Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for April 2019

Ataxia and driving

Dose anyone know if you can continue to drive after a diagnosis of ataxia I also am also a group 2 licence holder which allows me to drive lorry’s I’m only 36...

Dose anyone know if you can continue to drive after a diagnosis of ataxia I also...

GlutenLadYorkshire

•5 years ago

Gluten ataxia

Hi all I’m just wondering how you are diagnosed as having gluten ataxia, I currently have coeliac disease which was diagnosed about 5 Years ago, I didn’t...

Hi all I’m just wondering how you are diagnosed as having gluten ataxia, I curre...

GlutenLadYorkshire

•5 years ago

Bamboo socks tip

I know this may not sound very exciting but I wanted to share this .... I recently bought some ankle socks made of bamboo and they are brilliant. They are easy...

I know this may not sound very exciting but I wanted to share this .... I recent...

•5 years ago

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Cognitive impairment

My husband has had c a for 13 years. At first it was progressing very slowly but recently his walking and balance have got quite bad. He also has problems with...

My husband has had c a for 13 years. At first it was progressing very slowly but...

•5 years ago

Diagnosis or not

Hi All Well seen consultant today and tests for all known types of SCA are negative. So he says a label doesn 't matter, I have got SCA and there is no...

Hi All Well seen consultant today and tests for all known types of SCA are negat...

•5 years ago

results are in

Morning Ataxia Family of Friends, ---- After MY Scans and blood tests were all done, they said I can phone in two weeks for the results , ---- I got a phone...

Morning Ataxia Family of Friends, ---- After MY Scans and blood tests were all ...

•5 years ago

Deletion

How do I delete Women's Health from Health Unlocked?

How do I delete Women's Health from Health Unlocked?

•5 years ago

Total Knee Replacement Surgery

Hi All, Well, I'm going to have Total Knee Replacement (TKR) surgery for my left knee soon and I'm a bit leary about it due to my ataxia. My neurologist says...

Hi All, Well, I'm going to have Total Knee Replacement (TKR) surgery for my left...

•5 years ago

Eating problems ----

Hi all ATAXIA'S -------- Usually an eating problem means -- Anorexia, or Balonium-- I think that is the word, eating then make yourself sick !!! --- I have not...

Hi all ATAXIA'S -------- Usually an eating problem means -- Anorexia, or Baloniu...

•5 years ago

Brain

As attaxia progresses does that mean that the cerebellum is continuing to shrink. How much will it shrink. Is it possible to progress very slowly. I havent...

As attaxia progresses does that mean that the cerebellum is continuing to shrink...

•5 years ago

Anxiety?

Normally I'm very positive. But at the moment I just feel like giving up, I'm fed up with everything being so difficult. I should be feeling happy and excited...

Normally I'm very positive. But at the moment I just feel like giving up, I'm f...

ww-wibblywobbly

•5 years ago

Ataxia is so unpredictable

I have not been to bad this week. I have had a few ups and downs but got by. I went into town today and my Ataxia slowly hit me. It took me ages to get back...

I have not been to bad this week. I have had a few ups and downs but got by. I ...

•5 years ago

DRPLA

We are looking for anyone with or who knows of someone with a DRPLA diagnosis (a rare form of SCA). We are in negotiations with two research centres about...

We are looking for anyone with or who knows of someone with a DRPLA diagnosis (a...

•5 years ago

confusing

Hi all my Ataxia friends ----sometimes I wonder , what's going on --- I can feel ill, tired, pain, can hardly move on foot in front of the other, have no...

Hi all my Ataxia friends ----sometimes I wonder , what's going on --- I can fee...

•5 years ago

European research to cure ataxia

I went to draw blood and did all the tests for the research that is being done by many European countries together. I did very well at all the tests done,...

I went to draw blood and did all the tests for the research that is being done ...

•5 years ago

Fainting

I have passed out and taken to emergency 5 times in the last 16 months. I don't know if that's part of ataxia. Anyone have that experience

I have passed out and taken to emergency 5 times in the last 16 months. I don't ...

•5 years ago

Back

I'm back on this website after a major set back I just want you guys to know that you are very strong. Always remember God gives the strongest battles to his...

I'm back on this website after a major set back I just want you guys to know tha...

•5 years ago

A fresh look at an age old supplement. Lithium.

It never ceases to amaze me how things that I saw years ago and ignored turn out to be of far greater interest when I actually take the time to research them....

It never ceases to amaze me how things that I saw years ago and ignored turn out...

•5 years ago

balance and turning

Hi All, would like some help, to see if some are like me, !!! I think , I have written and asked about this before, --- not sure !! I am beginning to think...

Hi All, would like some help, to see if some are like me, !!! I think , I have w...

•5 years ago

what happens next??????

A few days ago, I wrote that my Tribunal for work capability was being heard, well I have just got the decision, and it was good news, I went from 0 points at...

A few days ago, I wrote that my Tribunal for work capability was being heard, w...

•5 years ago

Mental state

I am experiencing a diminished ability in my competency. My memory is shot, Major difficulties in accomplishing even small tasks. The smallest thing...

I am experiencing a diminished ability in my competency. My memory is shot, M...

•5 years ago

How does your Ataxia symptoms vary

I find my Ataxia to be unpredictable. When I went on the sick before Christmas I was couch bound watching tv for about month before my Ataxia started to ease...

I find my Ataxia to be unpredictable. When I went on the sick before Christmas I...

•5 years ago

Symptoms of ataxia

Hey there, What a lovely forum here, So im a 17 year old guy living in Belgium 7 februari I got diagnosed with a braintumor(completely bengin and not...

Hey there, What a lovely forum here, So im a 17 year old guy living in Belgium...

•5 years ago

A report on the first SCA Global Conference

http://bit.ly/2GmWUl3

http://bit.ly/2GmWUl3

•5 years ago

Be the first to reply

UC50 assessment Tribunal

well today is the day, after having my assessment in April last year (2018), and had the mandatory appeal, with the same result zero points, and was slightly...

well today is the day, after having my assessment in April last year (2018), an...

•5 years ago

HAPPY EASTER

I, personally, am NOT religious, so I take Easter as more free time for families, whatever they decide to do together...Have a great peaceful time...even if...

I, personally, am NOT religious, so I take Easter as more free time for families...

•5 years ago

Walking frame coasters

🙂 I was a reading a discussion about walking frames, and the awkwardness that was sometimes involved when using them. Tips were passed on about using...

🙂 I was a reading a discussion about walking frames, and the awkwardness that w...

•5 years ago

The cerebellar cognitive affective/Schmamann syndrome

I posted about this over a year ago and I apologise for telling you again - but I think it helps explain a lot about our behaviour xx...

I posted about this over a year ago and I apologise for telling you again - but ...

•5 years ago

PIPs, Ataxia and driving

I have just been turned down for the renewal of my PIPs. I will have to go though the appeal process like last time. They have said, because I can drive a car...

I have just been turned down for the renewal of my PIPs. I will have to go thoug...

•5 years ago

Do you have Ataxia 24/7

My Ataxia symptoms change all the time. They seem to be triggered by what I am doing a lot of the time. By standing or walking. Visual surroundings such as...

My Ataxia symptoms change all the time. They seem to be triggered by what I am d...

•5 years ago

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