Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for May 2013

emergency alarms

I will have to replace my indistructable [now it will break] doro bar type phone does anyone know of a motion sensing app for a smartphone or have a doro...

I will have to replace my indistructable [now it will break] doro bar type phone...

Hidden

•12 years ago

1 Reply

Has anybody been diagnosed with Dyschronometria

I was involved in discussion on another ataxia site about 'time passing quickly and not being aware of it, and memory, concentration, the worry of dementia'....

I was involved in discussion on another ataxia site about 'time passing quickly...

wobblybee

•12 years ago

3 Replies

wilderness

i was diagnosed in 2005 with laco but on reading the symptoms of spinocerabella i have a lot of them,i have been lost in the nhs system for 3yrs now,i know i...

i was diagnosed in 2005 with laco but on reading the symptoms of spinocerabella ...

modern1

•12 years ago

7 Replies

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Travelling

I have FA which was diagnosed 14 years ago and have used a wheelchair for 10 years. Has anyone else done any travelling? At the moment I have travelled...

I have FA which was diagnosed 14 years ago and have used a wheelchair for 10 yea...

annasgonesailing

•12 years ago

5 Replies

What can my 'ataxian' friend do about her choking problem

My 'Ataxian' friend has recently experienced very frightening choking to the point that she thought she was dying Her doctor was little or no help. I...

My 'Ataxian' friend has recently experienced very frightening choking to the poi...

tedjohnson

•12 years ago

6 Replies

my new shoes ( the test )

Hi all, Well I've just returned from Benidorm ( old town ), were I gave my new crocs a good work-out and apart from getting a couple of blisters, that I...

Hi all, Well I've just returned from Benidorm ( old town ), were I gave my ...

twinkle2508

•12 years ago

7 Replies

laundry tip

I have found it verry helpfull to use "sock haangers and coat hangers" for hanging items on the washing line [just hook them on ] this allows you to "pre...

I have found it verry helpfull to use "sock haangers and coat hangers" for hangi...

Hidden

•12 years ago

2 Replies

please excuse my ignorance if the answer to this is obvious. My son has Cerebella Ataxia, is this classed as a Neuro muscular condition.

the reason for asking is that i have received mixed information in the past, he has ne input from the neuro muscular team at his hospital only a neurologist,...

the reason for asking is that i have received mixed information in the past, he ...

lindadoc

•12 years ago

4 Replies

Car

Hello everyone This is by way of a moan, sorry. I am wheelchair bound and as such I have a wheelchair adapted vehicle. Well I am trying to get it insured...

Hello everyone This is by way of a moan, sorry. I am wheelchair bound and ...

Fifa

Volunteer•12 years ago

3 Replies

THANK YOU ALL!!!!

3 weeks ago I really felt that there wasn't a point to living. Luckily my pooch jumped on my knee and licked me to death, my 16 yr old daughter went through a...

3 weeks ago I really felt that there wasn't a point to living. Luckily my pooch...

Zhez

•12 years ago

24 Replies

Waiting Diagnosis

I've had the 'shakes' since a head injury nearly 40 years ago. Over the years I've had several 'episodes' where I walked into walls, fell up and down steps...

I've had the 'shakes' since a head injury nearly 40 years ago. Over the years I...

Zhez

•12 years ago

5 Replies

what does everyone do day to day? do u work? study? family? etc. is there anything you'd like to do but think you cant?

nikkistowe

Volunteer•12 years ago

44 Replies

Problems of Communication

My wife is an ataxia sufferer - difficult to know when it began but at least ten years ago. She was finally diagnosed (in France where we live) in 2007/8 -...

My wife is an ataxia sufferer - difficult to know when it began but at least ten...

210coetfemme

•12 years ago

17 Replies

a new me :-), thanks to my shoes

hi all, As like most of us with ataxia, i'm always on the look-out for comfortable shoes, shoes that aren't " frumpy " and boring ( black/brown )...

hi all, As like most of us with ataxia, i'm always on the look-out for c...

twinkle2508

•12 years ago

7 Replies

Spasms

is it possible to weaken one group of muscles so that weak/lazy or even with no brain signal (how do you tell, by the way) can grow stronger. If this is...

is it possible to weaken one group of muscles so that weak/lazy or even with no ...

scruffycat

•12 years ago

10 Replies

ATOS

Just received a questionnaire today from ATOS (relating to Incapacity Benefit) and really don`t understand it. Can I contact Citizens Advice and ask for a home...

Just received a questionnaire today from ATOS (relating to Incapacity Benefit) a...

Hidden

•12 years ago

10 Replies

On an American forum I read about a ‘Distal Urethral Polypropylene Sling’ for female urinary incontinence.

Is it available in the UK and has anyone on this forum had it ? This seems to me better than a catheter or botox but I never heard about it till reading this...

Is it available in the UK and has anyone on this forum had it ? This seems to me...

klazien

•12 years ago

7 Replies

what is a good excise for mild atexia

allenallen

•12 years ago

2 Replies

Inner body 'rattling'?

Does anyone else with ataxia suffer from 'rattling' inside their brain and body when going into/out of sleep? It feels like Im being shaken every time I close...

Does anyone else with ataxia suffer from 'rattling' inside their brain and body ...

pennypoop

•12 years ago

5 Replies

Is there anyone living in the North Devon/West Somerset area who has Ataxia? My GP has no other patients with it.

Tiggywinkles

•12 years ago

15 Replies

Help with appeal for being turned down for Disability Living Allowance and Disability Parking Permit

I have been turned down for both the DLA and my Council's Disability Parking Permit. I intend to appeal against both decisions. Are there any key words or...

I have been turned down for both the DLA and my Council's Disability Parking Pe...

Wobblymum

•12 years ago

12 Replies

In aid of Ataxia

I am unsure as to where this should go , so I am doing this Blog .Steve Bonham has released a CD called Steady to help raise awareness of Ataxia This CD is a...

I am unsure as to where this should go , so I am doing this Blog .Steve Bonham h...

Razzy

•12 years ago

3 Replies

Buses

have any wheelchair bound ataxians travelled independently on any bus? Due to a broken hand, my wife was unable to drive. With an extra pusher, we decided to...

have any wheelchair bound ataxians travelled independently on any bus? Due to ...

scruffycat

•12 years ago

15 Replies

Why am I a part of the Ataxia UK community?

Unlike many of you here I am not a sufferer of any Ataxia, nor am I a family member or close friend of a sufferer. Perhaps it's wrong for me to be a part of...

Unlike many of you here I am not a sufferer of any Ataxia, nor am I a family mem...

Elle_Mae

•12 years ago

31 Replies

Maybe this is relevant to you....Neta (read to the end)

BGU researchers have discovered how prolonged exposure to stress can increase the risk of autoimmune diseases BEER-SHEVA, Israel, May 1, 2013 – Ben-Gurion...

BGU researchers have discovered how prolonged exposure to stress can increase th...

neta

•12 years ago

23 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for May 2013

emergency alarms

Has anybody been diagnosed with Dyschronometria

wilderness

Travelling

What can my 'ataxian' friend do about her choking problem

my new shoes ( the test )

laundry tip

please excuse my ignorance if the answer to this is obvious. My son has Cerebella Ataxia, is this classed as a Neuro muscular condition.

Car

THANK YOU ALL!!!!

Waiting Diagnosis

what does everyone do day to day? do u work? study? family? etc. is there anything you'd like to do but think you cant?

Problems of Communication

a new me :-), thanks to my shoes

Spasms

ATOS

On an American forum I read about a ‘Distal Urethral Polypropylene Sling’ for female urinary incontinence.

what is a good excise for mild atexia

Inner body 'rattling'?

Is there anyone living in the North Devon/West Somerset area who has Ataxia? My GP has no other patients with it.

Help with appeal for being turned down for Disability Living Allowance and Disability Parking Permit

In aid of Ataxia

Buses

Why am I a part of the Ataxia UK community?

Maybe this is relevant to you....Neta (read to the end)

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive