Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,570 posts

All posts for July 2016

Pesky shirt buttons

Today, to celebrate some warm weather here in the UK, I decided to wear a nice summery shirt. Unfortunately, said shirt has small buttons that I was horrified...

Today, to celebrate some warm weather here in the UK, I decided to wear a nice ...

•8 years ago

Powered wheelchairs

I am considering buying a powered wheelchair for use indoors and outdoors as my walking has deteriorated to the extent that the indoor walker that I have used...

I am considering buying a powered wheelchair for use indoors and outdoors as my ...

•8 years ago

Return to work

Today I have my return to work meeting. I have my letter asking for reasonable adjustments to my contact (less hrs and nothing to do with payroll), my witness...

Today I have my return to work meeting. I have my letter asking for reasonable a...

•8 years ago

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ESA

I was diagnosed with ataxia last year. I recently went for an assessment to continue my ESA....however works and pensions have rung me earlier to say I'm fit...

I was diagnosed with ataxia last year. I recently went for an assessment to cont...

•8 years ago

Going out of my mind!

Hi, I am Denise and have recently found out that something that I have been going through for over a year now is called Ataxia. I really thought I was losing...

Hi, I am Denise and have recently found out that something that I have been goin...

•8 years ago

Newley diagnosed with cerebral ataxia

I can't handle this. I was diagnosed a year ago and am finding it very hard to accept that I can't do the things that I used to do such as going away on...

I can't handle this. I was diagnosed a year ago and am finding it very hard to a...

•8 years ago

Betahistine

Hi, I have just been given the above 16mg as had 2 bouts of severe spinning with nausea & vomiting - have to take them for two weeks then go back to my doctors...

Hi, I have just been given the above 16mg as had 2 bouts of severe spinning with...

•8 years ago

Cerebella Ataxia

Hello, this is my first post. My husband has been suffering with Ataxia for about 20 years now. He is also registered blind and has prostrate cancer as......

Hello, this is my first post. My husband has been suffering with Ataxia for abou...

•8 years ago

Still Confused

My PT is adamant the the brain is changeable. My neuro says that's baloney--the brain never changes. My PT says retraining the brain is an issue of repetitive...

My PT is adamant the the brain is changeable. My neuro says that's baloney--the ...

•8 years ago

Hot and cold

Have others with Ataxia experienced constant fluctuation of body temperature? I constantly switch from shivering with cold to sweating with heat. It is very...

Have others with Ataxia experienced constant fluctuation of body temperature? I ...

•8 years ago

What walker to buy

Hi. I am considering buying a three wheel walker as the one I have is a heavy four wheel stannah which a friend lent me. Although I have a wheel chair I want...

Hi. I am considering buying a three wheel walker as the one I have is a heavy fo...

•8 years ago

Problems at the beach

I am posting today to address and discuss my issue when on holidays or day trips. I find that when I am at the beach and trying to walk on loose or wet sand I...

I am posting today to address and discuss my issue when on holidays or day trips...

•8 years ago

Necklace clasps

They've never been the easiest of things but I put one on last week for the first time in a while and it was near impossible! How do others deal with them?...

They've never been the easiest of things but I put one on last week for the firs...

•8 years ago

Ataxia UK Survey

Hello everyone, Ataxia UK are seeking the views and experiences of people affected by ataxia in our first major survey for 12 years. The survey has been sent...

Hello everyone, Ataxia UK are seeking the views and experiences of people affect...

•8 years ago

Depression / Anxiety ?

I have suffered with depression and anxiety for many years before my diagnoses of C.Ataxia when since the depression has got SO much worse to the extent of me...

I have suffered with depression and anxiety for many years before my diagnoses o...

•8 years ago

Children's book explaing ataxia

I have a 3yr old daughter and I'm struggling to explain my condition. I'm finding that I just brush over the fact that I'm clumsy or dribbling and make light...

I have a 3yr old daughter and I'm struggling to explain my condition. I'm findi...

•8 years ago

Confused

Hi to you all. I am so confused I have recently just come out of hospital and diagnosed with ataxia. I was told it probably happens due to a reaction to anti...

Hi to you all. I am so confused I have recently just come out of hospital and di...

•8 years ago

Ataxia type one pain in legs and feet

My daughter and granddaughters been diagnosed with episodic ataxia type one and my two sons are waiting on results does anyone get extreme pain in feet and...

My daughter and granddaughters been diagnosed with episodic ataxia type one and...

•8 years ago

Totally Confused

Hi i have been giving a symtoms called Cerebellar Atrophy Ataxia, my neurologist said this will get worse through time, and sent me to a load of referrals.. I...

Hi i have been giving a symtoms called Cerebellar Atrophy Ataxia, my neurologist...

•8 years ago

CO-ordination issues

I have C.A. And the older I get I find my co-ordination gets more difficult and slower. But l think I may have found an app. on my iPad that that might be...

I have C.A. And the older I get I find my co-ordination gets more difficult and...

•8 years ago

Digestion Issues

Do you have bloating, regurgitation, belching etc ? Is it part of ataxia? Thanks N

Do you have bloating, regurgitation, belching etc ? Is it part of ataxia? Thanks...

•8 years ago

A bit wobbly !

Having this week gone to my Neurologist who unfortunately is not an Ataxia specialist asked if I was still a bit wobbly. With he not having this disease he...

Having this week gone to my Neurologist who unfortunately is not an Ataxia speci...

•8 years ago

Driving Assessment

Hi as anyone had a driving assessment, I have just got a appointment to take a assessment and I don't know what to expect,I am desperate to get my license...

Hi as anyone had a driving assessment, I have just got a appointment to take a a...

•8 years ago

hiccups/swallowing/coughing

I sometimes get reallly bad bouts of hiccups, they really bang in my chest . I hate it hurts. Swallowing sometimes only goes half way it seems to stick and...

I sometimes get reallly bad bouts of hiccups, they really bang in my chest . I h...

•8 years ago

I'm sooo rude ~ apparently...

The neurologist took great delight in telling my partner that the part of my brain "that deals with emotion and etiquette" is dead. Well of course I tuned...

The neurologist took great delight in telling my partner that the part of my bra...

•8 years ago

Coughing and ataxia

Someone wrote about coughing - I just can't remember who, so am starting this post. I too get coughs and luckily the coughing bout started when I was with the...

Someone wrote about coughing - I just can't remember who, so am starting this p...

•8 years ago

Step daughter has just been diagnosed with Friedreichs ataxia....

Hi all, Meg is 13 and has been struggling with balance and falling since about 2013. Initially we were told that she may have HSP and after a referral to...

Hi all, Meg is 13 and has been struggling with balance and falling since about 2...

•8 years ago

STRESS MAKING THINGS WORSE?

Hi, wonder if anybody has any experience of going through a stressful time with ataxia (idiopathic late onset cerebellar)? I wonder if stress can make it...

Hi, wonder if anybody has any experience of going through a stressful time with ...

•8 years ago

Pip

Can anyone help with this pip thing, I have been awarded higher rate mobility as I can hardly walk at all without support worker, but lower rate living. I...

Can anyone help with this pip thing, I have been awarded higher rate mobility as...

•8 years ago

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