Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,080 members • 4,648 posts

All posts for June 2024

my Ataxia

Hello my friends, if I may address you as such…….I was diagnosed with Ataxia by my Neurologist in Febuary this year, although I’ve had the symptoms for as long...

Hello my friends, if I may address you as such…….I was diagnosed with Ataxia by ...

Veteran250

•3 months ago

9 Replies

TG6 and gluten ataxia

I was diagnosed with Idiopathic Cerebellar Ataxia in 2018 and had all the usual tests which proved negative . My neurologist in Aberdeen recently managed to...

I was diagnosed with Idiopathic Cerebellar Ataxia in 2018 and had all the usual ...

cyclist49

•3 months ago

3 Replies

Looking for a job

I am only 51 and have been diagnosed with OPCA (results on blood tests pending). Can you advise me on what jobs to apply for? Need a work from home job,...

I am only 51 and have been diagnosed with OPCA (results on blood tests pending)....

BoneyEm1972

•3 months ago

3 Replies

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Idiopathic ataxia or unknown cause.

Hi all. I urge anyone who has not yet been diagnosed with a particular type of ataxia , so idiopathic of unknown cause, which means they do not know what is...

Hi all. I urge anyone who has not yet been diagnosed with a particular type of a...

penelope2

•3 months ago

21 Replies

Grain free

Hi all. Is there anyone with gluten ataxia that has gone a step further and is grain free too now? If so how do you feel and are your symptoms improving? This...

Hi all. Is there anyone with gluten ataxia that has gone a step further and is g...

penelope2

•3 months ago

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Information

Hi all. I have had some bad attacks over the last several months when I’m in a crowded place and it’s noisy, so much so that I’ve had to leave the building. I...

Hi all. I have had some bad attacks over the last several months when I’m in a ...

paul456

•4 months ago

5 Replies

Hospital appointment

I first saw the professor at Sheffield when I was first diagnosed in 2021 then the following two years I saw his assistants but this year I haven't been sent a...

I first saw the professor at Sheffield when I was first diagnosed in 2021 then t...

Elizabethtracy

•4 months ago

9 Replies

Improving diagnosis, and management of Gluten Ataxia.

🙂People in the UK Improving diagnosis and management of Gluten ataxia Ataxia UK, Coeliac UK, and the Sheffield Hospitals Charity have awarded funding to...

🙂People in the UK Improving diagnosis and management of Gluten ataxia Ata...

wobblybee

•4 months ago

14 Replies

shooting pains and burning sensations in hands and feet

Over the last few months I’ve started getting shooting/sharp pin prick like pains in my toes, fingers and eyes plus burning sessions in my thumbs. Only happen...

Over the last few months I’ve started getting shooting/sharp pin prick like pain...

Millwallben

•4 months ago

14 Replies

Leg Stiffness

Any suggestions to relax leg stiffness? It’s bad enough having leg weakness and hideous balance issues, but having legs like 2 concrete posts makes things so...

Any suggestions to relax leg stiffness? It’s bad enough having leg weakness and ...

Ostap

•4 months ago

14 Replies

Stansted airport

I have booked special assistance from and to stansted airport on return flights to bologna on the 23rd and 30th Jun. I can walk a little if someone accompanies...

I have booked special assistance from and to stansted airport on return flights ...

ParmaIT

•4 months ago

3 Replies

weight loss

Is there anyone who experiences great weight loss after switching to external nutrition via PEG? My brother who has had SCA1 ataxia since 2010, lost 10 kg (44...

Is there anyone who experiences great weight loss after switching to external nu...

michelagvolpe

•4 months ago

3 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for June 2024

my Ataxia

TG6 and gluten ataxia

Looking for a job

Idiopathic ataxia or unknown cause.

Grain free

Information

Hospital appointment

Improving diagnosis, and management of Gluten Ataxia.

shooting pains and burning sensations in hands and feet

Leg Stiffness

Stansted airport

weight loss

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive