Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for August 2016

Ataxia and choking

hi I'm new here. Have had ataxia for some 40 years, undiagnosed for some 20 years. SC without a number. Have seen Dr Giunti in the past. Now experiencing...

hi I'm new here. Have had ataxia for some 40 years, undiagnosed for some 20 ye...

frazzled1

•8 years ago

19 Replies

Walker/wheelchair

On my ‘internaf ‘ forum I found this: http://walknchair.com/ . This is in the US. Is there anything like this in the UK, where I live? Does anybody here know...

On my ‘internaf ‘ forum I found this: http://walknchair.com/ . This is in the US...

klazien

•8 years ago

9 Replies

back to work HR problem

Hi, you may remember I posted sometime ago that I am trying to get back to work but part time and with what I believe to be reasonable adjustments. To cut a...

Hi, you may remember I posted sometime ago that I am trying to get back to work ...

kjtibby

•8 years ago

9 Replies

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Advice about office chair

Hi. I want to get an office chair to sit at my computer desk. I have noticed that Ikea sell ergonomic office chairs at a reasonable price but like all swivel...

Hi. I want to get an office chair to sit at my computer desk. I have noticed tha...

ConantheLibrarian

•8 years ago

6 Replies

Walking

Hi I was diagnosed with spinocerebellar ataxia type 2 about 4-5 years ago, I'm still in full time work. My main difficulties are walking and coordination....

Hi I was diagnosed with spinocerebellar ataxia type 2 about 4-5 years ago, I'm s...

weegiz12345

•8 years ago

8 Replies

Regarding ataxia and memory

Does any one her with ataxia suffer from forgetfulness or memory loss? My mum and big sister have both been confirmed to have episodic ataxia type 2 and both...

Does any one her with ataxia suffer from forgetfulness or memory loss? My mum an...

Junie1984

•8 years ago

17 Replies

SCA7

Hi I was diagnosed with SCA7 almost 20 years ago. I retired from work 16 years ago. My condition has deteriorated, and I am now in a wheelchair, and blind....

Hi I was diagnosed with SCA7 almost 20 years ago. I retired from work 16 years ...

patriciagrant

•8 years ago

5 Replies

Medical Welfare Awards!

Hi everyone, This is Steph from Ataxia UK. We're thrilled to have been nominated as a finalist in Charity Today's Medical Welfare Awards! Your vote would mean...

Hi everyone, This is Steph from Ataxia UK. We're thrilled to have been nominate...

SMarley

•8 years ago

12 Replies

Medical assessment for ESA

My payments have now stopped as they have not yet got my last medical certificate but in the post this morning I have an appointment for an assessment ! Really...

My payments have now stopped as they have not yet got my last medical certificat...

wendygirl

•8 years ago

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Cerebellar Ataxia

I am new here so interested in hearing from others with this condition. What has shown itself useful to you and others? I find gross motor control such as...

I am new here so interested in hearing from others with this condition. What has...

Agility2

•8 years ago

7 Replies

Holiday ideas

Hi all, I need your help, I was just wondering if anyone could recommend a place in Europe to go just for a long weekend, that will be wheelchair and disabled...

Hi all, I need your help, I was just wondering if anyone could recommend a place...

NormanE

•8 years ago

7 Replies

Update NYC and more on Dr Clouse

Hi all, I am now in NYC, the plane ride was long but largely uneventful and once here, I visited my folks who are 94 and 92-- Mom. I travelled w my husband...

Hi all, I am now in NYC, the plane ride was long but largely uneventful and onc...

neta

•8 years ago

4 Replies

Ice cold feet

Hi all, I get ice cold feet which I believe is a circulation problem that we ataxia so suffer from. I've seen advertised a circulation booster, I was just...

Hi all, I get ice cold feet which I believe is a circulation problem that we ata...

NormanE

•8 years ago

7 Replies

Surplus AIDS and equipment

I am sure that many of us 'Ataxians' have possibly got various items which we no longer need or may have replaced, and I was wondering whether we could...

