Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for May 2023

Dynamic Movement Orthoses and Proprioception

I just had a measuring for one of these suits, does anyone have any feedback on them?

I just had a measuring for one of these suits, does anyone have any feedback on ...

hab29

•2 years ago

4 Replies

Advice Please

I was diagnosed with ataxia sca6 in 2018, after 5yrs of problems. Speech in 2015 became difficult and it’s been downhill since. Now I feel that I’ve constant...

I was diagnosed with ataxia sca6 in 2018, after 5yrs of problems. Speech in 2015...

Lilielost

•2 years ago

7 Replies

what animal are you?

What animal are you? I recently posted about acupuncture and likened myself to treacle in a world of blue arsed flies! I thought about this and now have a...

What animal are you? I recently posted about acupuncture and likened myself to ...

nigelrheath

•2 years ago

8 Replies

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acupuncture

two years ago, where does the time go? I posted about trying out acupuncture, particularly to improve proprioception. I didn’t have it for long before I...

two years ago, where does the time go? I posted about trying out acupuncture, pa...

nigelrheath

•2 years ago

1 Reply

severe restless legs. Awake most of the night.

Been recently diagnosed with severe restless legs ,Been awake most of the night in pain and having spasms, painkillers have helped, but not enough and...

Been recently diagnosed with severe restless legs ,Been awake most of the night...

carol31271

•2 years ago

19 Replies

AtaxiaUK Chair Pilates

Come along to our Chair Pilates session with Sonia on Tuesday the 6th of June @11:30am-12:30 pm Register now: https://bit.ly/3W6KV18 #AtaxiaUK #Ataxia...

Come along to our Chair Pilates session with Sonia on Tuesday the 6th of June @1...

wobblybee

•2 years ago

1 Reply

Useful words

Ambulating is useful word too. My husband, Ken, has parkinsons and they describe it like walking through water. My ambulation is like walking through cement....

Ambulating is useful word too. My husband, Ken, has parkinsons and they describe...

PatsyIpswich

•2 years ago

2 Replies

Proprioception

Despite being diagnosed and vaguely monitored since 2002, I have never been told about proprioception. Someone on here mentioned it and prompted me to Google...

Despite being diagnosed and vaguely monitored since 2002, I have never been told...

PatsyIpswich

•2 years ago

12 Replies

Neuropathie

Whats thé différence with antaxia znd neuropathie ? Thankyou

7151

•2 years ago

8 Replies

Homeopathic treatment

I've lived with ataxia for around ten years and its grown progressively worse. Contemporary straightforward here's your prescription' medicine seems to have no...

I've lived with ataxia for around ten years and its grown progressively worse. C...

Piero

•2 years ago

3 Replies

Disability

Hello all.Thanks yo all who have taken the time to answer my quarry's. This maybe a silly question ' but I would like to know if ATAXIA condition comes under...

Hello all.Thanks yo all who have taken the time to answer my quarry's. This may...

slipsandtrips

•2 years ago

12 Replies

still going strong.

hello my Ataxian friends, how are you all doing, ok I hope….. an update on myself. I had cataracts removed from both eyes a couple of years ago, my vision now...

hello my Ataxian friends, how are you all doing, ok I hope….. an update on mysel...

Veteran250

•2 years ago

11 Replies

Neurologist

Hi I was referred back to my neurologist August last year and I'm still waiting for my appointment x

Hi I was referred back to my neurologist August last year and I'm still waiting ...

loubie41

•2 years ago

4 Replies

Benefits

Hello all I have SCA3. I work at the moment. Lately have had a couple of falls and a couple of fractures. My balance is not great! Thinking of loosing a day...

Hello all I have SCA3. I work at the moment. Lately have had a couple of falls ...

slipsandtrips

•2 years ago

13 Replies

Neurology appointment

I understand Dr Hammonds who held a Clinic at Southampton Hospital has retired and, as yet, no replacement has been appointed. Due to patient transport not...

I understand Dr Hammonds who held a Clinic at Southampton Hospital has retired a...

winch

•2 years ago

10 Replies

Snapshot: What are induced pluripotent stem cells (iPSCs)?

Browse to https://www.ataxia.org/scasourceposts/snapshot-what-are-induced-pluripotent-stem-cells-ipscs/ to read the article. "In short, we are following the...

Browse to https://www.ataxia.org/scasourceposts/snapshot-what-are-induced-plurip...

edfosho

•2 years ago

1 Reply

FATIGUE

Does anybody suffer with fatigue. I’m fed up with people saying and thinking I’m lazy.

Does anybody suffer with fatigue. I’m fed up with people saying and thinking I’m...

piglet3

•2 years ago

35 Replies

PRRT2 mutation

Hi, I had autoimmune encephalitis nearly 8 years ago and was misdiagnosed with FND so received no treatment. I’ve been left with ataxia and dysarthria. I’ve...

Hi, I had autoimmune encephalitis nearly 8 years ago and was misdiagnosed with F...

NotFND

•2 years ago

2 Replies

TG6 gluten Ataxia

Hello friends does anyone know about the antibodies TG6 for gluten Ataxia I have been told I have these but I was diagnosed with idiopathic cerebella ataxia 2...

Hello friends does anyone know about the antibodies TG6 for gluten Ataxia I have...

Guardsman68

•2 years ago

9 Replies

Digestive issues

Morning all I've been getting alot of abdominal pain now pain in stomach treated for a UTI but still there got appointment with gp tomorrow but was wondering...

Morning all I've been getting alot of abdominal pain now pain in stomach treated...

Tazwaz

•2 years ago

6 Replies

Ataxia SCA1

Hi, just have a question-does anybody have the same problem. I was diagnosed with SCA1 in 2011, no symptoms yet. From around 2 years I started to have really...

Hi, just have a question-does anybody have the same problem. I was diagnosed wit...

Mirabella113

•2 years ago

6 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for May 2023

Dynamic Movement Orthoses and Proprioception

Advice Please

what animal are you?

acupuncture

severe restless legs. Awake most of the night.

AtaxiaUK Chair Pilates

Useful words

Proprioception

Neuropathie

Homeopathic treatment

Disability

still going strong.

Neurologist

Benefits

Neurology appointment

Snapshot: What are induced pluripotent stem cells (iPSCs)?

FATIGUE

PRRT2 mutation

TG6 gluten Ataxia

Digestive issues

Ataxia SCA1

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive