Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for July 2020

Very important to me I've been doing my research on RITALIN and I feel and pray it'll help improve balance plus in my research ELDERLY ADHD

NEED A LITTLE HELP FROM MY FRIENDS #2 Skiing77 Skiing77 8 days ago•2 Replies NEED A LITTLE HELP FROM MY FRIENDS I'm a 68yo disabled Vietnam vet and how lucky...

NEED A LITTLE HELP FROM MY FRIENDS #2 Skiing77 Skiing77 8 days ago•2 Replies NE...

•4 years ago

Making the invisible..visible

Not all disabilities are visible – some are hidden and not immediately obvious, such as learning difficulties, mental health as well as mobility, speech,...

Not all disabilities are visible – some are hidden and not immediately obvious, ...

•4 years ago

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gluten attaxia

Hi I have gluten ataxia,does anyone have aching legs when standing for few minuates

Hi I have gluten ataxia,does anyone have aching legs when standing for few minua...

•4 years ago

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GEBERIT TOILET PLEASE X

Huge thanks to all about WET ROOM question please - I am having a new fully accessible wet room fitted in my bathroom. As part of that I am having a Geberit...

Huge thanks to all about WET ROOM question please - I am having a new fully acce...

•4 years ago

WAV and Adaptions; any help greatly appreciated.

I have finally got round to sending my application of for a grant towards a cost of a WAV and any adaptions that I might need. For those of you who have got...

I have finally got round to sending my application of for a grant towards a cost...

•4 years ago

NEED A LITTLE HELP FROM MY FRIENDS

I'm a 68yo disabled Vietnam vet and how lucky I have the VA they've been good to me. Now if I could stop falling with my CEREBRAL ATAXIA. I been doing some...

I'm a 68yo disabled Vietnam vet and how lucky I have the VA they've been good t...

•4 years ago

Neurologist/consultant at John Radcliffe

Hi all, Hope everyone is keeping well and starting to venture outside again now. I just wanted to ask if anyone can recommend a good neurologist/consultant at...

Hi all, Hope everyone is keeping well and starting to venture outside again now....

ww-wibblywobbly

•4 years ago

Pip assessment by telephone

I'm New Here. Telephone assessment for Pip, the professional said I held the phone to my ear for about an hour. I have been diagnosed with ataxia and I have...

I'm New Here. Telephone assessment for Pip, the professional said I held the p...

•5 years ago

Covid-19

They say that in old age the immune system decreases and one is therefore more susceptible but I have also heard that people with cerebral ataxia have too...

They say that in old age the immune system decreases and one is therefore more s...

•5 years ago

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Webinar on ataxia and Covid-19

Dear all Professor Giunti and Suzanne Booth from the London UCL/UCLH Ataxia Centre have offered to run another webinar session for advice surrounding the...

Dear all Professor Giunti and Suzanne Booth from the London UCL/UCLH Ataxia Cent...

Administrator•5 years ago

corona virus & exhaustion?

I think I had the covid-19 virus,at the beginning of lock down, i'very been exhausted since. I usually get very tired, but not like this. Has anyone else...

I think I had the covid-19 virus,at the beginning of lock down, i'very been e...

•5 years ago

Face coverings. Message from Sue Millman, CEO of Ataxia UK

Dear all Please see the below message from Sue. ‘Face coverings will be mandatory in shops from 24th July. As an ataxia patient, how do you feel about this?...

Dear all Please see the below message from Sue. ‘Face coverings will be mandator...

Administrator•5 years ago

Disabled property search

We're looking to move from our existing property to somewhere with suitable adaptations for my progressive disability, things we are looking for include wider...

We're looking to move from our existing property to somewhere with suitable adap...

•5 years ago

Bladder and Bowel UK

Useful info and advice https://issuu.com/disabledliving/docs/talk_about..._spring_2020_edition/26

Useful info and advice https://issuu.com/disabledliving/docs/talk_about..._sprin...

•5 years ago

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Ataxia UK Helpline-new phone number 0800 995 6037 from 10.30am on Thursday 9th July 2020

Dear all From 10.30am tomorrow morning (9th July 2020) the Ataxia UK helpline will have a new phone number. The new number is a Freephone number which is...

Dear all From 10.30am tomorrow morning (9th July 2020) the Ataxia UK helpline wi...

Administrator•5 years ago

Zoom meeting of TV Club

This Friday it's TV Club on the new BBC comedy series with David Tennant and Michael Sheen called 'Staged'! Hosted by James from Ataxia UK and Derek from our...

This Friday it's TV Club on the new BBC comedy series with David Tennant and Mic...

•5 years ago

Loss of sensation in hands - anyone else?

Just wondering whether this is ataxia related - presumably sensory or peripheral neuropathy - or not (essentially do I ask now or wait and bring it up when I...

Just wondering whether this is ataxia related - presumably sensory or peripheral...

•5 years ago

Powered wheelchair-different joysticks and which powered chairs do you have?

Hi Everyone, I tried a powered chair for the first time today and really struggled with the joy stick and due to my ataxia I couldn't get the chair to go...

Hi Everyone, I tried a powered chair for the first time today and really struggl...

•5 years ago

Lightweight folding lithium powered chair for sale, SOLD!

only 2.5 years old, vgc and low mileage as provided support to my main chair 10 km + (measured and I weigh 75 kg) Folds in 2 seconds Robust - 180kg max...

only 2.5 years old, vgc and low mileage as provided support to my main chair 1...

•5 years ago

Music Club on Zoom Friday 3 July

Looking for something fun to do at lunchtime tomorrow? Don't forget to join us for Music Club with our volunteer Tony Kaye. To register:...

Looking for something fun to do at lunchtime tomorrow? Don't forget to join us f...

•5 years ago

Troriluzole : A new drug.

www.biohavenpharma.com/science-pipeline/glutamate/troriluzole

www.biohavenpharma.com/science-pipeline/glutamate/troriluzole

•5 years ago

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