Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,037 members • 4,576 posts

All posts for November 2022

Do gooders

Does anyone else get annoyed with do Gooders?I was leaving a pub tonight and a woman ( didn't know her, hadn't spoken to her tonight) tried to help me put my...

Does anyone else get annoyed with do Gooders?I was leaving a pub tonight and a w...

Eysteinsson

•1 year ago

19 Replies

Essential Tremors

Does anyone have any tips for managing essential tremors? In the last 12 months this has become a bigger issue for me than my really poor balance. Cups, tooth...

Does anyone have any tips for managing essential tremors? In the last 12 months ...

Ostap

•1 year ago

7 Replies

Give the Gift of Support

𝐇𝐞𝐥𝐩 𝐰𝐢𝐭𝐡 𝐛𝐞𝐧𝐞𝐟𝐢𝐭𝐬 𝐢𝐬 𝐣𝐮𝐬𝐭 𝐨𝐧𝐞 𝐨𝐟 𝐭𝐡𝐞 𝐦𝐚𝐧𝐲 𝐰𝐚𝐲𝐬 𝐭𝐡𝐞 𝐀𝐭𝐚𝐱𝐢𝐚 𝐔𝐊 𝐇𝐞𝐥𝐩𝐥𝐢𝐧𝐞 𝐢𝐬 𝐡𝐞𝐫𝐞 𝐭𝐨...

𝐇𝐞𝐥𝐩 𝐰𝐢𝐭𝐡 𝐛𝐞𝐧𝐞𝐟𝐢𝐭𝐬 𝐢𝐬 𝐣𝐮𝐬𝐭 𝐨𝐧𝐞 𝐨𝐟 𝐭𝐡𝐞 𝐦𝐚𝐧𝐲 𝐰�...

Irmmy

•1 year ago

1 Reply

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Controversial!

This is probably a controversial subject.But has anyone tried: CBD or GABA or L-thianine or anything that is a bit off the grid? Maybe high dose supplements...

This is probably a controversial subject.But has anyone tried: CBD or GABA or L-...

penelope2

•1 year ago

12 Replies

Losing strength

I seem to have lost my strength, I cant move pieces of furniture like I used too a couple of years ago even lifting a full kettle or picking up full shopping...

I seem to have lost my strength, I cant move pieces of furniture like I used too...

Elizabethtracy

•1 year ago

26 Replies

about Rotatirelin

I want to know what you think of Rotatirelin. I see that he did the experiment with scd patients. Is it effective for sca patients? What about sca3? Compared...

I want to know what you think of Rotatirelin. I see that he did the experiment w...

xiaoduoyu

•1 year ago

1 Reply

Coping with a Vestibular Disorder

‘Supermarket Syndrome’ For many people with a vestibular disorder, a trip to the grocery store can turn into a battle with dizziness. The lights, rows of...

‘Supermarket Syndrome’ For many people with a vestibular disorder, a trip to t...

wobblybee

•1 year ago

9 Replies

Balance Wear

Has anybody tried balance wear i think it’s been out for years in one format or another but it’s supposed to help Ataxia 🥴 .

Has anybody tried balance wear i think it’s been out for years in one format or ...

paul456

•1 year ago

5 Replies

I think it's hopeful

https://www.prnewswire.com/news-releases/seelos-therapeutics-doses-first-patient-in-a-registrational-phase-iiiii-study-of-sls-005-in-spinocerebellar-ataxia-3016

https://www.prnewswire.com/news-releases/seelos-therapeutics-doses-first-patient...

Eunseoc

•1 year ago

4 Replies

Back after a long absence

Hi everyone it's been a while, quite challenging healthwise like so many folks but you can't keep us ataxians down we pop up again at some point. I hope your...

Hi everyone it's been a while, quite challenging healthwise like so many folks b...

Pacitto

•1 year ago

3 Replies

Overlap of ataxic and spastic paraplegia phenotypes

I have now seen a specialist Ataxia neurologist who thinks that my "upper motor neuron signs outweighed the signs of ataxia" and is to arrange for me to...

I have now seen a specialist Ataxia neurologist who thinks that my "upper motor ...

Buffergirl

•1 year ago

12 Replies

Walking at home

I lile walking and find it very helpful. Howeverr I have recently moved to a place where I don't feel safe walking. My eyesight isn't good and I find curbs and...

I lile walking and find it very helpful. Howeverr I have recently moved to a pla...

C2a2o2

•1 year ago

10 Replies

age quod agis

I have just joined your site. Have ataxia due to small infarcts to cerebellum noted in scan in 2000. Take statin and blood thinner. Have never been able to...

I have just joined your site. Have ataxia due to small infarcts to cerebellum ...

castlereagh22

•1 year ago

6 Replies

AtaxiaUK Virtual Conference 2022

🙂 Copied from Lucy Porter AtaxiaUK I am delighted to say that our post-conference content page is now live on the website and you can access it via this...

🙂 Copied from Lucy Porter AtaxiaUK I am delighted to say that our post-confe...

wobblybee

•2 years ago

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for November 2022

Do gooders

Essential Tremors

Give the Gift of Support

Controversial!

Losing strength

about Rotatirelin

Coping with a Vestibular Disorder

Balance Wear

I think it's hopeful

Back after a long absence

Overlap of ataxic and spastic paraplegia phenotypes

Walking at home

age quod agis

AtaxiaUK Virtual Conference 2022

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive