Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for June 2022

Overview of Adult Onset Cerebellar Ataxia

🙂 A link to interesting reading about types of ataxia, symptoms and testing...

wobblybee

•3 years ago

6 Replies

SCA 44

Hi all....has anyone on here got a diagnosis of SCA 44?

lonesome

•3 years ago

2 Replies

Gluten

Thanks to everybody who took the time to reply to my Gluten Ataxia post some very interesting and educational points. I have SCA 6 and EA type unknown it was...

Thanks to everybody who took the time to reply to my Gluten Ataxia post some ver...

paul456

•3 years ago

4 Replies

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Gluten Ataxia

Does anyone have Gluten Ataxia as well as another type of Ataxia ? For the last several weeks I’ve suffered more with Ataxia symptoms after evening meal which...

Does anyone have Gluten Ataxia as well as another type of Ataxia ? For the last ...

paul456

•3 years ago

8 Replies

A visit to the hospital

A visit to the hospital. After not seeing my consultant for a year I now have an appointment at the end of the month. I am wondering what questions I should...

A visit to the hospital. After not seeing my consultant for a year I now have an...

Knittlng

•3 years ago

7 Replies

Autosomal Recessive Cerebellar Ataxia type 8 (ARCA8)

Last year I was diagnosed with autosomal recessive cerebellar ataxia (ARCA). Specifically, I've got a SYNE1-related spinocerebellar ataxia - or ARCA8. Reaching...

Last year I was diagnosed with autosomal recessive cerebellar ataxia (ARCA). Spe...

edfosho

•3 years ago

5 Replies

It's a disgrace!

Hi everyone, Reading through the posts two things really stick out. Firstly just how poorly ataxia sufferers are treated. Whether waiting for a diagnosis or...

Hi everyone, Reading through the posts two things really stick out. Firstly jus...

penelope2

•3 years ago

29 Replies

Thought I had Sporadic Cerebellar Ataxia but my Ataxia is due to Niemann Pick C disease (late/adult onset)...

I was diagnosed with Sporadic Cerebellar Ataxia (idiopathic) when I was 49 years old. Over the years, I had genetic testing for the more common dominant and...

I was diagnosed with Sporadic Cerebellar Ataxia (idiopathic) when I was 49 years...

february

•3 years ago

2 Replies

Neuro surgeon appointment and CCAS ?

Hello friend’s, I had an appointment with a neuro surgeon yesterday I wasn’t hopeful of anything different than what I had been told before. But I was hopeful...

Hello friend’s, I had an appointment with a neuro surgeon yesterday I wasn’t ho...

Guardsman68

•3 years ago

22 Replies

Drive Nitro Rollator

Good afternoon. I have a Drive Nitro Rollator with a broken wheel. I'm told it needs a replacement 'burn'. I have tried Drive direct but as yet no response....

Good afternoon. I have a Drive Nitro Rollator with a broken wheel. I'm told it n...

Caragh

•3 years ago

4 Replies

Voice Banking

𝐀𝐜𝐜𝐞𝐬𝐬 𝐕𝐨𝐢𝐜𝐞 𝐁𝐚𝐧𝐤𝐢𝐧𝐠 𝐯𝐢𝐚 𝐒𝐩𝐞𝐚𝐤𝐔𝐧𝐢𝐪𝐮𝐞! 🗣 We are delighted to announce we can now offer funding for people with ataxia to...

𝐀𝐜𝐜𝐞𝐬𝐬 𝐕𝐨𝐢𝐜𝐞 𝐁𝐚𝐧𝐤𝐢𝐧𝐠 𝐯𝐢𝐚 𝐒𝐩𝐞𝐚𝐤𝐔𝐧𝐢𝐪𝐮𝐞! 🗣 We are...

wobblybee

•3 years ago

4 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for June 2022

Overview of Adult Onset Cerebellar Ataxia

SCA 44

Gluten

Gluten Ataxia

A visit to the hospital

Autosomal Recessive Cerebellar Ataxia type 8 (ARCA8)

It's a disgrace!

Thought I had Sporadic Cerebellar Ataxia but my Ataxia is due to Niemann Pick C disease (late/adult onset)...

Neuro surgeon appointment and CCAS ?

Drive Nitro Rollator

Voice Banking

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive