Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,084 members•4,658 posts

All posts for August 2018

UC mandatory appeal...Tribunal

Hi, I have just spoken to my very good social worker about the next phase of the appeal, which is a tribunal, and she was saying she cannot attend because she...

Hi, I have just spoken to my very good social worker about the next phase of th...

peterallison

•6 years ago

24 Replies

Vertigo

I have been told ! Might have members disease but if I don't have any more dizzy spells its not had tinnitus for years seems louder than used to be taking...

I have been told ! Might have members disease but if I don't have any more dizz...

mail

•6 years ago

2 Replies

Hyperbaric Champer (Oxygen) Treatment for Ataxia

Hey guys! My mother has been diagnosed with SCA3. For the past 5 years I have been looking aggressively to improve her quality of life. My new hope is a...

Hey guys! My mother has been diagnosed with SCA3. For the past 5 years I have b...

NirYzhari

•6 years ago

5 Replies

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Ataxia Specialist In Scotland

Hi Everyone been a member for a few months now and taken great support from your posts. I have cerebellar ataxia but as yet no firm diagnosis of the type. Does...

Hi Everyone been a member for a few months now and taken great support from your...

DizzyDays

•6 years ago

10 Replies

East Sussex and Kent

Hi we had a small meeting of the East Sussex ( and Kent) group yesterday and have decided to set up a what’s app group so we can communicate easily . we met at...

Hi we had a small meeting of the East Sussex ( and Kent) group yesterday and hav...

Happyfacexx

•6 years ago

4 Replies

Vibrating machine

Does anyone else use a vibrating machine? I have a very good one which was in storage while I lived in a flat. Now I have more room I have started using it...

Does anyone else use a vibrating machine? I have a very good one which was in st...

Happyfacexx

•6 years ago

10 Replies

Top ataxia consultant

Who is the best neurology in England as I really need to know which type I have I’m in yorkshire thanks

Who is the best neurology in England as I really need to know which type I have ...

Guyb

•6 years ago

15 Replies

Help

Hi every one, I'm asking for a bit of advice, my brotherinlaw was diagnosed about 5 years ago with ataxia, I'm not to sure what type, he has been wheelchair...

Hi every one, I'm asking for a bit of advice, my brotherinlaw was diagnosed abou...

Debilou2

•6 years ago

4 Replies

Do you know what food we suffering from the SCA3 should avoid eating ？

Or what kind of food？Thanks very much！

4ever2gether

•6 years ago

11 Replies

Is the a support group for the middle aged?

Hi, I would like to know whether a support group for us young ones (30-55) exist in London? I'm 53 by the way. My mum has had ataxia SCA6 for the past 18...

Hi, I would like to know whether a support group for us young ones (30-55) exist...

LOUISASAM

•6 years ago

9 Replies

Medicinal herbs as cure?

Hi All, DOES ANYONE BELIEVE THIS? KEEP SCROLLING SORRY COULD NOT LINKIFY. X Doesn’t it seem strange how we can be so technologically advanced as a culture yet...

Hi All, DOES ANYONE BELIEVE THIS? KEEP SCROLLING SORRY COULD NOT LINKIFY. X Does...

neta

•6 years ago

15 Replies

Pip

Just applied for pip for my partner. He's still battling away to keep working but I do all the cooking as there's been too many accidents and burns and the...

Just applied for pip for my partner. He's still battling away to keep working bu...

Alip-j

•6 years ago

14 Replies

FreeWheel

Bit expensive but very good: I recently bought the FreeWheel for my folding wheel chair for 2 family weddings in marquees in our fields and some beach trips....

Bit expensive but very good: I recently bought the FreeWheel for my folding whe...

Litty

•6 years ago

7 Replies

Cerebellum degeneration

Hi, Have any of you, heard about a cerebellum that stoppede degenerating ? Or is it nor normal that the disease will pause or stop ?

Hi, Have any of you, heard about a cerebellum that stoppede degenerating ? Or i...

Dsadk

•6 years ago

5 Replies

Anti GAD antibodies and Gluten

Does a strict gluten free diet help get rid of Anti GAD antibodies as well has the gluten antibodies? I've got Anti GAD Ataxia, Gluten Ataxia and Stiff person...

Does a strict gluten free diet help get rid of Anti GAD antibodies as well has t...

Colredrovers

•6 years ago

5 Replies

'Power naps'

Thought I'd hit rock bottom before lunch, tidying up the house etc (fortunately someone bought over lunch ready cooked on a tray) coordination gone to pieces....

Thought I'd hit rock bottom before lunch, tidying up the house etc (fortunately ...

Smallblackdog

•6 years ago

8 Replies

Anyone need Information and Support!

I just did the Ataxia survey and it seems that is where I am at, 78% of us in the same boat it seems. I have finally given up on the idea that I am going back...

I just did the Ataxia survey and it seems that is where I am at, 78% of us in th...

DeniseLB

•6 years ago

44 Replies

Another SCA1 cure being studied too slowly. PKA inhibitors.

So in my never ending quest to keep abreast of the research on cures for SCA1, I came across several articles and a patent application that are most...

So in my never ending quest to keep abreast of the research on cures for SCA1, I...

sunvox

•6 years ago

5 Replies

I have Spinocerebellar ataxia SCA 1

Hello people...diagnosed two weeks ago.

bulawayo8

•6 years ago

3 Replies

Low blood pressure?

Hi I've been experiencing more and more when I get up, stand up from sitting, extreme dizziness and lightheadedness which often leads to me falling down could...

Hi I've been experiencing more and more when I get up, stand up from sitting, ex...

SamGH

•6 years ago

7 Replies

general anesthetic

do u have any info of effects of general anesthetic on fragile x adult onset

jeffwelsh16

•6 years ago

2 Replies

idiopathic cerebellar ataxia

I've had cerebellar ataxia end of 2014. unknown cause they call it idiopathic.i am so fed up with it.. Does anyone else feel down with it. Sheffield where I...

I've had cerebellar ataxia end of 2014. unknown cause they call it idiopathic.i...

patsyday

•6 years ago

11 Replies

so much for that

went for the assessment for, is it ESA? and I was turned down, and received, like another member here.... ZERO points. I did appeal, and the decision came thru...

went for the assessment for, is it ESA? and I was turned down, and received, lik...

peterallison

•6 years ago

Be the first to reply

SPG7

Hi I've just been diagnosed with SPG7. I don't know what to expect. Can anyone help? Thanks

Hi I've just been diagnosed with SPG7. I don't know what to expect. Can anyone h...

Pineapple12

•6 years ago

2 Replies

PIP

Gi all I just had a call to arrange my face to face... i practically begged for a home visit. I gave up on ESA becsause they wouldn't allow it and were trying...

Gi all I just had a call to arrange my face to face... i practically begged for ...

kjtibby

•6 years ago

4 Replies

DAYCARE

Attending Daycare at Ataxia Centre to have a few tests,a bit concerned, does anyone know more about it?

Attending Daycare at Ataxia Centre to have a few tests,a bit concerned, does any...

benning

•6 years ago

Be the first to reply

Sleep and Symptoms of Ataxia

I have noticed that the one thing that always has the greatest effect upon the severity of my dizziness and vertigo is how much below my average sleep time was...

I have noticed that the one thing that always has the greatest effect upon the s...

jneilw51

•6 years ago

2 Replies

New here!!

Has anyone done a gluten free eating plan, and what are the results? I am asking because I read that is has a significant role in helping to slow the...

Has anyone done a gluten free eating plan, and what are the results? I am asking...

impulse4

•6 years ago

9 Replies

Has anyone else experienced the below?

Over the last few months I have had these funny spells. I have slurred speech and greater weakness down my left side and I'm even more wobbly than normal. I...

Over the last few months I have had these funny spells. I have slurred speech an...

Grapes12

•6 years ago

9 Replies

Trouble getting a diagnosis, any advice please.

Has anyone else had a problem with getting a diagnosis? And then finding out what has caused the Ataxia? I have been told that I have an ataxia and am on the...

Has anyone else had a problem with getting a diagnosis? And then finding out wha...

Grapes12

•6 years ago

8 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for August 2018

UC mandatory appeal...Tribunal

Vertigo

Hyperbaric Champer (Oxygen) Treatment for Ataxia

Ataxia Specialist In Scotland

East Sussex and Kent

Vibrating machine

Top ataxia consultant

Help

Do you know what food we suffering from the SCA3 should avoid eating ？

Is the a support group for the middle aged?

Medicinal herbs as cure?

Pip

FreeWheel

Cerebellum degeneration

Anti GAD antibodies and Gluten

'Power naps'

Anyone need Information and Support!

Another SCA1 cure being studied too slowly. PKA inhibitors.

I have Spinocerebellar ataxia SCA 1

Low blood pressure?

general anesthetic

idiopathic cerebellar ataxia

so much for that

SPG7

PIP

DAYCARE

Sleep and Symptoms of Ataxia

New here!!

Has anyone else experienced the below?

Trouble getting a diagnosis, any advice please.

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive