Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for December 2015

baclofen

I was diagnosed with Cerebellar Ataxia 10 years ago.One of two sisters already had SCA as has my aunt and one of three cousins. I have had baclofen as my...

I was diagnosed with Cerebellar Ataxia 10 years ago.One of two sisters already h...

youngbutold

•9 years ago

2 Replies

Update

I went to my genetics appointment apparently I have a rare gene what is connected to type 6 but its one they don't know much about. Did a family tree and with...

I went to my genetics appointment apparently I have a rare gene what is connecte...

Loubie82

•9 years ago

10 Replies

Show me yours

H its Steve, I am hoping to buy a lever drive propulsion system for the manual wheelchair. The one I am looking at is called nudrive, its available from a...

H its Steve, I am hoping to buy a lever drive propulsion system for the manual w...

stevetit

•9 years ago

3 Replies

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Driving?

Hello. Quick question that I currently don't know what I should do. I have cerebella ataxia type 2 and I need to renew my car insurance. Do you think it is...

Hello. Quick question that I currently don't know what I should do. I have cereb...

ljp103

•9 years ago

10 Replies

Beware of the diagnosis

I am with you Nigel.

Erincarlyjay

•9 years ago

1 Reply

Beware the prognosis

Ataxia is not much known about by medical professionals, even those in neuro units. Therefore the information they give us is largely based on their experience...

Ataxia is not much known about by medical professionals, even those in neuro uni...

nigelrheath

•9 years ago

27 Replies

Update on my peripheral vision

Hi, I wrote a post some weeks ago as I was tested 6 months ago and discovered that I had nearly no peripheral vision. Since reading posts (especially Nigel...

Hi, I wrote a post some weeks ago as I was tested 6 months ago and discovered th...

wibblywobbly

•9 years ago

9 Replies

Waiting in line for toilets on long flights

I have a question is about the difficulty of waiting in line at the toilet on long flights. I often make long flights, mostly to Israel (approximately 5 hours)...

I have a question is about the difficulty of waiting in line at the toilet on lo...

klazien

•9 years ago

14 Replies

Report from the USA

Last month I went solo from Tel Aviv to Heathrow to Oxford. In Oxford, I did all sorts of things like ride the bus, clambor up 3 flights to my husdand's apt....

Last month I went solo from Tel Aviv to Heathrow to Oxford. In Oxford, I did all...

neta

•9 years ago

8 Replies

Help

I was wondering if anyone could tell me what they do at the genetic clinic. I've got my appointment next Friday xx

I was wondering if anyone could tell me what they do at the genetic clinic. I've...

Loubie82

•9 years ago

3 Replies

Hi! Hope I can help you ...

Hello! My name is Esteban Grieb, I’m 39 years old, I was born in Buenos Aires, Argentina and I now live in Steyr, Austria. I was diagnosed Friedrich’s Ataxia...

Hello! My name is Esteban Grieb, I’m 39 years old, I was born in Buenos Aires, ...

estebangrieb

•9 years ago

11 Replies

What do people use to reduce a pressure sore ?

Has anyone got experience of having pressure sores? What's the best way to get rid ?

Has anyone got experience of having pressure sores? What's the best way to get r...

PeteW

•9 years ago

2 Replies

sertaline

Hi does anyone have any experience with anti?depressants so far all the ones I have been prescribed have had bad side affects I am currently on sertaline the...

Hi does anyone have any experience with anti?depressants so far all the ones I h...

wobelyjohn

•9 years ago

6 Replies

My moods

I am 44 years old and I can hardly walk anymore I got told I had Ataxia a couple of years ago my mum got told back in the 1960s by her local hospital that...

I am 44 years old and I can hardly walk anymore I got told I had Ataxia a coup...

Jim95

•9 years ago

16 Replies

hi.

Hi, my name is Gary. Just been diagnosed with Ataxia, was wondering if there is anyone on here from the Glasgow area in Scotland Many thanks Gary.

Hi, my name is Gary. Just been diagnosed with Ataxia, was wondering if there is...

gary1974

•9 years ago

20 Replies

Loss of peripheral vision

Hi, I just thought I'd post a little update. A few months ago I posted about my loss of peripheral vision. Since receiving the advice from people (especially...

Hi, I just thought I'd post a little update. A few months ago I posted about m...

wibblywobbly

•9 years ago

3 Replies

Cerebella ataxia

My partner has progressive cerebella ataxia with other problems to many to mention he gets worse every day and has told me he is struggling with life ? Does...

My partner has progressive cerebella ataxia with other problems to many to menti...

Pheobe13

•9 years ago

10 Replies

Balance

One of the first things we notice as Ataxians is the loss of balance and an increase in wobbliness. This can cause us to walk less and to seek ways of...

One of the first things we notice as Ataxians is the loss of balance and an incr...

nigelrheath

•9 years ago

5 Replies

Toilet??

I have a genetic form of cerebella ataxia type 2 but I'm writing this question really for my dad (I don't suffer from this). So earlier this year my dad had...

I have a genetic form of cerebella ataxia type 2 but I'm writing this question r...

ljp103

•9 years ago

6 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for December 2015

baclofen

Update

Show me yours

Driving?

Beware of the diagnosis

Beware the prognosis

Update on my peripheral vision

Waiting in line for toilets on long flights

Report from the USA

Help

Hi! Hope I can help you ...

What do people use to reduce a pressure sore ?

sertaline

My moods

hi.

Loss of peripheral vision

Cerebella ataxia

Balance

Toilet??

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive