Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,084 members•4,658 posts

All posts for August 2015

hot and cold

My condition seems to have deteriorated lately. After my diagnosis 10 years ago, it went downhill very fast and went from walking normally to crutches and a...

My condition seems to have deteriorated lately. After my diagnosis 10 years ago,...

klazien

•9 years ago

7 Replies

Looking forward

My 99yr old mum has had ataxia symptoms probably as far back as I can remember. We never put a name to it. She didn't want to know. We found out that some...

My 99yr old mum has had ataxia symptoms probably as far back as I can remember...

paulacarter

•9 years ago

2 Replies

Early Retirement

Harriet and Nigel, Ignore my replies about the above as have realised that this subject was topical for you both about 3 years ago and is prob no longer...

Harriet and Nigel, Ignore my replies about the above as have realised that this ...

silkwood

•9 years ago

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the dreaded diagnosis

This is a scary moment for us all We asked for a diagnosis because we knew something was going wrong and maybe we also knew about things going wrong for one...

This is a scary moment for us all We asked for a diagnosis because we knew some...

nigelrheath

•9 years ago

7 Replies

Thank you for the welcome.

Diagnosis based on ataxic gait and fatigue ++ after any exercise. Thank you have bought a spinning cycle to keep on excercing. So pleased to have met up with...

Diagnosis based on ataxic gait and fatigue ++ after any exercise. Thank you have...

Pec2884

•9 years ago

3 Replies

Getting up off the floor

I think most of us on this site have problems getting back up off the floor, and if like me you are prone to falling over then we end up on the floor more...

I think most of us on this site have problems getting back up off the floor, and...

wibblywobbly

•9 years ago

8 Replies

Problems with voice

I am 25 and have SCA2, and have had it since i was around 20. I have all the usual symptoms which i dont have to explain, however my voice is affected. I...

I am 25 and have SCA2, and have had it since i was around 20. I have all the u...

ljp103

•9 years ago

2 Replies

Newly diagnosed ataxia as yet unknown origin.

I have just been diagnosed with ataxia. My life revolved around competitive sport. I have difficulty in balance and co-ordination and fatigue. Been sent for...

I have just been diagnosed with ataxia. My life revolved around competitive spor...

Pec2884

•9 years ago

3 Replies

Eye sight problems with ataxia

Recently I have experienced blurred and double vision Does anyone else have this problem and if so do eye exercises Hep or if not what doed

Recently I have experienced blurred and double vision Does anyone else have this...

tedjohnson

•9 years ago

11 Replies

Episodic Ataxia

Over a year ago my dad was diagnosed with episodic ataxia. He lives on his own and has countless falls which have resulted in many bad injuries and now has a...

Over a year ago my dad was diagnosed with episodic ataxia. He lives on his own a...

Kathryne069

•9 years ago

2 Replies

Friedreichs ataxia

My husband has had FA for over 25years, he recently had a chest infection and now he is unable to speak clearly (even I can't understand what he is trying to...

My husband has had FA for over 25years, he recently had a chest infection and no...

Sammy418

•9 years ago

1 Reply

Muscle Spasms

I have had, on two occasions now, such excruciatingly painful muscle spasms in my stomach and upper abdomen - the last just last night which lasted around an...

I have had, on two occasions now, such excruciatingly painful muscle spasms in m...

Jay1972

•9 years ago

4 Replies

speed of deline

I have late onset cerebellar ataxia and I have noticed a rapid decline in the last 2 months. my walking is really hard now, I feel very weak, everything is a...

I have late onset cerebellar ataxia and I have noticed a rapid decline in the la...

sylviagreenhalgh

•9 years ago

17 Replies

Holidays

Has anyone got personal experience of hotels/apartments in Peurto pollansa (W/Chair and general area accessible) in fact has anyone got any ideas...

Has anyone got personal experience of hotels/apartments in Peurto pollansa (W/...

scatef

•9 years ago

12 Replies

Amitriptyline

Has anyone been prescribed amitriptyline for pain? For quite a few months I have been prescribed different tabs and liquid for ongoing chronic stomach and...

Has anyone been prescribed amitriptyline for pain? For quite a few months I have...

Hidden

•9 years ago

6 Replies

More on speech and feedback

Following my last post and replies to it I have written a longer piece, which is pasted in below. Hope this helps and answers the questions. Spino-Cerebellum...

Following my last post and replies to it I have written a longer piece, which is...

nigelrheath

•9 years ago

27 Replies

hi

great to find a page...

steve6168

•9 years ago

4 Replies

Speech aid

I have late onset CA, and have noticed my speech slurring for about 5 years. (I'm 65) To begin with I put it down to losing a few back teeth! I now know it's...

I have late onset CA, and have noticed my speech slurring for about 5 years. (I'...

nigelrheath

•9 years ago

6 Replies

Ankle help

Hi does anyone else have problems with their ankle rolling out? If so what do you use to help?

Hi does anyone else have problems with their ankle rolling out? If so what do yo...

nikkistowe

Volunteer•9 years ago

8 Replies

benefits

hi sorry for asking for some advice but I was diagnosed about 4 to 5 months ago with cerebellar ataxia and I received pip of standard rate living allowance and...

hi sorry for asking for some advice but I was diagnosed about 4 to 5 months ago ...

tino1234

•9 years ago

12 Replies

Pol63

Does anyone suffer from severe anxiety I'm so bad now and getting worse I rarely leave my house x

Does anyone suffer from severe anxiety I'm so bad now and getting worse I rarely...

Pol63

•9 years ago

11 Replies

Rollator

My balance is much worse today and I have decided to buy a rollator, but which one to buy? I have no knowledge of them and would welcome ideas. It must be...

My balance is much worse today and I have decided to buy a rollator, but which o...

Jenny789

•9 years ago

11 Replies

Ataxia

Hi my name is Susan I have ataxia I had a bad fall in 2010 months after I knew something wasn't right I couldn't walk straight I would walk into things most...

Hi my name is Susan I have ataxia I had a bad fall in 2010 months after I knew s...

Susanwilding

•9 years ago

7 Replies

Cerebellum Ataxia after a Viral Infection

Hello everyone 😃 I have been diagnosed with cerebellum ataxia after having a viral infection. I was wondering if there are any other members who have had this...

Hello everyone 😃 I have been diagnosed with cerebellum ataxia after having a vi...

-marie-

•9 years ago

7 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for August 2015

hot and cold

Looking forward

Early Retirement

the dreaded diagnosis

Thank you for the welcome.

Getting up off the floor

Problems with voice

Newly diagnosed ataxia as yet unknown origin.

Eye sight problems with ataxia

Episodic Ataxia

Friedreichs ataxia

Muscle Spasms

speed of deline

Holidays

Amitriptyline

More on speech and feedback

hi

Speech aid

Ankle help

benefits

Pol63

Rollator

Ataxia

Cerebellum Ataxia after a Viral Infection

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive