Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for June 2022

Overview of Adult Onset Cerebellar Ataxia

🙂 A link to interesting reading about types of ataxia, symptoms and testing...

wobblybee

•2 years ago

6 Replies

SCA 44

Hi all....has anyone on here got a diagnosis of SCA 44?

lonesome

•2 years ago

2 Replies

Gluten

Thanks to everybody who took the time to reply to my Gluten Ataxia post some very interesting and educational points. I have SCA 6 and EA type unknown it was...

Thanks to everybody who took the time to reply to my Gluten Ataxia post some ver...

paul456

•2 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Gluten Ataxia

Does anyone have Gluten Ataxia as well as another type of Ataxia ? For the last several weeks I’ve suffered more with Ataxia symptoms after evening meal which...

Does anyone have Gluten Ataxia as well as another type of Ataxia ? For the last ...

paul456

•2 years ago

8 Replies

A visit to the hospital

A visit to the hospital. After not seeing my consultant for a year I now have an appointment at the end of the month. I am wondering what questions I should...

A visit to the hospital. After not seeing my consultant for a year I now have an...

Knittlng

•2 years ago

7 Replies

Autosomal Recessive Cerebellar Ataxia type 8 (ARCA8)

Last year I was diagnosed with autosomal recessive cerebellar ataxia (ARCA). Specifically, I've got a SYNE1-related spinocerebellar ataxia - or ARCA8. Reaching...

Last year I was diagnosed with autosomal recessive cerebellar ataxia (ARCA). Spe...

edfosho

•2 years ago

5 Replies

It's a disgrace!

Hi everyone, Reading through the posts two things really stick out. Firstly just how poorly ataxia sufferers are treated. Whether waiting for a diagnosis or...

Hi everyone, Reading through the posts two things really stick out. Firstly jus...

penelope2

•2 years ago

29 Replies

Thought I had Sporadic Cerebellar Ataxia but my Ataxia is due to Niemann Pick C disease (late/adult onset)...

I was diagnosed with Sporadic Cerebellar Ataxia (idiopathic) when I was 49 years old. Over the years, I had genetic testing for the more common dominant and...

I was diagnosed with Sporadic Cerebellar Ataxia (idiopathic) when I was 49 years...

february

•2 years ago

2 Replies

Neuro surgeon appointment and CCAS ?

Hello friend’s, I had an appointment with a neuro surgeon yesterday I wasn’t hopeful of anything different than what I had been told before. But I was hopeful...

Hello friend’s, I had an appointment with a neuro surgeon yesterday I wasn’t ho...

Guardsman68

•2 years ago

22 Replies

Drive Nitro Rollator

Good afternoon. I have a Drive Nitro Rollator with a broken wheel. I'm told it needs a replacement 'burn'. I have tried Drive direct but as yet no response....

Good afternoon. I have a Drive Nitro Rollator with a broken wheel. I'm told it n...

Caragh

•2 years ago

4 Replies

Voice Banking

𝐀𝐜𝐜𝐞𝐬𝐬 𝐕𝐨𝐢𝐜𝐞 𝐁𝐚𝐧𝐤𝐢𝐧𝐠 𝐯𝐢𝐚 𝐒𝐩𝐞𝐚𝐤𝐔𝐧𝐢𝐪𝐮𝐞! 🗣 We are delighted to announce we can now offer funding for people with ataxia to...

𝐀𝐜𝐜𝐞𝐬𝐬 𝐕𝐨𝐢𝐜𝐞 𝐁𝐚𝐧𝐤𝐢𝐧𝐠 𝐯𝐢𝐚 𝐒𝐩𝐞𝐚𝐤𝐔𝐧𝐢𝐪𝐮𝐞! 🗣 We are...

wobblybee

•2 years ago

4 Replies

Search posts

Latest poll

See all polls

How long have you or your relative/friend been diagnosed with ataxia?

Vote

Topics

All posts(503)

All things Ataxia UK(464)

Research projects(38)

Our publications(1)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for June 2022

Overview of Adult Onset Cerebellar Ataxia

SCA 44

Gluten

Gluten Ataxia

A visit to the hospital

Autosomal Recessive Cerebellar Ataxia type 8 (ARCA8)

It's a disgrace!

Thought I had Sporadic Cerebellar Ataxia but my Ataxia is due to Niemann Pick C disease (late/adult onset)...

Neuro surgeon appointment and CCAS ?

Drive Nitro Rollator

Voice Banking

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive