Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,037 members • 4,576 posts

All posts for March 2016

Sca6

I have spinocerebellar ataxia type 6.i get so so much pain in my body ie legs hands feet arms.the most painful are one of my legs does anyone suffer with this...

I have spinocerebellar ataxia type 6.i get so so much pain in my body ie legs ha...

•8 years ago

clonazepan

anybody been on clonazepam and has it helped

anybody been on clonazepam and has it helped

•8 years ago

Awaiting diagnosis of ataxia for dad who is 74.

Just looking for information about ataxia as we awaiting diagnosis.

Just looking for information about ataxia as we awaiting diagnosis.

•8 years ago

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a fellow ataxian meet up

Hi I am Stewart Souter aged 31-- live in Dundee would like to talk or meet up with someone or people with Friedreichs Ataxia in the Broughty Ferry /Dundee...

Hi I am Stewart Souter aged 31-- live in Dundee would like to talk or meet up w...

•8 years ago

What is a DATSCAN?

At a recent follow up my neurologist has diagnosed that my SCA has now progressed to early MSA. I will look at the MSA org site for more information but will...

At a recent follow up my neurologist has diagnosed that my SCA has now progresse...

•8 years ago

Test results...

So I know I have been away for a while and I'm sorry I should have posted this earlier. As some of you will have seen I decided to get tested after finding...

So I know I have been away for a while and I'm sorry I should have posted this e...

•8 years ago

SCA 6 and colon problems?

Hi, my husband was tested SCA6 about 3 years ago. He has always suffered from constipation, but since January he has been admitted to hospital twice for an...

Hi, my husband was tested SCA6 about 3 years ago. He has always suffered from co...

•8 years ago

A person told me he had improvement with Nilotinib(Tasigna) ? we are going to try it !

Hoping for the best.Has anyone tried it ?

Hoping for the best.Has anyone tried it ?

•8 years ago

Hands won't open

OK - not sure if this is common, or their is something going on - when I lift / carry something that is heavy, or when I clench my hands together for 10 - 15...

OK - not sure if this is common, or their is something going on - when I lift / ...

•8 years ago

Sky diving ataxia

Im looking to sky dive for ataxia uk i need to raise 450.00 for charity here is my link if you would like to sponser Www.gofundme.com/3wvtqcxg

Im looking to sky dive for ataxia uk i need to raise 450.00 for charity here is ...

•8 years ago

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Intro

Hello people,I'm ray from cardiff.

Hello people,I'm ray from cardiff.

•8 years ago

Ataxia sca3

Hello all im sophie 32 i found my biological father back in november but he had passed from ataxia at age 55 his brother and niece have also passed and nephew...

Hello all im sophie 32 i found my biological father back in november but he had ...

•8 years ago

Hi my name is Debbie

I haven't been Diagnosed with Acquired Ataxia I've had 2 strokes and a TIA my GP arranged for me to see an ENT specialist which i did and he said that my...

I haven't been Diagnosed with Acquired Ataxia I've had 2 strokes and a TIA my GP...

•8 years ago

Neurological physiotherapist

Has anyone had treatment from a neurological physiotherapist and if so have they found it helpful? There is one advertised near my home and they do home...

Has anyone had treatment from a neurological physiotherapist and if so have the...

•8 years ago

Msa c

Hi, just been to see neurologist with my husband after a 9month app, he had a dat scan 6 month ago and went to get results, he has been told he has multiple...

Hi, just been to see neurologist with my husband after a 9month app, he had a da...

•8 years ago

Toni x

Hi, I was told a week ago that my 2yr old daughter has Cerebellar Atrophy, it's been really devastating, especially as I am finding it really hard to find...

Hi, I was told a week ago that my 2yr old daughter has Cerebellar Atrophy, it's...

•8 years ago

Disability & Money-saving ideas for our Government.

Hi Everyone, I have completed an e-mail form to Mr. Cameron & thought I would post a copy on here for everyone to see. I am upset, scared, feel under threat...

Hi Everyone, I have completed an e-mail form to Mr. Cameron & thought I would p...

•8 years ago

oxygen

Has anyone used oxygen as a treatment? If so did it help you?

Has anyone used oxygen as a treatment? If so did it help you?

•8 years ago

double whammy

Is there any research or help for ataxia sufferers who have mental problem as well.

Is there any research or help for ataxia sufferers who have mental problem as we...

•8 years ago

Hoe does your toilet looks like?

Hello ... I think this year I've to adapt my toilet again. I have grip bars, grab pole or holding rods (I don't know exactly how you say to it) like you see...

Hello ... I think this year I've to adapt my toilet again. I have grip bars, gr...

•8 years ago

Ms

Hi i am new here,i have Spinal Cerebellar Ataxia i have had it for almost 20yrs,i was just wondering how people here have got on with their P. I. P. claim,i am...

Hi i am new here,i have Spinal Cerebellar Ataxia i have had it for almost 20yrs,...

•8 years ago

Hairloss treatment

The reviews about moxilil mention side effects. I have cerebellar attaxia and very many migraine attacks. Will it be bad for me to take it with these...

The reviews about moxilil mention side effects. I have cerebellar attaxia and ve...

•8 years ago

Disabled Access Day Saturday 12 March

Log onto 'disabledaccessday.com' , many venues have special offers for people with disabilities, and their carers😊 In Newcastle upon Tyne there's 50% off for...

Log onto 'disabledaccessday.com' , many venues have special offers for people wi...

•8 years ago

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Cerebellar Ataxia as result of a Brain Tumour

Hello Everyone, My name is Margaret and I am 47 years old and live in Northern Ireland. When I was 24 years old I was diagnosed with a brain tumor. After the...

Hello Everyone, My name is Margaret and I am 47 years old and live in Northern I...

•8 years ago

Tests to confirm Cerebellar Ataxia

Hi, What are the tests for cerebellar ataxia including possible blood tests.My fathers neuro doesnt take much interest.He hasnt ordered a single test...

Hi, What are the tests for cerebellar ataxia including possible blood tests.My...

•8 years ago

Unitalk Demo

Jonathan from Ataxia UK here. A quick message to make people aware that Unitalk (www.unitalkltd.com) currently market an app to enable easy translation...

Jonathan from Ataxia UK here. A quick message to make people aware that Unital...

•8 years ago

Group support - exercise etc

Hello fellow ataxians. This is by way of answer to two recent posts, on difficulty standing and on the media and support for ataxia. Doing more exercise to...

Hello fellow ataxians. This is by way of answer to two recent posts, on difficul...

•8 years ago

Any ideas please?

I have started leaning for extra support and balance and I am doing it a lot in my workshop when I work my clay. I am using the edge of the table for added...

I have started leaning for extra support and balance and I am doing it a lot in ...

•8 years ago

Media

Hi everyone (again) Thanks to everyone for taking the trouble to contribute to my letter. It's very reassuring that we all feel the same that the condition...

Hi everyone (again) Thanks to everyone for taking the trouble to contribute to m...

•8 years ago

Got balance problems

Is balance wear available in the uk

Is balance wear available in the uk

Geraldinemckinney

•8 years ago

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