muscle spasms: does anyone know why the muscles in... - Ataxia UK

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muscle spasms

scruffycat profile image
22 Replies

does anyone know why the muscles in one leg only, suddenly go very hard? Sometimes this will be my calf, sotimes higher (my thigh). My Physoi says, it's most likely to be nerve damage from my brain injury. But it might not!

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scruffycat profile image
scruffycat
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22 Replies
wobblybee profile image
wobblybee

Hi Scruffycat,

One of my calf muscles occasionally goes into spasm and becomes hard to the touch, it usually relaxes soon afterwards. I have SCA but don't specifically associate the spasm

to the condition, it can happen to anybody.

scruffycat profile image
scruffycat in reply towobblybee

interesting diagnosis. I've not had that one.

scruffycat profile image
scruffycat in reply toscruffycat

I've done some searching on the internet, and nothing is ever conclusive, but we could be getting closer.

wobblybee profile image
wobblybee in reply toscruffycat

I think most of us on this site have Spino Cerebellar Ataxia of one type

or another. Could one of the other HealthUnlocked Sites offer you more

information relating to your specific condition? It's worth a look.

scruffycat profile image
scruffycat in reply towobblybee

I agree with your sugestion, the only thing stopping me at the moment is that too many "correct diagnoses" is not only potentially damaging to my health, it is also too much for my tiny mind to cope with!!!!

wobblybee profile image
wobblybee in reply toscruffycat

It took me years to get a diagnosis that was reliable. At

times I actually thought I was going mad, loads of weird symptoms and no-one took me seriously. I read about your horse, he obviously gives you a lot of pleasure, that's

something to be glad about. How often are you able to see him?

scruffycat profile image
scruffycat in reply towobblybee

My wife, it's all down to her. She researched it and everything. I started somewhere else about 5 years ago. Again the peaople were excellant, I was so floppy, it took loads of helpers, just to hold me on.

My wife broke her hand a few weeks ago, so I havn't seen him for 3 weeks. Normally Iride him about 1 hour each week (apart from school hols)

wobblybee profile image
wobblybee in reply toscruffycat

What an achievement to have such a rapour, Dickin sounds a very special horse.

I hope your wife's hand heals quickly, well

done to her for organising things.

Beryl

scruffycat profile image
scruffycat in reply towobblybee

The hospital has a look at her hand in just over a week, so then we'll know better when she'll be able to drive.

Exactly, well done to her. Youy can have fun and therapy at the same time

PattiTilden profile image
PattiTilden in reply towobblybee

Hi Beryl, Please see my response to Lynn about supplements that do help with the spasms. I will write you back soon. I just have had too much company lately, which I do need to "take advantage of", as I am still unpacking and getting settled in. More later!! Patti

twinkle2508 profile image
twinkle2508

i get these, there very annoying.....i've put them down to Ataxia but i've yet to ask my speacialist, so i will be going to see him in june, i shall ask him then

scruffycat profile image
scruffycat

thanks, and you're right, they are annoying.

Donnybluewayne profile image
Donnybluewayne

The cramps and spasms I believe are related to Ataxia (in my case anyway), I get it/them in the calf and big toe area its awfully painful. The doctors are so non committal on all things ataxic. I had a gastric bypass about 3 years ago, they were the same on that condition, mainly, 'everybody is different' whatever your ailment. Same old story different condition, they must learn 'stock answers' in medical school, do they teach politicians at the same school I wonder? Sorry rant over folks. Yours, frustrated, Ataxialand.

scruffycat profile image
scruffycat in reply toDonnybluewayne

maybe they should give ataxia the by line "the frustration desease"

february profile image
february

I was diagnosed 10 years ago with Sporadic Cerebellar Ataxia (unknown cause). My muscles spasm, and my neurologist says that he sees this symptom in many patients with ataxia. Anyway, the drug "Baclofen" helps some people. I am extremely sensitive to medications, and although it helped, the side effects were too much for me. Therefore, I find if I do stretches each day as well as exercises for strength and balance, I get relief from my spasms. Of course, everyone is different in terms of what helps them. I would suggest you talk with your neurologist or doctor for advice..., ;o)

scruffycat profile image
scruffycat

Same as Ithought really. I've nothing to lose anyway,

Could it be Stiff Person Syndrome? This has muscles stiffening and ataxia as its symptoms.

Exercise and other things can set the spasms off. Worth exploring.

scruffycat profile image
scruffycat in reply to

Too much exercise. Interesting.

wibblywobbly profile image
wibblywobbly in reply toscruffycat

def can confirm that too much excercise can do this - see my end of re-hab blogg. Stiff legs now. Pain in fingers and arms worse too

scruffycat profile image
scruffycat in reply towibblywobbly

Do you know if muscles could go into spsm because they are working too hard because of misalignment or nerve damage?

pennypoop profile image
pennypoop

I've had bad leg for almost a week, seems to stretch from my knee up to my higher thigh, not sure whether its muscle spasam thou. It started feeling like 'creepy crawlers' or itching, then it turned to 'fireworks and electric shocks in my thigh, it was horrible and making me jumpy and restless. It seems to be getting better, its now only the odd itch, but its worse at night, so lost 4 nights sleep over it!

PattiTilden profile image
PattiTilden

Hi, I have the same thing and I do believe that it is caused by nerve damage in the body. I never had that before the many drugs I was given, which have caused brain and nerve damage. See my message to Lynn, as I have mentioned to things that have helped me a lot. Good luck, and let me know how it goes! Patti

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