Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,084 members•4,658 posts

All posts for January 2016

Raising money legally in the UK

Hi all, I was talking about my friend to the people at work and they all offered to help. We'll have a coffee morning fundraising, but I don't know if we need...

Hi all, I was talking about my friend to the people at work and they all offered...

•9 years ago

walking with cane

Hi guys I walk in house without cane but now when I go out I use my husbands arm cannot go outside on my own. Any tips on getting me walking again outside...

Hi guys I walk in house without cane but now when I go out I use my husbands ar...

•9 years ago

Gadgets to help

Hi all, it will be my friend's birthday next month and my friends and family want to buy her something to help her cope. Age has a wheelchair and rollator....

Hi all, it will be my friend's birthday next month and my friends and family wan...

•9 years ago

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Bad News

So today, my daughter's father is coming around to speak to her about his condition. It seems as if he has inherited Spinocerebellar Ataxia Type 3 from his...

So today, my daughter's father is coming around to speak to her about his condit...

•9 years ago

Does any of this sound femilier?

I was told that during my stay in hospital, my ward was closed due to the MRSA virus. Does this happen often?

I was told that during my stay in hospital, my ward was closed due to the MRSA v...

•9 years ago

Tiredness

After having two nasty falls on face, I'm so very tired to the point of exhaustion . I went to A&E and I have post concussion syndrome Anyone heard of this ?

After having two nasty falls on face, I'm so very tired to the point of exhausti...

•9 years ago

Permanent care

Hi all, my friend diagnosed with CA only received a carer coming in 4 times a day when it is obvious that she needs constant care. Can you please tell me what...

Hi all, my friend diagnosed with CA only received a carer coming in 4 times a da...

•9 years ago

Cerebrolysin

Hi all, My friend has been diagnosed with C A. It started with just the left leg being affected and the GP or neurologist never gave her a clear diagnostic....

Hi all, My friend has been diagnosed with C A. It started with just the left leg...

•9 years ago

Ataxia plus

I have FA and also have an under active thyroid and the today I've just been told by 2 is low and needs injections. Just after any advice if anyone has...

I have FA and also have an under active thyroid and the today I've just been tol...

•9 years ago

Pregnancy

Hi, I was diagnosed with SCA1 in 2011. I don't have any symptoms yet. My dad had it (he died last year, he was 67) and my sister (she is 40 and mostly...

Hi, I was diagnosed with SCA1 in 2011. I don't have any symptoms yet. My dad had...

•9 years ago

Mobile grab rail for bath/shower

I have CA (unknown) and am fortunate that I can still get around with help. So for the past four years I have taken a holiday in Chile. It is tailor-made so I...

I have CA (unknown) and am fortunate that I can still get around with help. So ...

•9 years ago

Disabled Living Foundation

Many us of need answers/ solutions just to cope with everyday living practicalities. 😊 DLF is a national charity providing impartial advice, information and...

Many us of need answers/ solutions just to cope with everyday living practicalit...

•9 years ago

Light headed 24/7

Does anyone else just feel drunk all of the time?

Does anyone else just feel drunk all of the time?

•9 years ago

Weight gain and exercise

My dilemma is I've had a dog for 14.5 years and I unfortunately lost him last April. I am now on long term sick stuck in as am afraid to go out on my own and...

My dilemma is I've had a dog for 14.5 years and I unfortunately lost him last Ap...

•9 years ago

Stem cells

It seems that stem cell therapy seems to be all the rage at the moment. Is there anywhere in the UK doing any work in this area? Specifically MS OR Ataxia but,...

It seems that stem cell therapy seems to be all the rage at the moment. Is there...

•9 years ago

Two practical issues

Can anyone help with two problems? Turning in bed and being weighed.

Can anyone help with two problems? Turning in bed and being weighed.

•9 years ago

Falls getting worse

Hi all. Been very quiet for a while, I'm feeling my depression is rearing its ugly head again and to make it worse I fell over Christmas and cracked a rib then...

Hi all. Been very quiet for a while, I'm feeling my depression is rearing its ug...

•9 years ago

Folding invalid scooters

I am looking for a lightweight folding invalid scooter which will fold easily to go in the boot of my car. Unfortunately it will be my wife who will have to...

I am looking for a lightweight folding invalid scooter which will fold easily to...

•9 years ago

Restless Leg Syndrome

Hi, During the recent wet weather, my RLS has seemed so much worse. I wondered if others have had the same problem and whether you have found anything to help...

Hi, During the recent wet weather, my RLS has seemed so much worse. I wondered i...

•9 years ago

A rare deficiency in Cerbellar Ataxia

Is there anyone out there with the same cause of ataxia as me. I have a mutant gene passed on to me by my parents that results in a deficiency of the Emzyme...

Is there anyone out there with the same cause of ataxia as me. I have a mutant ...

•9 years ago

Glasses suitable for Nystagmus

Does anyone who has Nystagmus have any experience of the best glasses for this problem. Although I think two pairs of glasses might be the answer ( one for...

Does anyone who has Nystagmus have any experience of the best glasses for this p...

•9 years ago

Accelerated Access Review Survey

The Accelerated Access Review (AAR) aims to speed up access to transformative drugs, devices and diagnostics for NHS patients. The interim report, published on...

The Accelerated Access Review (AAR) aims to speed up access to transformative dr...

•9 years ago

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Disabled toilet alarms

Hello I need to buy an emergency alarm for a disabled toilet - but the alarm bell needs to be in my brother's house next door. Please can someone tell me where...

Hello I need to buy an emergency alarm for a disabled toilet - but the alarm bel...

•9 years ago

Hi i am 41 and have just been diagnosed with episodic ataxia type 1

Anyone give any advice. Have been told it's quite rare

Anyone give any advice. Have been told it's quite rare

•9 years ago

Do prisms help nystagmus and balance?

Hi, I would be very grateful if anyone who has any form of prism in their glasses would let me know whether this has helped their nystagmus and balance....

Hi, I would be very grateful if anyone who has any form of prism in their glas...

•9 years ago

DRIVING LICENCE

My licence expired at the end of last March (I have been on a 3 year licence since becoming an insulin dependent diabetic) and I had applied for a replacement...

My licence expired at the end of last March (I have been on a 3 year licence sin...

•9 years ago

New year and new toys to play with.

As part of my continuing search for ways to combat SCA I have invested in some new tech. In the USA the army has taken over research into the use of the Pons...

As part of my continuing search for ways to combat SCA I have invested in some n...

•9 years ago

Happy new year to everyone.

Wishing you all a happy, positive and healthy as possible 2016. Thanks to all of you. This site really has helped me with your advice, and encouragement

Wishing you all a happy, positive and healthy as possible 2016. Thanks to all of...

•9 years ago

Happy New Year 2016

I'd like to wish everyone the very best for 2016. I'd particularly like to thank everyone at Ataxia UK. 2015 was a "difficult" year for me personally, and...

I'd like to wish everyone the very best for 2016. I'd particularly like to than...

•9 years ago

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