Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,570 posts

All posts for December 2022

physiotherapy

Hi I’ve posted on here a few times and had helpful answers so here goes again. I’ve got SCA 2 use a walker all the time outside and mostly indoors but try to...

Hi I’ve posted on here a few times and had helpful answers so here goes again. ...

weegiz12345

•1 year ago

7 Replies

Acupuncture

Thanks to all that helped with my acupuncture post some very useful information. Sometimes it’s not enough to know that it works 👍🏻 .

Thanks to all that helped with my acupuncture post some very useful information....

paul456

•1 year ago

Be the first to reply

Computer screen aids?

Hi all, it's been a long time since I checked in. I am coping alright but life is tough. I am trying to live a somewhat normal life. Mobility has declined a...

Hi all, it's been a long time since I checked in. I am coping alright but life ...

EireAtaxic

•1 year ago

6 Replies

Want to take advantage of all our features? Just log in!

I'M IN A CARE HOME & NEED TO SPEAK TO SOMEONE IN ONE AS WELL, VIA FACEBOOK POSSIBLE.

HOW DO YOU MANAGE?

flawlesssFayx

•1 year ago

6 Replies

Acupuncture

Anybody ever try acupuncture and if you have did it help at all ?

paul456

•1 year ago

9 Replies

My ataxia

My name is sue Jobbins I suffer from inheritance C Ataxia SCA1 I have walker I felt lonely especially when friends don't understand. I have other illness it...

My name is sue Jobbins I suffer from inheritance C Ataxia SCA1 I have walker I f...

Jobbo16

•1 year ago

4 Replies

Ask the Expert……A Webinair with Consultant Neurologist Dr Susan Perlman

🙂 I logged onto this at the time It was informative and fast moving..Dr Perlman answered preset questions clearly and was easily understood In November,...

🙂 I logged onto this at the time It was informative and fast moving..Dr Perl...

wobblybee

•1 year ago

12 Replies

Thoughts

I’m wondering if it’s a rational approach for Ataxians to ‘forget’ about drugs and medications for a while, and instead focus on the various therapies...

I’m wondering if it’s a rational approach for Ataxians to ‘forget’ about drugs a...

chelpet

•1 year ago

8 Replies

Immunoglobulin

Hi all, not posted for a while, just been 'getting on with it', I had an appointment with my neurologist's team yesterday and she said they are putting me on...

Hi all, not posted for a while, just been 'getting on with it', I had an appoint...

Athywhite

•1 year ago

8 Replies

RADAR key

How do you legitimately apply for a RADAR key in Scotland? I know you can buy them from several online markets, but I disagree with that abuse.( I see that as...

How do you legitimately apply for a RADAR key in Scotland? I know you can buy th...

Eysteinsson

•1 year ago

3 Replies

Has anyone used 'Balance Belt' or Biofeadback Device?

Hi all,I was wondering if anyone had used a device like a 'Balance Belt' or other Biofeedback Device? To explain, I found a device called a Balance Belt...

Hi all,I was wondering if anyone had used a device like a 'Balance Belt' or othe...

Tackeshi

•1 year ago

8 Replies

SpeechVive

I have SCA6, which means I tend to slur and everything else associated with this issue. I was speaking to my speech therapist and she is recommending I look...

I have SCA6, which means I tend to slur and everything else associated with this...

Kauri1

•1 year ago

10 Replies

Mollii Suit

Anyone heard of/seen/tried the Mollii Suit? Saw it on the bbc this morning. Looked amazing!

Anyone heard of/seen/tried the Mollii Suit? Saw it on the bbc this morning. Look...

Ostap

•1 year ago

6 Replies

GP support ?!!?

A few days ago I had a text from my GP surgery outlining everything you would wish to know about their service including a profile of all the eight GPs in the...

A few days ago I had a text from my GP surgery outlining everything you would wi...

Libra7

•1 year ago

5 Replies

Hereditary spastic paraparesis (HSP) and Ataxia how do you get diagnosed with HSP?

I wondered if you could point me in the direction of how to get a diagnosis of HSP? If anyone has one and or are in the same position as me. I am seeking...

I wondered if you could point me in the direction of how to get a diagnosis of H...

Grapes12

•1 year ago

2 Replies

Massive Action Tremors

Does anyone else suffer from massively debilitating action tremors? Has any medication helped?

Does anyone else suffer from massively debilitating action tremors? Has any medi...

Ostap

•1 year ago

7 Replies

Thank you for strength answers

Thanks to everyone who replied to my question on strength I will read them again I may have more questions. But it's annoying when we have to ask each other...

Thanks to everyone who replied to my question on strength I will read them again...

Elizabethtracy

•1 year ago

1 Reply

Only 4 days left!

You have only 4 days left to double your impact! Take advantage of this great opportunity to double your donation at no extra cost! Give the gift of support...

You have only 4 days left to double your impact! Take advantage of this great op...

Irmmy

•1 year ago

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Traumas

Traumas I am 81 years old and tragically lost my two sons sometime ago, when my husband died five years ago it was thought I had post traumatic stress I was...

Traumas I am 81 years old and tragically lost my two sons sometime ago, when my ...

Knittlng

•1 year ago

5 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for December 2022

physiotherapy

Acupuncture

Computer screen aids?

I'M IN A CARE HOME & NEED TO SPEAK TO SOMEONE IN ONE AS WELL, VIA FACEBOOK POSSIBLE.

Acupuncture

My ataxia

Ask the Expert……A Webinair with Consultant Neurologist Dr Susan Perlman

Thoughts

Immunoglobulin

RADAR key

Has anyone used 'Balance Belt' or Biofeadback Device?

SpeechVive

Mollii Suit

GP support ?!!?

Hereditary spastic paraparesis (HSP) and Ataxia how do you get diagnosed with HSP?

Massive Action Tremors

Thank you for strength answers

Only 4 days left!

Traumas

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive