Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for March 2014

I`m Chirpy As A Hobbit

BT Broadband now up and running. I register with new Medical Centre tomorrow Friday - as I`m now out of my old Doctors area. Care-Call have fitted their...

BT Broadband now up and running. I register with new Medical Centre tomorrow Fri...

Hidden

•11 years ago

10 Replies

Should we always ask what our blood test samples are for?

Only once had I asked a nurse what a blood sample was for. The sample was instructed by my Neurologist. She told me that this specific sample was to detrmine...

Only once had I asked a nurse what a blood sample was for. The sample was instru...

Hidden

•11 years ago

12 Replies

Blood test

I recently had blood test for which they covered the syringe with paper (to stop light getting in). This is the first time they've done this. WHY?

I recently had blood test for which they covered the syringe with paper (to stop...

scruffycat

•11 years ago

13 Replies

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Last time i post was 6 months ago

Last time i was having bowl trouble well i did the diet option its working for me. my ataxia has took nose dive for the worse my pain got worse i was on...

Last time i was having bowl trouble well i did the diet option its working for m...

nutter

•11 years ago

1 Reply

Please sponsor me. I'm doing a tandem freefall for Ataxia UK

I have FA, I was diagnosed with in 1992! I have set myself a target of £1000, but have some way to go before the jump in June. Please support me by donating...

I have FA, I was diagnosed with in 1992! I have set myself a target of £1000, bu...

riccib

•11 years ago

3 Replies

Going AWOL for a while

I`ll be going AWOL for a while whilst my PC etc, is disconnected and moved to my new address. All fragile stuff. Should be back to normal by tea-time tomorrow...

I`ll be going AWOL for a while whilst my PC etc, is disconnected and moved to my...

Hidden

•11 years ago

6 Replies

Hello newly diagnosed

Hello I have recently been diagnosed with Cerebellum atrophy ,this was discovered while looking for reasons for muscle wasting of the hands ,forearms and...

Hello I have recently been diagnosed with Cerebellum atrophy ,this was discovere...

motherelle

•11 years ago

9 Replies

Emails from HealthUnlocked

If anybody is wondering why 'no emails' or 'erratic emails' check your account and contact preferences, remember to click on update afterwards :-) I've...

If anybody is wondering why 'no emails' or 'erratic emails' check your account a...

wobblybee

•11 years ago

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Anyone suffer with cold knees??

I have had ataxia for over 30 years & so have got used to managing all the problems it causes, however recently I have found that my knees are becoming very...

I have had ataxia for over 30 years & so have got used to managing all the probl...

glosman

•11 years ago

14 Replies

Anybody experience muscle contractions on one side of their body more than the other side?

I often have contracted muscles as I'm sure many of you do too. But for the last month it is like there is a vertical line exactly down the middle of my body...

I often have contracted muscles as I'm sure many of you do too. But for the las...

wibblywobbly

•11 years ago

5 Replies

Been a while

I used to post comments here under a different username a long time ago (John-H) but had to go AWOL for a little time due to unforeseen health reasons. It`s...

I used to post comments here under a different username a long time ago (John-H)...

Hidden

•11 years ago

14 Replies

episodic ataxia ... nightmare

Hi all , have not posted in a while as was doing well. was taking diamox 125mgs twice a day since october and doing well but in the last month i am not doing...

Hi all , have not posted in a while as was doing well. was taking diamox 125mgs ...

ringabel

•11 years ago

3 Replies

CA, re; DLA / AA

Hi, never new this site existed. i have been struggling with CA for over 15 years now, saw neurologist on a regular basis in the early days, but it never got...

Hi, never new this site existed. i have been struggling with CA for over 15 year...

engineman

•11 years ago

12 Replies

Hi Does anyone know what the term manifesting carrier means ?

jaffa12

•11 years ago

1 Reply

Our 7 year old has fa. He appears to be aware that he is different to other children but he is not yet at the stage where he asks questions.

The physio has advised that he should try out using a kaye frame. She is not convinced that he needs one yet - he doesn't fall over often - but she doesn't...

The physio has advised that he should try out using a kaye frame. She is not con...

castle0365

•11 years ago

5 Replies

Frustrated with docs lack of urgency!!!

16 weeks to wait for physio,4-6 weeks to be seen by OT... Mental issues??? Hmmm ok mrs marshall I'll put your husband on a waiting list.... MRI.... We will be...

16 weeks to wait for physio,4-6 weeks to be seen by OT... Mental issues??? Hmmm ...

Jayswife-24

•11 years ago

8 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for March 2014

I`m Chirpy As A Hobbit

Should we always ask what our blood test samples are for?

Blood test

Last time i post was 6 months ago

Please sponsor me. I'm doing a tandem freefall for Ataxia UK

Going AWOL for a while

Hello newly diagnosed

Emails from HealthUnlocked

Anyone suffer with cold knees??

Anybody experience muscle contractions on one side of their body more than the other side?

Been a while

episodic ataxia ... nightmare

CA, re; DLA / AA

Hi Does anyone know what the term manifesting carrier means ?

Our 7 year old has fa. He appears to be aware that he is different to other children but he is not yet at the stage where he asks questions.

Frustrated with docs lack of urgency!!!

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive