Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,037 members • 4,576 posts

All posts for March 2018

Hydrotherapy

Has anyone tried this, love to know if you would recommend as a therapy for Ataxia. We have a pool close by which is open to hire for the public, which my...

Has anyone tried this, love to know if you would recommend as a therapy for Atax...

Angelcake1

•6 years ago

17 Replies

ataxia and weights to help balance

I'm new here. Does anyone have experience using weights to help with balance. I thought someone posted a contact name last year of a woman who could offer...

I'm new here. Does anyone have experience using weights to help with balance. ...

dlhfeldman

•6 years ago

9 Replies

Idiopathic Cerebellar Ataxia Late Onset

I've self diagnosed myself as Idiopathic Cerebellar Ataxia Late Onset. Is there anyone else who professes as such? If so I'd like to penfriend them. I'm in...

I've self diagnosed myself as Idiopathic Cerebellar Ataxia Late Onset. Is there ...

imoa

•6 years ago

3 Replies

Want to take advantage of all our features? Just log in!

A fresh look at Curcumin.

- -...

sunvox

•6 years ago

10 Replies

Overactive bladder in cerebral ataxia

Can anyone recommend drugs to address this please? I would really appreciate it.

Can anyone recommend drugs to address this please? I would really appreciate it....

Helen1000

•6 years ago

9 Replies

Acetyl-DL-leucine, Mannitol and Thiamine MIGHT help some ataxias?

I hasten to add that I am in no way qualified medically but have ataxia and am very aware I am getting worse so willing to try anything! Lol x It may easily...

I hasten to add that I am in no way qualified medically but have ataxia and am ...

Litty

•6 years ago

5 Replies

Cramp.

Hello there, I have just joined, I was (probably, as the advert says) one of the fittest 60 year olds around, I did Aikido, cycled, running, walked a lot,...

Hello there, I have just joined, I was (probably, as the advert says) one of the...

Hidden

•6 years ago

4 Replies

App

Have just received PIP form. Any pointers would be much appreciated

celtic1888

•6 years ago

8 Replies

MSA getting worse

I am 65 and have MSA for 4 years now.But it is getting worse.I can hardly walk.I feel desperate.What to do?

I am 65 and have MSA for 4 years now.But it is getting worse.I can hardly walk.I...

vlinder23

•6 years ago

5 Replies

Migraines

hi everyone, when I do too much I suffer from migraines. These are due to my neck contracting, which the Drs and physio say is due the concentration that I...

hi everyone, when I do too much I suffer from migraines. These are due to my ne...

wibblywobbly

•6 years ago

13 Replies

Huntington's research trial treatment help us?

Hi havent posted in a while just wondering do you think we could have a good treatment by time our little ones are older. Also will the Huntington trial help...

Hi havent posted in a while just wondering do you think we could have a good tre...

lola261184

•6 years ago

5 Replies

Group in Leicester and Leicestershire

Hi everyone we are having our next ataxia meeting for Leicester and Leicestershire ataxia group at local hero Aylestone Road on 5th April at 12.30 new members...

Hi everyone we are having our next ataxia meeting for Leicester and Leicestershi...

xray25

•6 years ago

2 Replies

LDN, Low Dose Naltrexone for pain

Wondering if Sunvox has ever researched LDN for neuropathy or any other pain associated with ataxia. My reading indicates it helps the body produce more of...

Wondering if Sunvox has ever researched LDN for neuropathy or any other pain ass...

Hidden

•6 years ago

2 Replies

Non weight bearing and ataxia

I have mild late onset idiopathic cerebellum ataxia which I think has been brought on by a stressful separation and divorce after 28 years of marriage. To...

I have mild late onset idiopathic cerebellum ataxia which I think has been broug...

JillJ

•6 years ago

3 Replies

Hearing Problems

I have Ataxia SCA7 - I have a lot of disabilities caused through this, however, what I am finding now is there is a delay between me hearing something, and...

I have Ataxia SCA7 - I have a lot of disabilities caused through this, however, ...

patriciagrant

•6 years ago

14 Replies

Quantum therapy for SCA

Today is the third day for using quantum therapy, Three day ago , my foot standing on the ground seems on the cloud, but three day later I can feel the actual...

Today is the third day for using quantum therapy, Three day ago , my foot stand...

Ernest_lam

•6 years ago

23 Replies

Meneires Disease

How do you cope with meneires when pregnant. Did you still continue taking the pills or stopped until after delivery. Anyone with experience as i want to try...

How do you cope with meneires when pregnant. Did you still continue taking the p...

Princessdebbie4life

•6 years ago

4 Replies

Serc or Betahistine for Meneires

Does anyone use serc/berhistine regularly. Is there side effects when using it long term. As docs prescribed due to menieres.....

Does anyone use serc/berhistine regularly. Is there side effects when using it l...

Princessdebbie4life

•6 years ago

5 Replies

Balance Aids

Has anyone had experience of using the dm orthosis vest or shorts (dmorthotics.com) to help with stability and balance? I have enquired about them but with...

Has anyone had experience of using the dm orthosis vest or shorts (dmorthotics....

Libra7

•6 years ago

2 Replies

Exercise without out leaving your chair!

All Ataxia sufferers know that excercise is the single most beneficial thing which we can do to help ourselves. Unfortunately some of us can barely walk let...

All Ataxia sufferers know that excercise is the single most beneficial thing whi...

Libra7

•6 years ago

4 Replies

My alternative therapy for SCA1.

My name is Joe Peck. I am 53 years old and in 2013 I tested positive for the SCA1 genetic mutation. I am neither a doctor nor a researcher, but I do have a...

My name is Joe Peck. I am 53 years old and in 2013 I tested positive for the SCA...

sunvox

•6 years ago

48 Replies

Chair Yoga for the lower body

Hi Fellow Ataxians I found this one too. Darcie's instruction is really good, some of you might like her routine. My left leg is sometimes a bit naughty so...

Hi Fellow Ataxians I found this one too. Darcie's instruction is really good, so...

Staggy1

•6 years ago

6 Replies

Malvern Support Group

I would like to thank everyone in the group who made me feel welcome. It was a great couple of hours chatting to very friendly people. I am looking forward to...

I would like to thank everyone in the group who made me feel welcome. It was a g...

Woodturnerman

•6 years ago

4 Replies

My Parents have suggested I get a Medical ID Tag. Does anyone else have one of these?

Medical ID

EmWakie

•6 years ago

7 Replies

PIP

Well after the last social worker , kind of deserted me, I have got another, and she said as I had a mess with my PIP application, last July, and missed the...

Well after the last social worker , kind of deserted me, I have got another, and...

peterallison

•6 years ago

1 Reply

Ataxia and infections

I have ataxia and keep getting chest infections and urinary infections just come roundfrom latest bout was admitted to hospital and spent two weeks on...

I have ataxia and keep getting chest infections and urinary infections just come...

Guyb

•6 years ago

8 Replies

Tiredness- Help needed.

Ever since I turned 17 back in Feb. I have been feeling exhausted from doing nothing. I get out of breath when walking to the bathroom, in the morning I have...

Ever since I turned 17 back in Feb. I have been feeling exhausted from doing not...

illerpath

•6 years ago

18 Replies

Mannitol real world results.

So a new video came out from CliniCrowd and what a shocker . . . mannitol is helping people who didn't give up after a month . . ....

So a new video came out from CliniCrowd and what a shocker . . . mannitol is he...

sunvox

•6 years ago

9 Replies

Gentle Chair Yoga

Hi All I found a gentle chair yoga on Youtube which I enjoy (sometimes!) some of you might like it too. I think it helps with mobility and you can there are...

Hi All I found a gentle chair yoga on Youtube which I enjoy (sometimes!) some of...

Staggy1

•6 years ago

7 Replies

FA

My husband has had Freidreichs Ataxia for over 30years, we have been able to live a good life, nice holidays and general he has had good health. But in the...

My husband has had Freidreichs Ataxia for over 30years, we have been able to liv...

Sammy418

•6 years ago

5 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for March 2018

Hydrotherapy

ataxia and weights to help balance

Idiopathic Cerebellar Ataxia Late Onset

A fresh look at Curcumin.

Overactive bladder in cerebral ataxia

Acetyl-DL-leucine, Mannitol and Thiamine MIGHT help some ataxias?

Cramp.

App

MSA getting worse

Migraines

Huntington's research trial treatment help us?

Group in Leicester and Leicestershire

LDN, Low Dose Naltrexone for pain

Non weight bearing and ataxia

Hearing Problems

Quantum therapy for SCA

Meneires Disease

Serc or Betahistine for Meneires

Balance Aids

Exercise without out leaving your chair!

My alternative therapy for SCA1.

Chair Yoga for the lower body

Malvern Support Group

My Parents have suggested I get a Medical ID Tag. Does anyone else have one of these?

PIP

Ataxia and infections

Tiredness- Help needed.

Mannitol real world results.

Gentle Chair Yoga

FA

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive