Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,570 posts

All posts for May 2020

Episodic Ataxia suspected

I’m suspected to have Episodic Ataxia never had tests to prove this but I sometimes look like I don’t have Ataxia and I don’t have cerebellar atrophy but other...

I’m suspected to have Episodic Ataxia never had tests to prove this but I someti...

Episodic_Ataxia

•4 years ago

Motomed viva2 leg trainer for sale SOLD

For sale is the Motomed viva2 leg trainer by Rech. It is used and good working order Collection only Retails at 3500 USD, but must go for £750 See website for...

For sale is the Motomed viva2 leg trainer by Rech. It is used and good working o...

•4 years ago

Episodic Ataxia & Without a Wide Gait

I’m diagnosed with Episodic Ataxia type2, My Ataxia doesn’t seem to be as obvious as most Ataxias and in between having severe debilitating symptoms of where...

I’m diagnosed with Episodic Ataxia type2, My Ataxia doesn’t seem to be as obviou...

Episodic_Ataxia

•4 years ago

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The Neurological effect of COVID-19

Since WHO declared COVID-19 as a “Public Health Emergency of International Concern” on January 30, 2020, neurologists' lives have changed in many ways....

Since WHO declared COVID-19 as a “Public Health Emergency of International Conce...

•4 years ago

Myself And My Child Have C/A

Hello Everyone I hope you are all keeping well , has anyone else got c/a and currently looking after a child with c/a full time because of current...

Hello Everyone I hope you are all keeping well , has anyone else got c/a and cur...

•4 years ago

About tandem Ataxia and vertigo

What does tandem Ataxia mean exactly? Also, does anyone else have vertigo attacks that last 2-4 hours when you can't move because of the spinning sensation,...

What does tandem Ataxia mean exactly? Also, does anyone else have vertigo attack...

•4 years ago

Types of Neuropathy

https://www.healthdirect.gov.au/neuropathy Please click on the link, and the redirect

https://www.healthdirect.gov.au/neuropathy Please click on the link, and the red...

•4 years ago

Stiff knees

Stiff knees and lack of flexibility...... My knees have stiffened up greatly this past month. I ride a stationary bike (walk with a cane) for exercise....

Stiff knees and lack of flexibility...... My knees have stiffened up greatly t...

•4 years ago

Support for my lovely Mum

Hi, My 63 year old Mum had a stroke last year caused by a venous anomaly in her brain (very rare!). Is has caused atrophy in her cerebellum and she has been...

Hi, My 63 year old Mum had a stroke last year caused by a venous anomaly in her...

•4 years ago

My Episodic Ataxia

Hey my name is Darcy & was diagnosed with Episodic Ataxia type2 based only on symptoms & having a family history of Episodic Ataxia as well as how long my...

Hey my name is Darcy & was diagnosed with Episodic Ataxia type2 based only on sy...

Episodic_Ataxia

•4 years ago

Muscle locks & muscle spasms

Hello, I’m just wondering if anyone has been given Carbamazepine to help with muscle cramps/locks & spasms? I was taking baclofen, I’ve also tried tonic water...

Hello, I’m just wondering if anyone has been given Carbamazepine to help with mu...

•4 years ago

Word finding difficulties

Morning all, I’m finding it difficult sometimes to retrieve words I want to use. Is this another symptom of my Friedreich’s progressing or a just a sign of...

Morning all, I’m finding it difficult sometimes to retrieve words I want to use....

•4 years ago

Help with peace of mind from technology

FALL DETECTORS We know that medical alert systems aren’t new to the scene, but the technology surrounding them is constantly improving. The problem with the...

FALL DETECTORS We know that medical alert systems aren’t new to the scene, but t...

•4 years ago

Inflammation

I have CA - cause unknown. My CRP blood level has always been around 7-8, should be >1. My GP is looking for the cause of the inflammation. My question is -...

I have CA - cause unknown. My CRP blood level has always been around 7-8, should...

•4 years ago

Sudden Muscle Weakness and falling.

Sudden muscle weakness. I have had a diagnosis of SCA 1 for approx 8 years and initially managed, even working (I'm a nurse). Had lots of support but now...

Sudden muscle weakness. I have had a diagnosis of SCA 1 for approx 8 years and...

•4 years ago

Balance socks

Hi to all, Have you heard of balance socks - voxxlife - are doing one and they swear it will help. They cost around £40 for a pair of socks. I am wondering if...

Hi to all, Have you heard of balance socks - voxxlife - are doing one and they ...

•4 years ago

Mild cerebellar atrophy

Hi My husband had a scan for suspected tia/strike after temporary loss of vision back in November 2019. The results of the MRI came back with mild cerebellar...

Hi My husband had a scan for suspected tia/strike after temporary loss of vision...

•4 years ago

Wearing a facemask for Covid-19

https://www.which.co.uk/reviews/face-mask/article/face-masks-where-to-buy-them-and-how-to-make-your-own

https://www.which.co.uk/reviews/face-mask/article/face-masks-where-to-buy-them-a...

•4 years ago

Doctors and others tell me that I need to drink alot of water but when I do I pee the bed? What do I do?

I hate having to pee myself every night so I just started to drink less water. I feel like a little kid wetting the bed. Is there any suggestions of how I can...

I hate having to pee myself every night so I just started to drink less water. I...

•4 years ago

Another Question.

Also, what is the Follow used for?

Also, what is the Follow used for?

•4 years ago

Profiles?

Why can I view more info about some members here than others? Do we both have to be in the same hub or community to see a full profile?

Why can I view more info about some members here than others? Do we both have to...

•4 years ago

I want to thank Ataxia UK for allowing me to make such a wonderful friend ' Ayeshaabeer20'.

Thanks to everyone who was included in making this page. Ataxia UK is a great way to connect to different people. I have met someone who relates to me: she is...

Thanks to everyone who was included in making this page. Ataxia UK is a great wa...

•4 years ago

Ataxia and slurred speech

I have cerebellar Ataxia, and on bad days it's very hard to speak clearly, and my speech is very slurred. People I speak to, are saying 'What?' all the time,...

I have cerebellar Ataxia, and on bad days it's very hard to speak clearly, and m...

•4 years ago

Best way to fall?

Is there a good way to fall? My PT guy says to protect you head but that was about it. I saw a guy on YouTube with ataxia ( a Brit) who said he had learned a...

Is there a good way to fall? My PT guy says to protect you head but that was abo...

•4 years ago

Walking?

I am still walking. Does ataxia progress to where that might not be possible? I have not fallen but feel on the verge constantly. Stairs are scary.

I am still walking. Does ataxia progress to where that might not be possible? I ...

•4 years ago

Watch out, Fraud is about!

I am writing this as a slightly tired and stupid person as it seems now for the third time, I have become the victim of fraud again. I used to think that I...

I am writing this as a slightly tired and stupid person as it seems now for the ...

•4 years ago

What does ‘dominant’ ataxia mean

https://scasource.net/2020/05/01/snapshot-what-does-dominant-ataxia-mean/

https://scasource.net/2020/05/01/snapshot-what-does-dominant-ataxia-mean/

•4 years ago

Genetic approach to treat many SpinoCerebellar Ataxias

https://www.ataxia.org.uk/blog/genetic-approach-to-treat-many-spinocerebellar-ataxias

https://www.ataxia.org.uk/blog/genetic-approach-to-treat-many-spinocerebellar-at...

•4 years ago

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