I am sure that many of us 'Ataxians' have possibly got various items which we no...

tedjohnson

•8 years ago

5 Replies

My hands have started shaking for no reason

I have got cerebellar ataxia and cerebral palsy. My hands have started shaking, it starts off been warm, and then it is like I have pins and needles, in them...

I have got cerebellar ataxia and cerebral palsy. My hands have started shaking, ...

AnneMenzies

•8 years ago

7 Replies

Strange round tummy

hi, I have a rather deformed looking round belly. I know with all the other things ataxia brings this really is not serious but I just wondered if anyone else...

hi, I have a rather deformed looking round belly. I know with all the other thin...

wibblywobbly

•8 years ago

11 Replies

Intro

Hi I recently had a cerebellum stroke and have been left with Ataxia amongst other things.

Hi I recently had a cerebellum stroke and have been left with Ataxia amongst oth...

DarrenBassom

•8 years ago

7 Replies

Barcelona

My walking stick and I (and my kilt of course!) have just walked 108km in the last 8 days. And, this morning, I had my first glimpse of Barcelona on this walk...

My walking stick and I (and my kilt of course!) have just walked 108km in the la...

Iain_100

•8 years ago

4 Replies

Heat control

Heat control - is it ataxia? Just wondering if anyone else having trouble getting very hot? It started with a bug and I kept getting hot and feeling sick about...

Heat control - is it ataxia? Just wondering if anyone else having trouble gettin...

Litty

•8 years ago

8 Replies

ESA application

I am a bit confused! I thought it takes 13 weeks to be assessed for ESA but I am now in my 18th week with no sign of a decision, today I got a letter asking...

I am a bit confused! I thought it takes 13 weeks to be assessed for ESA but I am...

wendygirl

•8 years ago

9 Replies

Pain in the left hamstring

Hi all I get a dull pain in only 1 hamstring at night I cannot straighten it out it more annoying rather than painful. Does anyone have any similar problems?...

Hi all I get a dull pain in only 1 hamstring at night I cannot straighten it out...

NormanE

•8 years ago

6 Replies

A question xx

Does anyone recommend a good power chair/electric wheelchair xx

chaz2015

•8 years ago

3 Replies

Restless Legs anyone??

I have had Cerebellar Ataxia for over 30 years & have suffered with Restless Legs for some years & am now finding its getting worse. I have been told its...

I have had Cerebellar Ataxia for over 30 years & have suffered with Restless Leg...

glosman

•8 years ago

11 Replies

CoQ10 (ubiquinone).

This is a question for Harriett (or anyone else who knows). I've just come across an article, that suggests that a CoQ10 deficiency has been identified in SCA...

This is a question for Harriett (or anyone else who knows). I've just come acro...

Iain_100

•8 years ago

19 Replies

Ataxia UK Survey - Deadline Extended

We've had a superb response to the Ataxia UK survey with over 200 submissions coming through to us. As a result we have extended the deadline to the 14th...

We've had a superb response to the Ataxia UK survey with over 200 submissions co...

Jonathan_Evans

•8 years ago

3 Replies

Occupational therapy/ HR question

Hi following my return to work meeting, I was told they don't need my Neuro, GP nor Ataxia Nurse's opiion as this isn't the way they work, instead, i'll be...

Hi following my return to work meeting, I was told they don't need my Neuro, GP ...

kjtibby

•8 years ago

4 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for August 2016

Ataxia and choking

Walker/wheelchair

back to work HR problem

Advice about office chair

Walking

Regarding ataxia and memory

SCA7

Medical Welfare Awards!

Medical assessment for ESA

Cerebellar Ataxia

Holiday ideas

Update NYC and more on Dr Clouse

Ice cold feet

Surplus AIDS and equipment

My hands have started shaking for no reason

Strange round tummy

Intro

Barcelona

Heat control

ESA application

Pain in the left hamstring

A question xx

Restless Legs anyone??

CoQ10 (ubiquinone).

Ataxia UK Survey - Deadline Extended

Occupational therapy/ HR question

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive