Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for April 2021

SCA29

Hi, does anyone here have SCA29?

Lisabecca

•4 years ago

7 Replies

New way to walk

I can't remember if I've already posted this information or not!!! Hahaha memory is definitely not what it used to be. Anyway some time ago I posted about...

I can't remember if I've already posted this information or not!!! Hahaha memory...

ww-wibblywobbly

•4 years ago

20 Replies

COVID Vaccine

Think I’ve had a odd reaction to the COVID Vaccine, I think it may affect my swim ware modelling career .

Think I’ve had a odd reaction to the COVID Vaccine, I think it may affect my swi...

Hidden

•4 years ago

5 Replies

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Lion's Mane

Has anybody any experience in taking Lion's Mane mushroom to help with ataxia. Thank you

Has anybody any experience in taking Lion's Mane mushroom to help with ataxia. T...

isabelalfaiate

•4 years ago

2 Replies

Primary Autoimmune Cerebellar Ataxia (PACA)

Diagnosing and treating primary autoimmune cerebellar ataxia (PACA) Many people with ataxia are not given a specific diagnosis for the cause of their ataxia....

Diagnosing and treating primary autoimmune cerebellar ataxia (PACA) Many people ...

wobblybee

•4 years ago

9 Replies

Adapting your home

Make your home the right fit There are different ways to adapt your home so it’s safe and comfortable. Keep reading to find out where to get started. Adapting...

Make your home the right fit There are different ways to adapt your home so it’s...

wobblybee

•4 years ago

3 Replies

What’s your experience with painful knees?

I have ataxia (sca 6), Sjogrens, osteoporosis, and osteoarthritis. Wasn’t sure where to post this question but decided to post under Ataxia. I had a total knee...

I have ataxia (sca 6), Sjogrens, osteoporosis, and osteoarthritis. Wasn’t sure w...

Mollymeer

•4 years ago

3 Replies

GP re Ataxia

Hello everyone I live in N2 and looking for a sympathetic understanding GP of Cerebellar Ataxia. Would anybody know of such a doctor in North London please ?...

Hello everyone I live in N2 and looking for a sympathetic understanding GP of Ce...

Fortoday

•4 years ago

4 Replies

Migraine/headache

I have bad head pain today and I can't figure out if it is a headache or migraine. Paracetamol and Ibuprofen are having little effect. I get these episodes...

I have bad head pain today and I can't figure out if it is a headache or migrain...

EireAtaxic

•4 years ago

3 Replies

Motomed Viva (arm&leg) for sale

Hi, Due to a family bereavement I have a Motomed Viva (arm&leg motions), for sale and I am reaching out to see if anyone is interested. It's a few years old...

Hi, Due to a family bereavement I have a Motomed Viva (arm&leg motions), for sal...

DCLillie

•4 years ago

1 Reply

Information re symptoms of Lower Urinary Tract Disorders and Bowel Dysfunction relating to SpinoCerebellar Ataxias.

A new paper from the team at the London Ataxia Centre provides new information on symptoms of the lower urinary tract (LUT) and the bowel in people with...

A new paper from the team at the London Ataxia Centre provides new information o...

wobblybee

•4 years ago

2 Replies

The key to future treatment for incurable ataxia.

Researchers unlock the key to future treatment for incurable ataxia Tuesday, November 17, 2020 A simple new blood test that could speed up drug discovery for...

Researchers unlock the key to future treatment for incurable ataxia Tuesday, No...

wobblybee

•4 years ago

1 Reply

Long term side effects after AstraZeneca vaccine?

Hi has any one had long term side effects after the Astra Zeneca vaccine. Had mine 6 weeks ago and felt quite poorly for several days after. Had the usual...

Hi has any one had long term side effects after the Astra Zeneca vaccine. Had mi...

penelope2

•4 years ago

50 Replies

Muscle pain

Can I ask how people are treating your muscle pain? I have been trying to get outdoor work and painting done to spend more time with the kids when they finish...

Can I ask how people are treating your muscle pain? I have been trying to get ou...

EireAtaxic

•4 years ago

14 Replies

Life insurance issues

Morning all Hope we all ok Does anyone have a problem to get a life insurance due to Ataxia? I always had one but last year the company I’m with decided to...

Morning all Hope we all ok Does anyone have a problem to get a life insurance ...

aburt449

•4 years ago

20 Replies

Neurologists in the UK Specialising in Ataxia

IF YOU WISH TO BE SEEN BY YOUR LOCAL NEUROLOGIST WHO SPECIALISES IN THE ATAXIAS LISTED BELOW PLEASE ASK YOUR GP OR CURRENT NEUROLOGIST TO REFER YOU Names of...

IF YOU WISH TO BE SEEN BY YOUR LOCAL NEUROLOGIST WHO SPECIALISES IN THE ATAXIAS ...

wobblybee

•4 years ago

Be the first to reply

Hello

I haven’t written on here for over a year. Since last writing my ataxia has deteriorated quite a bit. I went fro walking with a stick outside to using a...

I haven’t written on here for over a year. Since last writing my ataxia has dete...

weegiz12345

•4 years ago

13 Replies

mobility

I experience slight but permanent deterioration in my mobility with each needle (for whatever reason) that I receive. Apparently, it's due to blood type....

I experience slight but permanent deterioration in my mobility with each needle...

homemaker2000

•4 years ago

1 Reply

Swallowing

Doea it feel like something stuck in your throat all the time

Tazwaz

•4 years ago

28 Replies

Ataxia symptoms not told about

Is ther any symptoms that are not talked about I read somewhere that it could effect sinus but not sure

Is ther any symptoms that are not talked about I read somewhere that it could ef...

Tazwaz

•4 years ago

5 Replies

Ataxia symptoms

How do you know if they are ataxia symptoms or something else not alot is told about all symptoms like throat sinus etc

How do you know if they are ataxia symptoms or something else not alot is told a...

Tazwaz

•4 years ago

1 Reply

Host Defense, Lion's Mane Capsules

There is discussion going on about Lions Mane supplements in other groups (Facebook: NAF) where people have seen some significant benefits with their SCA. All...

There is discussion going on about Lions Mane supplements in other groups (Faceb...

mpagganwala

•4 years ago

16 Replies

benefit advise please help.

Hiya all. I am newly diagnoses with spinocerabellar ataxia. My speech, balane and severe right arm weakness is becoming a real issue. I work part time on a...

Hiya all. I am newly diagnoses with spinocerabellar ataxia. My speech, balane an...

shelly94

•4 years ago

7 Replies

foot pain & stiffness.

Does anybody have stiffness & spasms in their feet, I was diagnosed with plantar facillitis ( don't know if I have spelt it right )? my feet haven't dropped,...

Does anybody have stiffness & spasms in their feet, I was diagnosed with plantar...

carol31271

•4 years ago

22 Replies

Exercise bike

Does anyone use an exercise bike or spin bike or do any kind of bike excercise? Trying to figure out if one would be of benefit. And if so which brand is...

Does anyone use an exercise bike or spin bike or do any kind of bike excercise? ...

Sherena

•4 years ago

17 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for April 2021

SCA29

New way to walk

COVID Vaccine

Lion's Mane

Primary Autoimmune Cerebellar Ataxia (PACA)

Adapting your home

What’s your experience with painful knees?

GP re Ataxia

Migraine/headache

Motomed Viva (arm&leg) for sale

Information re symptoms of Lower Urinary Tract Disorders and Bowel Dysfunction relating to SpinoCerebellar Ataxias.

The key to future treatment for incurable ataxia.

Long term side effects after AstraZeneca vaccine?

Muscle pain

Life insurance issues

Neurologists in the UK Specialising in Ataxia

Hello

mobility

Swallowing

Ataxia symptoms not told about

Ataxia symptoms

Host Defense, Lion's Mane Capsules

benefit advise please help.

foot pain & stiffness.

Exercise bike

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive