Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for January 2019

Ataxia - my description

Ataxia I slur my words; I cannot write, not even sign my name. I drop my food; need help to bathe, To others I look lame. I’ve fallen down and elbow......

Ataxia I slur my words; I cannot write, not even sign my name. I drop my food...

ConfusedAtaxian

•6 years ago

33 Replies

Lower back/hip pain

Have any of you ever injured or had pain in your Sacroiliac joint? If so how did you manage, what did you do to help recovery etc. On the same note do any of...

Have any of you ever injured or had pain in your Sacroiliac joint? If so how did...

Grapes12

•6 years ago

8 Replies

Freaked out

I have been diagnosed with ataxia and the many symtoms I've had for a few yrs make sense. I am now totally freaked out and can think of nothing but suicide. I...

I have been diagnosed with ataxia and the many symtoms I've had for a few yrs ma...

Carolss

•6 years ago

13 Replies

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Praying to die

I am dizzy all the time, I cannot live my life, waiting to die on my bed. Hoping a sponsor for stem cell treatments.

I am dizzy all the time, I cannot live my life, waiting to die on my bed. Hoping...

Bobby1124

•6 years ago

14 Replies

My Poem on Ataxia

Again I reveal my inner thoughts as to how I feel for what I have been going through this past few years. As you may have read my first thoughts on my Ataxia...

Again I reveal my inner thoughts as to how I feel for what I have been going thr...

4Heavenly

•6 years ago

7 Replies

Stem Cell therapy

Has anyone here or anyone you know had stem cell therapy for Ataxia i have scar10.

Has anyone here or anyone you know had stem cell therapy for Ataxia i have scar1...

Tazmurray

•6 years ago

3 Replies

Tremors Bracelet

Is anyone familiar with Mike Ebling's ( author of "not impossible") bracelet that helps control tremors in the hands? I'm interested in getting more...

Is anyone familiar with Mike Ebling's ( author of "not impossible") bracelet tha...

OKCBILL

•6 years ago

1 Reply

Psoriasis

I have been suffering for alot of years with Psoriasis. I have recently discovered Exorex and I also use Calcipotriol ointment . Im pretty sure that its...

I have been suffering for alot of years with Psoriasis. I have recently discove...

youngbutold

•6 years ago

3 Replies

4,7,8 BREATH ???

I want to share a trick I find very useful in dealing with my anxiety and stress. BREATH IN FOR DEEPLY FOR 4 SECONDS HOLD IT IN FOR 7 SECONDS AND THEN BREATH...

I want to share a trick I find very useful in dealing with my anxiety and stress...

benning

•6 years ago

4 Replies

WARNING - SCAMMER

Hi all. BEWARE While making a database of Support Group members, I came across an email address linked to a phone number which has been reported by numerous...

Hi all. BEWARE While making a database of Support Group members, I came across a...

Capricorn9157

•6 years ago

3 Replies

Advice needed on adjustable bed and mattress

Do any of you have an adjustable bed/and or what type of mattress do you sleep on. I have slept on my side all my life but am now finding this difficult as my...

Do any of you have an adjustable bed/and or what type of mattress do you sleep o...

ConantheLibrarian

•6 years ago

11 Replies

Wheelchair taxi in London

I am hoping to use a wheelchair accessible taxi from London Waterloo to the London Ataxia Centre. Can anyone recommend a company?

I am hoping to use a wheelchair accessible taxi from London Waterloo to the Lond...

SaraPhillips

•6 years ago

3 Replies

Looking for support / advise

My husband, 63, was diagnosed 3 months ago with Gait ataxia due to "moderate carabellar atrophy". He also has sensory loss in his right arm and leg. He used to...

My husband, 63, was diagnosed 3 months ago with Gait ataxia due to "moderate car...

Stumps55

•6 years ago

11 Replies

Recommendations

Hi all, just a quick question..... Those of you who drive, what cars do you drive and what would you recommend? I'm having problems getting in and out of...

Hi all, just a quick question..... Those of you who drive, what cars do you dri...

LOUISASAM

•6 years ago

10 Replies

Back keeps giving way

Hi all, My ankles, knees and hips have been giving way for many years. Even before I knew that I had Ataxia. When they give way, I now grab something to hold...

Hi all, My ankles, knees and hips have been giving way for many years. Even bef...

ww-wibblywobbly

•6 years ago

5 Replies

CEA Card

I’m unsure if anyone knows about this but thought I’d share it on here. I came across this scheme whilst on the Ataxia uk Facebook page, it’s a scheme that...

I’m unsure if anyone knows about this but thought I’d share it on here. I came a...

Legs-alive

•6 years ago

10 Replies

The China Study

Hi All, I have recently bought the above book and it seems that dairy products are bad for us along with animal food products, the book suggests we eat plant...

Hi All, I have recently bought the above book and it seems that dairy products a...

Jacqui-A

•6 years ago

4 Replies

Sth Yorkshire Support Group

Hi all. Do you live in the area, want to get involved but can't attend daytime meetings in Sheffield? We are considering having a second monthly meeting 'out...

Hi all. Do you live in the area, want to get involved but can't attend daytime m...

Capricorn9157

•6 years ago

Be the first to reply

Possible treatment for Ataxia

Guys in OZ have found a treatment that slows and even stops MND degeneration happening. Might have a chance for Ataxia, you never know...

Guys in OZ have found a treatment that slows and even stops MND degeneration hap...

Driven1

•6 years ago

5 Replies

blue badge

Is anyone having trouble applying for blue badge for car.If there NOT on any benifits

Is anyone having trouble applying for blue badge for car.If there NOT on any ben...

golfingsue

•6 years ago

17 Replies

Ataxia

I am about to start on CBT oil on suggestion from a friend.As usual there are many questions I have. I am 54 and weight around 14.5 stones. What dosage and how...

I am about to start on CBT oil on suggestion from a friend.As usual there are ma...

jasminemarigold

•6 years ago

2 Replies

Sheffield February meeting

Good afternoon all. South Yorks support group's next meeting will be Thursday 7th February at The Circle, Rockingham Lane, Sheffield at 11am. All are welcome,...

Good afternoon all. South Yorks support group's next meeting will be Thursday 7t...

Capricorn9157

•6 years ago

Be the first to reply

Possible help with dazzling lights.

I have been dazzled by headlights most of my driving life. Any lights hurt my eyes. There were probably a couple of reasons, I also suffered very badly for...

I have been dazzled by headlights most of my driving life. Any lights hurt my ey...

pinjem

•6 years ago

3 Replies

Kinesiology

Has anyone tried kinesiology? Thanks

ilhana

•6 years ago

1 Reply

Help

After several bloods being taken and an MRI scan I have Cerebella Atrophy and also anti-Purkinge antibodies which can be associated with Cerebella...

After several bloods being taken and an MRI scan I have Cerebella Atrophy and al...

Jacqui-A

•6 years ago

11 Replies

Hemp oil versus cannabis oil

Hi, With reference to a recent post about cannabis oil I just want to make everyone aware of something. The oil in the health shops is usually hemp oil. If...

Hi, With reference to a recent post about cannabis oil I just want to make ever...

ww-wibblywobbly

•6 years ago

3 Replies

Ataxia

I have been diagnosed as having ataxia,consultant leaving it there.I take green tea,pomegranate juice,Vitamin E-400 and B12 on advised from him.I take...

I have been diagnosed as having ataxia,consultant leaving it there.I take green...

jasminemarigold

•6 years ago

6 Replies

What supplements can I try?

Hi, just been diagnosed with SCA 2. Not really news as my mother has it. What I am wondering is if there are any supplements (eg vits, anti oxidant etc), you...

Hi, just been diagnosed with SCA 2. Not really news as my mother has it. What I ...

Kaap

•6 years ago

16 Replies

Ataxia SA

Hi there All Well - I am in Cape Town South Africa - was diagnosed with Ataxia in 2012 - been on my own ever since - and now certainly starting to battle - we...

Hi there All Well - I am in Cape Town South Africa - was diagnosed with Ataxia i...

Sablelodge

•6 years ago

10 Replies

Betahistine

How long can you take betahystine for? My doc prescribed them for me for vertigo, I have had a MRI scan done which showed nothing out of the ordinary. However...

How long can you take betahystine for? My doc prescribed them for me for vertigo...

Rottiemummy

•6 years ago

5 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for January 2019

Ataxia - my description

Lower back/hip pain

Freaked out

Praying to die

My Poem on Ataxia

Stem Cell therapy

Tremors Bracelet

Psoriasis

4,7,8 BREATH ???

WARNING - SCAMMER

Advice needed on adjustable bed and mattress

Wheelchair taxi in London

Looking for support / advise

Recommendations

Back keeps giving way

CEA Card

The China Study

Sth Yorkshire Support Group

Possible treatment for Ataxia

blue badge

Ataxia

Sheffield February meeting

Possible help with dazzling lights.

Kinesiology

Help

Hemp oil versus cannabis oil

Ataxia

What supplements can I try?

Ataxia SA

Betahistine

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive