Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for June 2023

Sad Poem

A short but sad poem by DP (Disabled Paul) As I lay so quiet and so still I feel the cold, the damp and the chill I was hoping my life was on the mend But...

A short but sad poem by DP (Disabled Paul) As I lay so quiet and so still I fe...

paul456

•10 months ago

4 Replies

mobility issues

so ... I've gone from walking stick to crutches (pink !) to give me support around the house. Mobility scooter or powerchair on the horizon I think. The...

so ... I've gone from walking stick to crutches (pink !) to give me support arou...

Jellybean75

•10 months ago

5 Replies

Life Glider

Has anyone heard of or using a Life Glider? My Physio has told me about them and is hoping to get a rep to bring one for us to try but wanted to know of anyone...

Has anyone heard of or using a Life Glider? My Physio has told me about them and...

Tiggywinkles

•10 months ago

20 Replies

Want to take advantage of all our features? Just log in!

Swallowing

Could anybody tell me how throat feels with swallowing issues wit ataxia never had a problem before but wonder if swallowing problem is starting thankyou

Could anybody tell me how throat feels with swallowing issues wit ataxia never ...

Tazwaz

•10 months ago

7 Replies

Exercises in the evening

I do about 20-25 minutes of strength and stretching exercises every morning as soon as I get up. I have been told it's also good to do some "in the evening"....

I do about 20-25 minutes of strength and stretching exercises every morning as s...

edfosho

•10 months ago

5 Replies

Travel Insurance

I had an mri in January which identified significant cerebellum atrophy and diagnosed with progressive cerebellar ataxia. I am going through testing to try and...

I had an mri in January which identified significant cerebellum atrophy and diag...

Sea_

•10 months ago

7 Replies

Ferry

For the last several years, not anymore, I have taken the ferry from Dover to Calais or Dunkirk. There is a high ledge between the car place and the rest of...

For the last several years, not anymore, I have taken the ferry from Dover to Ca...

klazien

•10 months ago

Be the first to reply

Lumbar Puncture

Has anyone had anything useful come of a lumbar puncture?

Ostap

•10 months ago

7 Replies

AMS DE TYPE C

What dose ant one know about this condition please

7151

•10 months ago

8 Replies

EMG test

Hello all I hope you are doing the best you can. I have received a letter from Sheffield Hallam today and I’m being booked in for an EMG has anyone had this...

Hello all I hope you are doing the best you can. I have received a letter from ...

Guardsman68

•11 months ago

31 Replies

Severe Period Pains

Our daughter who has FA (16yrs) started getting severe cramps when she gets her period about a year ago. She started her periods when she was 11. She & her...

Our daughter who has FA (16yrs) started getting severe cramps when she gets her ...

Hidden

•11 months ago

6 Replies

Calming the central nervous system

Hi, I get quite a lot of pain from my idiopathic ataxia. Most often in my lower back and neck, but the pain can be in any muscle at all. I don't think that...

Hi, I get quite a lot of pain from my idiopathic ataxia. Most often in my lower...

ww-wibblywobbly

•11 months ago

1 Reply

Has anyone tried Lions Mane 1500mg capsules? They are apparently good for neurological problems. Thanks!

Diagnosed with SCA type 10 in December 2022. Male age 58. Midlands, UK.

SJP239

•11 months ago

23 Replies

NO I Won't introduce myself as I have tried several times and I'm sick of it thank you!

NO I Won't introduce myself as I have tried several times and I'm sick of it tha...

PorridgeForBreakfast

•11 months ago

12 Replies

Nicola Harris

Has anyone with ataxia and/or vestibular problems seen the specialist physio Nicolas Harris as a private patient and did you find the experience...

Has anyone with ataxia and/or vestibular problems seen the specialist physio Ni...

penelope2

•11 months ago

1 Reply

Help with a gluten free diet? Any gluten ataxia support groups?

After nearly 3 years of gluten free and dairy free diet, I would like to hear from others. Their personal stories and any support groups. There is so much...

After nearly 3 years of gluten free and dairy free diet, I would like to hear fr...

penelope2

•11 months ago

3 Replies

tiredness

Is it normal to much more tired in the afternoon and evening then in the morning?

Is it normal to much more tired in the afternoon and evening then in the morning...

klazien

•11 months ago

4 Replies

Ataxia Diet

Hello all Hoping your well and enjoying the weather. Has anybody tried the diet recommended by Ataxia uk that may help with certain symptoms in some people....

Hello all Hoping your well and enjoying the weather. Has anybody tried the die...

paul456

•11 months ago

12 Replies

Some positive news for those with SCA3

https://www.biopharmadive.com/news/biohaven-troriluzole-fda-application-spinocerebellar-ataxia/651629/ Biohaven sends latest drug to FDA, despite past trial...

https://www.biopharmadive.com/news/biohaven-troriluzole-fda-application-spinocer...

C2a2o2

•11 months ago

Be the first to reply

Muscle Stiffness and Pain

After decades of experiencing ataxia symptoms, I’ve reached the stage of experiencing stiffness and pain. For some reason this problem doesn’t seem to effect...

After decades of experiencing ataxia symptoms, I’ve reached the stage of experie...

wobblybee

•11 months ago

22 Replies

Search posts

Latest poll

See all polls

How long have you or your relative/friend been diagnosed with ataxia?

Vote

Topics

All posts(503)

All things Ataxia UK(464)

Research projects(38)

Our publications(1)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for June 2023

Sad Poem

mobility issues

Life Glider

Swallowing

Exercises in the evening

Travel Insurance

Ferry

Lumbar Puncture

AMS DE TYPE C

EMG test

Severe Period Pains

Calming the central nervous system

Has anyone tried Lions Mane 1500mg capsules? They are apparently good for neurological problems. Thanks!

NO I Won't introduce myself as I have tried several times and I'm sick of it thank you!

Nicola Harris

Help with a gluten free diet? Any gluten ataxia support groups?

tiredness

Ataxia Diet

Some positive news for those with SCA3

Muscle Stiffness and Pain

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive