Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,570 posts

All posts for May 2019

walking and balance

Hi all Ataxia's, greetings from Scotland ,Hope you are all having a good day !!! I just would like some feedback about my Balance and walking, I have had...

Hi all Ataxia's, greetings from Scotland ,Hope you are all having a good day !!!...

lottiejemma

•5 years ago

17 Replies

Assessment concerns

Hi all. I recently wrote to my MP asking him to raise awareness of ataxia among the medical assessors with the DWP. A number of people among this community and...

Hi all. I recently wrote to my MP asking him to raise awareness of ataxia among ...

Capricorn9157

•5 years ago

12 Replies

Lower Back Pain

I am having hard lower back pain and while walking or bending it causes pressure at lumber which resulting unbalancing to body and happening much harder for me...

I am having hard lower back pain and while walking or bending it causes pressure...

kuchee

•5 years ago

3 Replies

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Sca Type 6 pains

Woke up today with such a deep pain in my thigh I can’t move it without being in pain... the pains u get from sca type 6 to start are these the kinds of pains...

Woke up today with such a deep pain in my thigh I can’t move it without being in...

Magicalwomanz

•5 years ago

1 Reply

Old items on my ipad

Can someone please tell me how I can clear all my old items on Healthunlocked some of which go back several years Please make the instructions simple as I am a...

Can someone please tell me how I can clear all my old items on Healthunlocked so...

tedjohnson

•5 years ago

1 Reply

Lead Legs

Hi All, My legs feel like lead today, very heavy and aching at the thighs even when sat. I have felt the progress of this decease the last couple of days. I...

Hi All, My legs feel like lead today, very heavy and aching at the thighs even...

Jacqui-A

•5 years ago

6 Replies

Finally

I’ve been waiting forever for an appointment to the Ataxia clinic since September It came today for August!!!! 11 months really???

I’ve been waiting forever for an appointment to the Ataxia clinic since Septembe...

bevvick1964

•5 years ago

7 Replies

How did I miss this?? A real CURE for some genetic SCAs may be close!!!

By close I mean within a decade. Especially if you have SCA3 which is already in the pipeline for treatment. First the cliff notes version: A company in the...

By close I mean within a decade. Especially if you have SCA3 which is already i...

sunvox

•5 years ago

8 Replies

my feet

I have SCA 2 Ataxia, my feet are always troublesome, swollen left foot, can not wiggle my toes,--- unless they are covered, no matter the weather, they feel...

I have SCA 2 Ataxia, my feet are always troublesome, swollen left foot, can not...

lottiejemma

•5 years ago

2 Replies

Finally crying "Uncle" and trying CoQ10. Who is taking Ubiquinol?

So for years I have resisted taking Ubiquinol because I believed it was similar in how it theoretically worked to Niagen, and I am already taking a sizable...

So for years I have resisted taking Ubiquinol because I believed it was similar ...

sunvox

•5 years ago

20 Replies

Need some advice please.....

I am not under a consultant as they don't want to see me unless my genome results show something (not back yet) as nothing they can do! I have cerebral palsy...

I am not under a consultant as they don't want to see me unless my genome result...

Grapes12

•5 years ago

11 Replies

Steep hills

Can anybody give any tips on how to walk down steep hills without feeling like you are continually falling forward.

Can anybody give any tips on how to walk down steep hills without feeling like y...

piglet3

•5 years ago

7 Replies

Driving

How do you feel driving? I been told by a neurologist that I can drive and go back to work, I tried driving but I’m worried about how I drive, never used to...

How do you feel driving? I been told by a neurologist that I can drive and go b...

GlutenLadYorkshire

•5 years ago

17 Replies

My Grief

I recently had one of my posts taken down that I think caused more confusion than it was actually worth so I thought I would share some information with you...

I recently had one of my posts taken down that I think caused more confusion tha...

DeniseLB

•5 years ago

42 Replies

Professor Hadjivassiliou

Well tomorrow is going to be make or break, I’m off to Sheffield to see Professor Hadjivassiliou to hopefully come to some answers, I am coeliac but last year...

Well tomorrow is going to be make or break, I’m off to Sheffield to see Professo...

GlutenLadYorkshire

•5 years ago

10 Replies

New on here

I was asked do you take CBD OIL. Answered no. I don't know enough about it. Can you give me the pros & cons I have CA SPG7

I was asked do you take CBD OIL. Answered no. I don't know enough about it. Can ...

jtwood

•5 years ago

3 Replies

Camping

Hi, as many of you know I recently did a camping holiday in Italy. I was extremely anxious beforehand, which my last post was about. Anyway the camping...

Hi, as many of you know I recently did a camping holiday in Italy. I was extrem...

ww-wibblywobbly

•5 years ago

6 Replies

National Ataxia Foundation Webinar on Diet

I watched this webinar and thought it was well worth sharing. Not too unlike what I am doing in my own routine. I think the most interesting comment begins...

I watched this webinar and thought it was well worth sharing. Not too unlike wh...

sunvox

•5 years ago

1 Reply

NEWBIE

Hi my name is Sharon and I am 67 years old and having had various tests but no one was able to give me a proper diagnosis I eventually learnt that I have...

Hi my name is Sharon and I am 67 years old and having had various tests but no ...

sefsha

•5 years ago

8 Replies

Newly diagnosed

Hello, I have been recently diagnosed with SCA2 and I just wondering if anyone has some tips to share for thouse off us just starting out with the diagnosis?...

Hello, I have been recently diagnosed with SCA2 and I just wondering if anyone ...

Hidden

•5 years ago

8 Replies

Exercises

I have recently found an item on the internet called 'get fit while you sit'. It's very simple and as many of us are wheel chair users these exercises are...

I have recently found an item on the internet called 'get fit while you sit'. ...

tedjohnson

•5 years ago

4 Replies

Diet change

Hi all hope you are well. I wanted to share some positive action. My niece who is a naturopath did a plan for me to help with my Ataxia. She changed my diet...

Hi all hope you are well. I wanted to share some positive action. My niece who ...

Voice1

•5 years ago

8 Replies

Ataxia in the Family

They now think my dad my of had Ataxia. He has passed away so can’t be tested. His Brother my uncle (76 years old) is Waiting to be tested for Ataxia and he...

They now think my dad my of had Ataxia. He has passed away so can’t be tested. H...

KiwiBob

•5 years ago

3 Replies

Dental work

I was just diagnosed with mild ataxia after falling., facial cuts. I'm into 3 months past & much better. I have to get teeth extracted, should I expect any...

I was just diagnosed with mild ataxia after falling., facial cuts. I'm into 3 mo...

blue253

•5 years ago

7 Replies

JUNE FUNRUN

DOTS01 has organised a fun run in Birmingham area, June 2nd. Lets all send her 'Good Luck' and best wishes. GO GIRL...show them a clean set of wheels ;)

DOTS01 has organised a fun run in Birmingham area, June 2nd. Lets all send her '...

Capricorn9157

•5 years ago

5 Replies

Wheelchair or not, that is the question.

There has recently been a thread on the use of wheelchairs. I have deleted the thread, not because there were not some good points raised but because some of...

There has recently been a thread on the use of wheelchairs. I have deleted the ...

HarryB

Administrator•5 years ago

24 Replies

Encourage and support!

My friends, if I may address you as such...... we are not in this community to argue or insult each other, we are here to encourage and support each other on...

My friends, if I may address you as such...... we are not in this community to a...

Veteran250

•5 years ago

30 Replies

DVLA

Do I need to advise DVLA of condition of cerebellar syndrome

cyclist49

•5 years ago

10 Replies

Thinking to try balance wear

Hey all..I would like to know about balance wear vest from America. Is anyone using balance wear vest and what are its effects..?

Hey all..I would like to know about balance wear vest from America. Is anyone us...

AzizIndia

•5 years ago

8 Replies

Power add on's to manual wheelchairs.

Has anyone got a Benoit LightDrive Power Pack added to their wheelchair? I have got a Ti Lite chair and am looking for a power pack or similar to turn it into...

Has anyone got a Benoit LightDrive Power Pack added to their wheelchair? I have ...

Grapes12

•5 years ago

2 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for May 2019

walking and balance

Assessment concerns

Lower Back Pain

Sca Type 6 pains

Old items on my ipad

Lead Legs

Finally

How did I miss this?? A real CURE for some genetic SCAs may be close!!!

my feet

Finally crying "Uncle" and trying CoQ10. Who is taking Ubiquinol?

Need some advice please.....

Steep hills

Driving

My Grief

Professor Hadjivassiliou

New on here

Camping

National Ataxia Foundation Webinar on Diet

NEWBIE

Newly diagnosed

Exercises

Diet change

Ataxia in the Family

Dental work

JUNE FUNRUN

Wheelchair or not, that is the question.

Encourage and support!

DVLA

Thinking to try balance wear

Power add on's to manual wheelchairs.

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive