Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for June 2021

Slurred speech

If like me you suffer from slurred speech (dysarthria) I recommend down loading and practicing the tongue twisters from the following site....

If like me you suffer from slurred speech (dysarthria) I recommend down loading ...

Libra7

•4 years ago

12 Replies

Dizziness

Hi, I was diagnosed with SCA1 in 2011 since then didn't had any symptoms. From some time I am feeling very weak, dizzy and nauseated. I had a blood test and...

Hi, I was diagnosed with SCA1 in 2011 since then didn't had any symptoms. From s...

Mirabella113

•4 years ago

5 Replies

Walker for better balance

Hi everyone, I have been noticing that I can't walk straight, have turning difficulty and am gripping the Waller as if my life depended on it. I can't balance...

Hi everyone, I have been noticing that I can't walk straight, have turning diffi...

Amynah

•4 years ago

13 Replies

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Why is it now £20 to attend my annual UK Ataxia conference on Zoom ?

the host last year was a chump

Sailor_Girl

•4 years ago

3 Replies

PNPLA6 MUTATION GROUP ON FACEBOOK

Hi! I just created the Facebook group PNPLA6 mutation, trying to gather people suffering from this rare genetic condition. In case you wanted to join, it is a...

Hi! I just created the Facebook group PNPLA6 mutation, trying to gather people s...

Roman_mom

•4 years ago

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Help shape Ataxia UK's strategy for the next three years

At Ataxia UK we are starting the process of deciding our priorities and developing our plan for the next three years. If we’re going to do that properly, we...

At Ataxia UK we are starting the process of deciding our priorities and develop...

SueMillman

Partner•4 years ago

4 Replies

I have a hereditary cerebellar ataxia - what now?

Hi, I have a hereditary cerebellar ataxia - specifically, SYNE1-related spinocerebellar ataxia (ARCA8) - whatever that means... Symptoms have slowly...

Hi, I have a hereditary cerebellar ataxia - specifically, SYNE1-related spinocer...

edfosho

•4 years ago

9 Replies

Link

Link? Have some concerns about Astra Zeneca vaccine as to any causal link to Ataxia/Apraxia?

Link? Have some concerns about Astra Zeneca vaccine as to any causal link to At...

findhopegirl

•4 years ago

1 Reply

Have just discovered I've lost a stone during Covid

Haven't felt very hungry and am getting worried as I was only 8stone 8pounds to start with and I;m 5 7 tall. Can anybody advise on a healthy drink Thank you

Haven't felt very hungry and am getting worried as I was only 8stone 8pounds to ...

scatef

•4 years ago

2 Replies

sight loss

Besides Cerebellar Ataxia I have also got severe damage to my optic nerves and am almost blind. The Fedorov Clinic might help but has anybody ever heard about...

Besides Cerebellar Ataxia I have also got severe damage to my optic nerves and a...

klazien

•4 years ago

5 Replies

Child’s Spatula

Hi All, Hope you find this helpful. A neighbour bought me a frying pan just big enough to cook 1 egg in, also a child’s spatula which doesn’t have the long...

Hi All, Hope you find this helpful. A neighbour bought me a frying pan just bi...

Jacqui-A

•4 years ago

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post virus- mostly after physical activity or tired?

Hi, my first post on here. A couple years ago I had disseminated facial/eye shingles (both sides) with meningitis. a couple weeks (?) after hospital discharge...

Hi, my first post on here. A couple years ago I had disseminated facial/eye shin...

greenocean

•4 years ago

1 Reply

Advise Please

Hello all hope you are all well. I’m after some advice please on walking aids, in particular a frame/rollator that type. I’m getting to a stage that a walking...

Hello all hope you are all well. I’m after some advice please on walking aids, i...

paul456

•4 years ago

6 Replies

cbd

Do you know when people with Ataxia will be able to get CBD on the NHS ? N.I.C.E told me that it would be made available 2019 . Am going to ring them again...

Do you know when people with Ataxia will be able to get CBD on the NHS ? N.I.C....

lynnm

•4 years ago

4 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for June 2021

Slurred speech

Dizziness

Walker for better balance

Why is it now £20 to attend my annual UK Ataxia conference on Zoom ?

PNPLA6 MUTATION GROUP ON FACEBOOK

Help shape Ataxia UK's strategy for the next three years

I have a hereditary cerebellar ataxia - what now?

Link

Have just discovered I've lost a stone during Covid

sight loss

Child’s Spatula

post virus- mostly after physical activity or tired?

Advise Please

cbd

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive