Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for September 2020

Cbd for my tremors and help me sleep sca

Hi is that right I could get cbd off my specialist but not gp. As I rung my specialist secretary today enquiring and she said oh don’t think she does and tgat...

Hi is that right I could get cbd off my specialist but not gp. As I rung my spe...

Pekingese2

•4 years ago

9 Replies

HBOT

Has anyone tried Hyperbaric oxygen treatment for ataxia? It increases brain cell growth. Thanks Tina

Has anyone tried Hyperbaric oxygen treatment for ataxia? It increases brain cel...

Mneutz

•4 years ago

4 Replies

Health Professionals

Hi All, Could someone please tell me which health professionals I should be under. I feel as if I have to deal with this dreadful decease alone. Thank you.

Hi All, Could someone please tell me which health professionals I should be und...

Jacqui-A

•4 years ago

2 Replies

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Esophagus Cancer

Last week I had a fall from my Cerebellar Ataxia an finally went to the ER about 5 days later. They did a CAT Scan an discovered that I had broken 2 lower...

Last week I had a fall from my Cerebellar Ataxia an finally went to the ER about...

terryzx

•4 years ago

15 Replies

Gene variant in 2005

Hey everyone!! I have a diagnosis of Episodic Ataxia and recently seen my new neurologist that’s very knowledgeable in the area and knows my entire family...

Hey everyone!! I have a diagnosis of Episodic Ataxia and recently seen my new ne...

Episodic_Ataxia

•4 years ago

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Meeting

Not sure if anybody is interested in this https://ataxia.org/el-pfdd-meeting/ If your not do nothing. If your interested do something. That's my brilliant...

Not sure if anybody is interested in this https://ataxia.org/el-pfdd-meeting/...

Hidden

•4 years ago

1 Reply

Ataxia Awareness day photo franes

Good afternoon there to you all. Can anyone tell me if there’s any International Ataxia Awareness day photo profile frames for social media photos out there?...

Good afternoon there to you all. Can anyone tell me if there’s any International...

Legs-alive

•4 years ago

5 Replies

Drugs that help with blurred vision and balance

Hi all. I saw a post on social media from Ataxia Uk that said that there are some drugs available to help (not cure) with blurred vision and balance. Do you...

Hi all. I saw a post on social media from Ataxia Uk that said that there are som...

Larobby

•4 years ago

2 Replies

New to ataxia

Hi Everyone Newly diagnosed after 3 yr search and deterioration Dont know what plan I should follow to help re chronic walking....inc severe spinal...

Hi Everyone Newly diagnosed after 3 yr search and deterioration Dont know wh...

Fortoday

•4 years ago

25 Replies

Symptoms in my Cousins

My Uncle lives with us and he has two kids. They r infants , one of them s wobbly and ones eyesight is weak. I wanted to ask weather they can get my Ataxia ,...

My Uncle lives with us and he has two kids. They r infants , one of them s wobbl...

Ayeshaabeer20

•4 years ago

4 Replies

Signs and symptoms in adults

Is a rare disorder rare, because it doesn't happen often, or, isn't diagnosed often? Is there a difference? Which came first...................

Is a rare disorder rare, because it doesn't happen often, or, isn't diagnosed o...

scruffycat

•4 years ago

4 Replies

$64000 question

I know this is like the $64000 question but - is there anything else I can do to aid movement and balance, I walk my dog for 20-30 minutes everyday which is a...

I know this is like the $64000 question but - is there anything else I can do to...

Athywhite

•4 years ago

11 Replies

Contacting the Ataxia UK office

Dear all A message from Ataxia UK... 'We understand that it has been difficult to contact us during the lockdown these past few months, which is why we are...

Dear all A message from Ataxia UK... 'We understand that it has been difficult t...

HarryB

Administrator•4 years ago

5 Replies

Ataxia related accessories and clothes

Hi guys. I'm on this group for a long time now and I decided to share my recent works with you... Part of coping with ataxia was creating some ataxia-related...

Hi guys. I'm on this group for a long time now and I decided to share my recent ...

_ada

•4 years ago

1 Reply

Ataxia

Hi all,I had a classic the other day. In a phone appointment with my GP practice I was asked by the doctor,who i have never met if i had been drinking.I had to...

Hi all,I had a classic the other day. In a phone appointment with my GP practice...

Guido37

•4 years ago

17 Replies

Breaking

Who remembers a time when you could watch a program on TV and if something really important happened, it would be interupted, and you'd know what was going on....

Who remembers a time when you could watch a program on TV and if something reall...

scruffycat

•4 years ago

1 Reply

Wanting Advice on how to explain CA with mild atrophy at a pre-op assessment.

First of all I’d like to say a HUGE thank you to Ataxia Uk & all involved on receiving both my husband & my own photo ID cards, they have really boosted my...

First of all I’d like to say a HUGE thank you to Ataxia Uk & all involved on rec...

Legs-alive

•4 years ago

1 Reply

Itchy skin and SCA 6

Hi ataxia Friends I wanted to know if anyone experiences itchy skin? Recently it feels like a little pin prick that makes me itchy. It happens everywhere,...

Hi ataxia Friends I wanted to know if anyone experiences itchy skin? Recently i...

Mneutz

•4 years ago

11 Replies

Confused!

Originally one neurologist diagnosed my condition as Mayasthenia Gravis. Later others attributed it to Cerebellar Ataxia having seen MRI, CT etc. Recently...

Originally one neurologist diagnosed my condition as Mayasthenia Gravis. Later o...

dennisataxia

•4 years ago

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Voxxlife wellness socks and other products.

Has any one tried the Voxxlife products and if you do have you seen any improvements. I purchased the wellness socks for my husband who has Cerebellum Ataxia....

Has any one tried the Voxxlife products and if you do have you seen any improvem...

HOTRODS

•4 years ago

1 Reply

DRY MOUTH

We are all so different but this works for me wonderfully., For weeks now I’ve had a really dry mouth and nothing I drank could quench my thirst and speaking...

We are all so different but this works for me wonderfully., For weeks now I’ve...

Litty

•4 years ago

11 Replies

Arm weakness

I have cerebrellar ataxia for the past 20 years but recently I am experiencing pain and weakness in my upper arms has anyone else experienced this , would be...

I have cerebrellar ataxia for the past 20 years but recently I am experiencing p...

maggsataxia

•4 years ago

11 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for September 2020

Cbd for my tremors and help me sleep sca

HBOT

Health Professionals

Esophagus Cancer

Gene variant in 2005

Meeting

Ataxia Awareness day photo franes

Drugs that help with blurred vision and balance

New to ataxia

Symptoms in my Cousins

Signs and symptoms in adults

$64000 question

Contacting the Ataxia UK office

Ataxia related accessories and clothes

Ataxia

Breaking

Wanting Advice on how to explain CA with mild atrophy at a pre-op assessment.

Itchy skin and SCA 6

Confused!

Voxxlife wellness socks and other products.

DRY MOUTH

Arm weakness

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive