Anti GAD65 Cerebellar ataxia - does anybody else have this?

I have various symptoms, ‘dancing eyes’, nausea, fluctuating balance and tiredness. I would be really keen to hear from others with the same condition.

I have various symptoms, ‘dancing eyes’, nausea, fluctuating balance and tiredne...

mahorses

•4 years ago

1 Reply

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Living in a maisonette/flat

Hello I have spinal ataxia and live in a maisonette on the 2nd floor (no lift). I have been using home delivery services for my supermarket shopping. Today me...

Hello I have spinal ataxia and live in a maisonette on the 2nd floor (no lift)....

Eveie78

•4 years ago

7 Replies

Do you think Cerebellar ataxia of unknown cause is a diagnosis?

Morning all I was told I had cerebellar ataxia nearly 30 years ago. Despite many tests over the years a cause has never been found. My question...do you...

Morning all I was told I had cerebellar ataxia nearly 30 years ago. Despite ma...

HarryB

Administrator•4 years ago

15 Replies

New Ataxia photo ID cards

Good morning guys, hoping you’re all well in this horrible miserable wet day-well that’s what it’s like here in West Yorkshire! Just a query really. - My...

Good morning guys, hoping you’re all well in this horrible miserable wet day-wel...

Legs-alive

•4 years ago

9 Replies

I don't know what to do

Hi everyone I haven't been officially diagnosed with CA, still undergoing tests. I suffer from depression and at the moment my anxiety levels are through the...

Hi everyone I haven't been officially diagnosed with CA, still undergoing tests....

Janice717

•4 years ago

10 Replies

Intermittent fasting, is it still helping?

About a year or so ago someone put up a post about her fantastic benefits with her symptoms through intermittent fasting , I would like to know is she still...

About a year or so ago someone put up a post about her fantastic benefits with h...

Happyfacexx

•4 years ago

6 Replies

Cerebellar Ataxia Constant falling

After nearly 15 years of mild Cerebellar Ataxia it seems to be getting worse. I'm falling every day. I find that what is causing my fall is that the rubber...

After nearly 15 years of mild Cerebellar Ataxia it seems to be getting worse. I'...

terryzx

•4 years ago

25 Replies

Neck pain

Good morning. I have cerebellum ataxia, cause unknown. I have the same symptoms I see posted often but I’m curious if anyone suffers from severe neck pain?...

Good morning. I have cerebellum ataxia, cause unknown. I have the same symptoms...

Jessie70

•4 years ago

14 Replies

SCA Source Spotlight on Research 2020

https://scasource.net/2020/08/21/you-asked-we-listened-introducing-scasource-spotlights/

https://scasource.net/2020/08/21/you-asked-we-listened-introducing-scasource-spo...

wobblybee

•4 years ago

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Work & Equality

I am trying to predict the future here, I have been working from home since 23rd March after I was sent home as too vulnerable to stay, fair enough I am able...

I am trying to predict the future here, I have been working from home since 23rd...

Athywhite

•4 years ago

2 Replies

Problems with my foot.

Hello all I have SCA6 and have noticed that over the last few months that my right foot is turning inwards and making walking more difficult and having an...

Hello all I have SCA6 and have noticed that over the last few months that my rig...

Hidden

•4 years ago

5 Replies

SCA3 - Oral trehalose better than IV?

Based on these results oral trehalose might be better than IV: prd-journal.com/article/S13... The trial: clinicaltrials.gov/ct2/show... Trial “extension”:...

Based on these results oral trehalose might be better than IV: prd-journal.com/a...

Hidden

•4 years ago

6 Replies

Shit

Hi I’m sorry but I’m not really happy and I am struggling with this

bevvick1964

•4 years ago

12 Replies

Gordon Holmes Syndrome (Cerebellar ataxia-hypogonadism syndrome)

Hi there, I`m new here and I really hope that I can find someone with diagnosis Gordon Holmes Syndrome (appears as Cerebellar ataxia-hypogonadism syndrome),...

Hi there, I`m new here and I really hope that I can find someone with diagnosis ...

AtaxiaCroatia

•4 years ago

8 Replies

Ataxia (SCA6) and T2 diabetes

I have just been given tablets (Metformin 2 a day) for a recent Type 2 diabetes diagnosis, I also have SCA6 Ataxia... they made me feel crap, and am sure my...

I have just been given tablets (Metformin 2 a day) for a recent Type 2 diabetes ...

Butcherpete

•4 years ago

2 Replies

Awaiting a diagnosis

Thank you for accepting my join request. I am Very sorry about the long post I was born in the early 80s and at 18months old I was diagnosed with congenital...

Thank you for accepting my join request. I am Very sorry about the long post I...

Madona_1981

•4 years ago

5 Replies

Face coverings-my experience

Dear all I thought it might be helpful to tell you about my personal experience of wearing a face covering. As you may know I have an idiopathic cerebellar...

Dear all I thought it might be helpful to tell you about my personal experience ...

HarryB

Administrator•4 years ago

18 Replies

Face coverings-Response from Sue Millman, CEO of Ataxia UK

Dear Friend Many thanks for all the comments, either left on social media or via private email to me, Shana and Harriet via HealthUnlocked expressing your...

Dear Friend Many thanks for all the comments, either left on social media or v...

HarryB

Administrator•4 years ago

Be the first to reply

Struggling with face coverings

Wearing a face mask/covering is now a requirement in the UK in most enclosed spaces. No one likes them of course. I’m really struggling with it. The reason...

Wearing a face mask/covering is now a requirement in the UK in most enclosed spa...

MaryRH

•4 years ago

7 Replies

Having a bad day

After returning back to work after being absent for over a year and a half it is taking it toll on me. I am not having a start to the day.

After returning back to work after being absent for over a year and a half it is...

KiwiBob

•4 years ago

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Interstitial Cystitis

https://www.ichelp.org/about-ic/ Many of us have bladder problems, and have difficulty pinpointing the exact cause, this link may be helpful.

https://www.ichelp.org/about-ic/ Many of us have bladder problems, and have diff...

wobblybee

•4 years ago

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Head Aches

Hu, I have a headache fir a few days now, i have spinocellerbella ataxia SCA10 Does anyone know if this is common????

Hu, I have a headache fir a few days now, i have spinocellerbella ataxia SCA10 D...

Tazmurray

•4 years ago

8 Replies

Has anyone heard of Stiff Person Syndrome?

This syndrome might be linked to Ataxia and could involve neuronal antibodies. So does anyone know anything please.

This syndrome might be linked to Ataxia and could involve neuronal antibodies. S...

penelope2

•4 years ago

4 Replies

I am back to work

After being of work for over a year and a half, I have returned to work. So far so good.

After being of work for over a year and a half, I have returned to work. So far...

KiwiBob

•4 years ago

3 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for August 2020

Any advice on Employment Law please?

NAF (National Ataxia Foundation) virtual meeting re Ataxia and DRPLA.

I have been diagnosed with Anti GAD65 Cerebellar ataxia - does anybody else have this?

Living in a maisonette/flat

Do you think Cerebellar ataxia of unknown cause is a diagnosis?

New Ataxia photo ID cards

I don't know what to do

Intermittent fasting, is it still helping?

Cerebellar Ataxia Constant falling

Neck pain

SCA Source Spotlight on Research 2020

Work & Equality

Problems with my foot.

SCA3 - Oral trehalose better than IV?

Shit

Gordon Holmes Syndrome (Cerebellar ataxia-hypogonadism syndrome)

Ataxia (SCA6) and T2 diabetes

Awaiting a diagnosis

Face coverings-my experience

Face coverings-Response from Sue Millman, CEO of Ataxia UK

Struggling with face coverings

Having a bad day

Interstitial Cystitis

Head Aches

Has anyone heard of Stiff Person Syndrome?

I am back to work

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive