Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for July 2023

Disabled

Just to say many thanks to everybody that applied back to my post disabled it was a great help. Based on all your advice I have decided NOT to buy a new pair...

Just to say many thanks to everybody that applied back to my post disabled it wa...

paul456

•1 year ago

5 Replies

Disabled

Hi all Hope you are all well. How disabled do we get with Ataxia I know it has a lot of dependencies but just wondering if Ataxia suffers need help with...

Hi all Hope you are all well. How disabled do we get with Ataxia I know it has...

paul456

•1 year ago

11 Replies

New Ataxia Support Group Blackpool

Hi all, just wanted to let you know that there is a new support group starting in Blackpool. The first meeting will take place at Tesco Extra, Clifton Retail...

Hi all, just wanted to let you know that there is a new support group starting i...

Hey64

•1 year ago

2 Replies

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Could these symptoms be CANVAS

Diagnosed with Large fibre polyneuropathy in 2021 but symptoms have progressed more towards CANVAS. Is anyone familiar with it? Stands for Cerebellar Ataxia...

Diagnosed with Large fibre polyneuropathy in 2021 but symptoms have progressed m...

rideabike

•1 year ago

33 Replies

Did you know that yesterday was International Self-Care Day? 🧘🏼‍♂️

We often get carried away fighting our daily battles and forget the importance of self-care. Self-care involves taking care of your physical, mental,...

We often get carried away fighting our daily battles and forget the importance o...

Irmmy

•1 year ago

5 Replies

neuropsychology

I have been on a waiting list and have now first appointment on Monday to be assessed and see if they can help. I’ll let you know how I get on. I had asked my...

I have been on a waiting list and have now first appointment on Monday to be ass...

Sea_

•1 year ago

8 Replies

reflux

Is reflux, possible because of Cerebellar Ataxia, helped by any antacid medicine?

Is reflux, possible because of Cerebellar Ataxia, helped by any antacid medicine...

klazien

•1 year ago

5 Replies

Neck discomfort

Hi, I have SCA1 and recently I have noticed that it is very uncomfortable to keep my head up, if I could I would rest my head on a wall, it is also very tense....

Hi, I have SCA1 and recently I have noticed that it is very uncomfortable to kee...

MBubble

•2 years ago

2 Replies

Join our Speech Therapy Session

Come and join us this Friday, the 21st of July at 11 am - 12 pm for a session of Speech Therapy combined with a holistic approach hosted by our...

Come and join us this Friday, the 21st of July at 11 am - 12 pm for a session of...

Irmmy

•2 years ago

4 Replies

physiotherapy

I got a neuro physio after 1 year waiting list. I’ve just had 4th session and she has discharged me saying my balance won’t improve. I can do the basic balance...

I got a neuro physio after 1 year waiting list. I’ve just had 4th session and sh...

Sea_

•2 years ago

20 Replies

fatigue

My fatigue is very bad . has anyone any experience of medication that helps

cyclist49

•2 years ago

9 Replies

Feeling guilty.

Hi all, basically I sometimes feel guilty because my partner works v.long hours, to make up for me having to retire 3 years ago. Also she would love to go away...

Hi all, basically I sometimes feel guilty because my partner works v.long hours,...

Tallguy101

•2 years ago

20 Replies

Handicap badge

Good morning I think lots of people know i live in France and have done for at least 40 years ..all that to say thé papier work for anything is unbelivable...

Good morning I think lots of people know i live in France and have done for at ...

7151

•2 years ago

6 Replies

A recommendation for disabled holiday accommodation in Portugal

🙂 A friend at my local support group has recently holidayed here in Portugal. She had a wonderful time, and can’t praise it highly enough. 🙂 This company...

🙂 A friend at my local support group has recently holidayed here in Portugal. ...

wobblybee

•2 years ago

4 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for July 2023

Disabled

Disabled

New Ataxia Support Group Blackpool

Could these symptoms be CANVAS

Did you know that yesterday was International Self-Care Day? 🧘🏼‍♂️

neuropsychology

reflux

Neck discomfort

Join our Speech Therapy Session

physiotherapy

fatigue

Feeling guilty.

Handicap badge

A recommendation for disabled holiday accommodation in Portugal

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive