Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,084 members•4,658 posts

All posts for April 2023

Homéopathie

Homeopathic Remedies For AtaxiaAtaxia is a neurological condition in which the affected person exhibits a lack of voluntary coordination of muscles. The person...

Homeopathic Remedies For AtaxiaAtaxia is a neurological condition in which the a...

7151

•2 years ago

14 Replies

🙂 Join a Webinair discussing SCA1

Join NAF next Thursday, May 4th at 12 pm CDT for our webinar series on SCA1. During this webinar, clinical expert Dr. Sharan Srinivasan will give us insight...

Join NAF next Thursday, May 4th at 12 pm CDT for our webinar series on SCA1. Dur...

wobblybee

•2 years ago

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falls

Has anybody else had falls for the same reason I had? After knowing that automatic movements that were easy before the Ataxia, cannot be done easily anymore,...

Has anybody else had falls for the same reason I had? After knowing that automa...

klazien

•2 years ago

6 Replies

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Biogen BIIB 132

Today, Biogen made the decision to stop the MERA study for Spinocerebellar Ataxia type 3. This decision was made after careful assessment of the nonclinical...

Today, Biogen made the decision to stop the MERA study for Spinocerebellar Ataxi...

wobblybee

•2 years ago

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London marathon

Hello friends, hope you are all as well as can be. I would like to say a massive thank you to group of runners running in the London marathon for Ataxia uk...

Hello friends, hope you are all as well as can be. I would like to say a mass...

Guardsman68

•2 years ago

10 Replies

Stress Awareness Month

April is Stress Awareness Month! 🧠 Life can be overwhelming sometimes, so please do not forget to take a moment to breathe. Breathe in peace....

April is Stress Awareness Month! 🧠 Life can be overwhelming sometimes, so plea...

Irmmy

•2 years ago

1 Reply

Speech issues

My husband has finally been diagnosed with ILOA after almost 3 years fighting the GP for answers.His balance is a bit "off" when walking but the biggest issue...

My husband has finally been diagnosed with ILOA after almost 3 years fighting th...

SRUE

•2 years ago

9 Replies

opening of eyelids

Has anybody ever experienced difficulty in opening their eyelids?

klazien

•2 years ago

21 Replies

Medication

yesterday I watched a Q and A with Dr Periman in the U S . She mentioned several drugs that could be used for helping tremors and balance. I wonder if these...

yesterday I watched a Q and A with Dr Periman in the U S . She mentioned sever...

Knittlng

•2 years ago

10 Replies

My family does not want to be tested for Ataxia

I have ataxia, but do not know what kind. My brother has canvas, but never officially tested for it. My genealogist suggested to ask my brother to get tested...

I have ataxia, but do not know what kind. My brother has canvas, but never offi...

coupons

•2 years ago

8 Replies

Shopping

Mobility scooters are not for people with limited mobility! Sounds daft, perhaps. What I mean is that a mobility scooter is great when you are unable to...

Mobility scooters are not for people with limited mobility! Sounds daft, perh...

Telegraphist

•2 years ago

10 Replies

Deep Brain Stimulation

Does anyone have recent personal experience of DBS for tremors? How successful was it as a treatment? Anecdotal information I can probably research for myself....

Does anyone have recent personal experience of DBS for tremors? How successful w...

Ostap

•2 years ago

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Tremors

I have the whole range of Cerebellar Ataxia symptoms. Clearly poor balance is one of the more horrible ones, but tremors can be be as bad in my opinion. Who...

I have the whole range of Cerebellar Ataxia symptoms. Clearly poor balance is on...

Ostap

•2 years ago

4 Replies

idiopathic cerebellar ataxia

hi everyone been diagnosed with idiopathic cerebellar ataxia I am 51 this year can walk by my self at moment how bad will it get does not say on internet

hi everyone been diagnosed with idiopathic cerebellar ataxia I am 51 this year c...

Wazzer72

•2 years ago

22 Replies

Pregnant with ataxia

Hi folks I am 31, have sca3 and am 15 weeks pregnant. I’m unsteady , with slight balance issues. I still work but I’m concerned with how my balance will be...

Hi folks I am 31, have sca3 and am 15 weeks pregnant. I’m unsteady , with slig...

Itachi92

•2 years ago

10 Replies

back into work

hi, I have recently encountered some financial difficulties and wanted to get back to some form of paid work, only part time prob 1-2 days a week as I had to...

hi, I have recently encountered some financial difficulties and wanted to get ba...

EmWakie

•2 years ago

2 Replies

A Webinair with a Specialist Neurologist

🙂 I’ve joined these Webinairs myself, and found them very interesting Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A...

🙂 I’ve joined these Webinairs myself, and found them very interesting Dr. Sus...

wobblybee

•2 years ago

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30 years of slow degeneration

Hi Everyone This is my first posting, but I read your posts regularly. I have suffered the effects of Ataxia for over 30 years now and thankfully the...

Hi Everyone This is my first posting, but I read your posts regularly. I ha...

Astonmad

•2 years ago

12 Replies

NHS Prepayment Certificate

Some of us may be prescribed HRT..and may not know about savings NHS Hormone Replacement Therapy Prescription Prepayment Certificate (HRT PPC)...

Some of us may be prescribed HRT..and may not know about savings NHS Hormone ...

wobblybee

•2 years ago

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fractured L1, L2 andL3

I tripped pn the cat and fell and fractured the lumber region of my spine. I had surgery and am recovering well and walkiing a little with a walker. Although...

I tripped pn the cat and fell and fractured the lumber region of my spine. I had...

isabelalfaiate

•2 years ago

6 Replies

Bungee jump

I done a bungee jump today I got dressed in all of the safety gear with my heart beating like a drum, I got more and more nervous as I stepped closer and then...

I done a bungee jump today I got dressed in all of the safety gear with my heart...

paul456

•2 years ago

4 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for April 2023

Homéopathie

🙂 Join a Webinair discussing SCA1

falls

Biogen BIIB 132

London marathon

Stress Awareness Month

Speech issues

opening of eyelids

Medication

My family does not want to be tested for Ataxia

Shopping

Deep Brain Stimulation

Tremors

idiopathic cerebellar ataxia

Pregnant with ataxia

back into work

A Webinair with a Specialist Neurologist

30 years of slow degeneration

NHS Prepayment Certificate

fractured L1, L2 andL3

Bungee jump

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive