Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for April 2016

MSA and earlier lifestyle

Could there possibly be a link between MSA and one's earlier competitive athletic lifestyle. I ran marathons as did a Canadian sufferer and another local...

Could there possibly be a link between MSA and one's earlier competitive athleti...

•9 years ago

Holly

Being living on my own, my wife hospitalized and desperate for company i am in early stages of owning a Labrador puppy. I have Spinal Cerebellar Ataxia. It...

Being living on my own, my wife hospitalized and desperate for company i am in ...

•9 years ago

Rollator question

I am getting less steady on my feet and thinking about moving on from using a stick to help with my walking and have a question for anyone who currently uses a...

I am getting less steady on my feet and thinking about moving on from using a st...

•9 years ago

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Cruises for a wheelchair dependent.

Does anyone have experience of cruise holiday companies for a wheelchair dependent passenger who needs an adapted bathroom/wetroom please? Any advice......

Does anyone have experience of cruise holiday companies for a wheelchair depende...

•9 years ago

Idiopathic SCA, hubby has Gluten Ataxia

Hi there everyone, i do love the fact that I am not the only one who has this, but dispair at just how many of us there are. I felt isolated, but now having...

Hi there everyone, i do love the fact that I am not the only one who has this, b...

•9 years ago

mobility scooter insurance

Just a bit of [hopefully] helpful info. Some people buy expensive dedicated scooter insurance this is not always needed the liability part is usually covered...

Just a bit of [hopefully] helpful info. Some people buy expensive dedicated scoo...

•9 years ago

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National Ataxia Federation (USA)

Hi everyone, my wife, my 28 year old son who has AOA2 and myself have just returned from the NAF annual conference, this year in Orlando, Florida. It is our...

Hi everyone, my wife, my 28 year old son who has AOA2 and myself have just retur...

•9 years ago

When is the right time to give up work?

I was diagnosed with ataxia a couple of years ago. I have lived in hope since then that I would show some sign of recovery as the cause was thought to be...

I was diagnosed with ataxia a couple of years ago. I have lived in hope since t...

•9 years ago

New and Very uncertain

Hi Everyone, I have just been told that I have Cerebellar atrophy I am 48 . I went to see Dr Giunti for the first time yesterday and blood was taken to try and...

Hi Everyone, I have just been told that I have Cerebellar atrophy I am 48 . I we...

•9 years ago

FIXSCA6

I have been reading these posts for years and found them very informative but this is the first time I have written. I have SCA6, inherited from my father,...

I have been reading these posts for years and found them very informative but th...

•9 years ago

What will happen next as in the steps to take after diagnosis?

Dears, I am still waiting for feedback regarding the last MRI I had over a fortnight ago and have an appointment to see a doctor next week. I want to know...

Dears, I am still waiting for feedback regarding the last MRI I had over a fort...

•9 years ago

Feeling very tired and disorientated

Hi, was diagnosed with idiopathic late onset cerebellar ataxia back in mid December, but when I saw neurologist in March he said it was mild. He tested for...

Hi, was diagnosed with idiopathic late onset cerebellar ataxia back in mid Decem...

•9 years ago

Ataxia with a baby

I have spinocerebellar ataxia type 2 (sca2) and I'm doing IVF with PGD testing to have a baby without the condition. Is there anyone here that has a baby but...

I have spinocerebellar ataxia type 2 (sca2) and I'm doing IVF with PGD testing t...

•9 years ago

SCA then MSA

I was diagnosed with SCA a year ago and at recent assessment now progressed to MSA. Phoebe13 can you tell me if you have wastage and weakening of you thigh...

I was diagnosed with SCA a year ago and at recent assessment now progressed to M...

•9 years ago

cerebellar atrophy

i have a rare condition called cerebellar atrophy basically its a condition that affects your balance coordination and speech it runs in my family on my...

i have a rare condition called cerebellar atrophy basically its a condition tha...

•9 years ago

Newly diagnosed

Seems different for everyone...but similar!! Not sure if I'm posting this in the right place but nevermind. Saw neurologist originally in December 2015 as...

Seems different for everyone...but similar!! Not sure if I'm posting this in th...

•9 years ago

No Ataxia communities

I have asked social service radio and no joy

I have asked social service radio and no joy

•9 years ago

Newly nearly diagnosed waiting for further confirmation - question re medication please.

I have read the Ataxia site that says there is no cure, but there are tablets that can help various aspects of one's symptoms. My question is that at the...

I have read the Ataxia site that says there is no cure, but there are tablets th...

•9 years ago

Big Hi

Following a very frustrating two years I finally was given a diagnosis last week, I thought I was becoming a hypochondriac or just lazy. I could not work out...

Following a very frustrating two years I finally was given a diagnosis last week...

•9 years ago

Dudley & Wolverhampton Ataxia Support Group

Caling anyone in Dudley or the surrounding area who has, or is affected by ataxia in any way or who are interested in supporting Ataxia UK. Through Ataxia UK,...

Caling anyone in Dudley or the surrounding area who has, or is affected by ataxi...

•9 years ago

Steve

hello.i think I have ataxia as members of my family have it.is it classed as a disability?

hello.i think I have ataxia as members of my family have it.is it classed as a d...

•9 years ago

Hello folks

I am new to this site. I am a 35 year old man. I was diagnosed with sensory ataxia back in 2004. I am interested in meeting new people just to share in their...

I am new to this site. I am a 35 year old man. I was diagnosed with sensory atax...

•9 years ago

Support groups

Is there any support groups in suffolk at all ??

Is there any support groups in suffolk at all ??

•9 years ago

Ataxia Support

Hi Derek here and I have Cerrabellar Ataxia and HSP (Heriditary Spastic Paraplegia) I'm a member of the Ataxia UK West of Scotland Branch and we have regular...

Hi Derek here and I have Cerrabellar Ataxia and HSP (Heriditary Spastic Parapleg...

•9 years ago

Eye test &. Eye sight

Hi everyone I need some advise ! I have just been back to the optician for the second time after one main test and then a second check two weeks later but...

Hi everyone I need some advise ! I have just been back to the optician for the...

•9 years ago

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