Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for April 2020

Numbness

Hi all I hope you are all well😃 For the last week I have been experiencing a uncomfortable numbness on my left side. It's like my bum and top of my thigh has...

Hi all I hope you are all well😃 For the last week I have been experiencing a un...

Pineapple12

•4 years ago

3 Replies

Picture

How do you get a picture in your profile?

BobR47

•4 years ago

5 Replies

I'm new here

New member, just getting started.

BobR47

•4 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Neck pain

Hi, I don't know if anyone else suffers from this, but my neck contracts all the time. Every time I do anything my neck contracts. This leads to severe...

Hi, I don't know if anyone else suffers from this, but my neck contracts all the...

ww-wibblywobbly

•4 years ago

9 Replies

Sleep

Hi everyone hope you’re all getting by these unknown times. Another question for you, I don’t think this is ataxia related but any help Would be greatly...

Hi everyone hope you’re all getting by these unknown times. Another question for...

weegiz12345

•4 years ago

18 Replies

Where to buy Medicines?

Hi, going to be end my medicines. wonder if any one can help to advice the source? i need them in Pakistan but due to lock-down am unable to find anyone...

Hi, going to be end my medicines. wonder if any one can help to advice the sourc...

kuchee

•4 years ago

3 Replies

Surprising byproduct of Canola Oil

https://scasource.net/2020/04/24/byproducts-of-canola-oil-production-show-therapeutic-potential-for-mjd-and-parkinsons-disease/

https://scasource.net/2020/04/24/byproducts-of-canola-oil-production-show-therap...

wobblybee

•4 years ago

1 Reply

Stem Cells

Has anyone tried stem cell therapy? My neurologist is pro stem cells and thinks it is the way forward, but thinks it won’t be legal here for years. His exact...

Has anyone tried stem cell therapy? My neurologist is pro stem cells and thinks...

Cupcake12345

•4 years ago

9 Replies

Dog breed

I am interested in knowing if anyone has a dog that is particularly good with people who have problems walking. I have ataxia but am still able to walk with...

I am interested in knowing if anyone has a dog that is particularly good with pe...

Mollymeer

•4 years ago

12 Replies

Recommendation needed

I am from Pakistan, and am willing to be in university in london for postgraduate. I dont understand how can I apply as I am also suffering from SCA7 but I can...

I am from Pakistan, and am willing to be in university in london for postgraduat...

Ayeshaabeer20

•4 years ago

11 Replies

Coronavirus and Ataxia

Coronavirus and Ataxia, how vulnerable the person having Ataxia is to COVID19?

Harsh3645

•4 years ago

1 Reply

Sad news

I heard today some very sad news. For those of you who read the Ataxia newsletter will know of Matthew Law and his posts about life with FA. Sadly he...

I heard today some very sad news. For those of you who read the Ataxia newslett...

lorrainewalls

•4 years ago

14 Replies

2nd Ataxia UK Webinar on Covid-19

Dear all I hope you are keeping as well as is possible in these difficult times. After the success of the last Q&A webinar, Ataxia UK have decided to host...

Dear all I hope you are keeping as well as is possible in these difficult times....

HarryB

Administrator•4 years ago

6 Replies

chair exercises

Today for the first time I did the armchair yoga exercises that are on U-tube and only managed to do half because it was very tiring for me. But they are...

Today for the first time I did the armchair yoga exercises that are on U-tube a...

klazien

•4 years ago

1 Reply

Tonight's Countryfile.

I've just watched tonight's episode and, as always it was excellent. Of particular interest was a visit to a practice surfing venue in Snowdonia where a young...

I've just watched tonight's episode and, as always it was excellent. Of particul...

woody1404

•4 years ago

1 Reply

HAPPY EASTER XXX

XXX

Litty

•4 years ago

9 Replies

Well, that was short-lived.

I do so hope that others trying to shop online at Sainsburys have not had to same experience. Last week I was a happy bunny. I had been notified that I was...

I do so hope that others trying to shop online at Sainsburys have not had to sam...

lorrainewalls

•4 years ago

14 Replies

SKILLS X

Ok we are all at different stages and my co-ordination is not good. I TRY to write in capitals and colour with triangular crayons. I used to do a lot of big...

Ok we are all at different stages and my co-ordination is not good. I TRY to wri...

Litty

•4 years ago

11 Replies

Walkers

Hi another question, I’ve been using a walking stick for 18 months when walking alone. When I have my partners arm I can walk ok. Recently I’ve found walking...

Hi another question, I’ve been using a walking stick for 18 months when walking ...

weegiz12345

•4 years ago

35 Replies

Hi. My daughter is 33 months old.She has mutation in gene CACNA1A. She is ataxic&cannot walk independently.Anyone here in similar situation?

Mother to a child diagnosed with a genetic mutation causing Episodic Ataxia, seeking information!

Mother to a child diagnosed with a genetic mutation causing Episodic Ataxia, see...

Scotslady30

•4 years ago

2 Replies

Chairarobics

The dial group that i volunteered for do a excrrcise programmr callrd chairarobics www.1voice.org.uk

The dial group that i volunteered for do a excrrcise programmr callrd chairarobi...

Jayjay1970

•4 years ago

Be the first to reply

Exercise in your chair!

A fantastic YTube video to exercise at home sitting in a chair! You can sing along to it too. It’s nearly an hour long but I’m sure you will love it. Live!...

A fantastic YTube video to exercise at home sitting in a chair! You can sing al...

Libra7

•4 years ago

Be the first to reply

Humour with message

So true

simon111

•4 years ago

2 Replies

More tips on ‘stretching’ food

https://www.which.co.uk/news/2020/03/10-ways-which-customers-are-making-their-food-go-further/

https://www.which.co.uk/news/2020/03/10-ways-which-customers-are-making-their-fo...

wobblybee

•4 years ago

Be the first to reply

Helpful advice about freezing food

https://www.which.co.uk/news/2020/03/surprising-foods-you-cant-freeze-and-a-reminder-of-what-you-can/ Please click on the link, and click on the redirect

https://www.which.co.uk/news/2020/03/surprising-foods-you-cant-freeze-and-a-remi...

wobblybee

•4 years ago

5 Replies

Dr perlman at UCLA

Did anyone listen to dr. Perlman on april 1st. It was a webinar that i slept thru. About drug development. Do u know how i can listen to it

Did anyone listen to dr. Perlman on april 1st. It was a webinar that i slept thr...

Carolss

•4 years ago

Be the first to reply

Using wheelchairs and assistive devices during Covid-19

Hi everyone, I was sent this info and thought it would be helpful advice at this crazy time. I know the weekend is promising warm weather again and my fears...

Hi everyone, I was sent this info and thought it would be helpful advice at this...

Cuds

•4 years ago

Be the first to reply

Success

This morning I was checking my "trolley" and made a few alterations, went to checkout and imagine my surprise when slots (even for this week) became available....

This morning I was checking my "trolley" and made a few alterations, went to che...

lorrainewalls

•4 years ago

3 Replies

Search posts

Latest poll

See all polls

How long have you or your relative/friend been diagnosed with ataxia?

Vote

Topics

All posts(503)

All things Ataxia UK(464)

Research projects(38)

Our publications(1)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for April 2020

Numbness

Picture

I'm new here

Neck pain

Sleep

Where to buy Medicines?

Surprising byproduct of Canola Oil

Stem Cells

Dog breed

Recommendation needed

Coronavirus and Ataxia

Sad news

2nd Ataxia UK Webinar on Covid-19

chair exercises

Tonight's Countryfile.

HAPPY EASTER XXX

Well, that was short-lived.

SKILLS X

Walkers

Hi. My daughter is 33 months old.She has mutation in gene CACNA1A. She is ataxic&cannot walk independently.Anyone here in similar situation?

Chairarobics

Exercise in your chair!

Humour with message

More tips on ‘stretching’ food

Helpful advice about freezing food

Dr perlman at UCLA

Using wheelchairs and assistive devices during Covid-19

Success

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive