Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,570 posts

All posts for January 2022

16-30 Ataxia Support Group

Who are the 16-30's Group? The group is for anyone with ataxia aged between 16 and 30 years old, looking to meet others and make friends. The group is to...

Who are the 16-30's Group? The group is for anyone with ataxia aged between 16 a...

wobblybee

•2 years ago

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Keep moving! :)

Hi all, I have a friend who's a yoga instructor - she does lots of work for people with disabilities and movement disorders. Since the pandemic she's been...

Hi all, I have a friend who's a yoga instructor - she does lots of work for peo...

ww-wibblywobbly

•2 years ago

5 Replies

When testing doesn’t give an answer..what next

Diagnosing and treating primary autoimmune cerebellar ataxia (PACA) Many people with ataxia are not given a specific diagnosis for the cause of their ataxia....

Diagnosing and treating primary autoimmune cerebellar ataxia (PACA) Many people ...

wobblybee

•2 years ago

16 Replies

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Exercise with fun!

If like me you find exercise a bit of a bore I recommend you log on to the YTube videos of Sherry Zac Morris. The music is catchy and uplifting and you get a...

If like me you find exercise a bit of a bore I recommend you log on to the YTube...

Libra7

•2 years ago

2 Replies

critical illness insurance

We need to claim for a critical illness insurance cover - has anyone been through this successfully to possible give us some guidance. It's always so tricky...

We need to claim for a critical illness insurance cover - has anyone been throug...

cocobibi

•2 years ago

5 Replies

Physical therapy

My neurologist has recommended that I go to physical therapy. My question is how long do you continue with PT? I know they will work on balance, walking,...

My neurologist has recommended that I go to physical therapy. My question is how...

Mollymeer

•2 years ago

14 Replies

Human study of Nicotinamide Riboside for Ataxia Telang.

The study was open label and only included 24 people, but the results were quite impressive. Let's hope further studies help confirm the results and show this...

The study was open label and only included 24 people, but the results were quite...

CardiCorgi

•2 years ago

1 Reply

VAT exempt

Due to my worsening ataxia we are having to have our bathroom changed to a shower room. I have been told that it may be possible for us to have VAT exemption...

Due to my worsening ataxia we are having to have our bathroom changed to a showe...

winch

•2 years ago

5 Replies

Incontinence

Hi well as well as starting to have tremours although have eased off I’m having episodes of incontinence Having difficulty peeing then when I’ve...

Hi well as well as starting to have tremours although have eased off I’m ha...

Pekingese2

•2 years ago

10 Replies

Pilates

Does anyone do Pilates? Ì have started going 3 times a week and it helps

Voice1

•2 years ago

11 Replies

Severe lower back pain

Good evening! My husband has SCA7 and quite often suffers from severe lower back pain. Usually, it lasts foor about an hour, during which he can't move at...

Good evening! My husband has SCA7 and quite often suffers from severe lower bac...

sp1969

•2 years ago

5 Replies

Did anyone's symptoms return after going gluten free?

Hi everyone, I was diagnosed with coeliac disease in December 2019 and have been on a gluten free diet ever since. I originally went to the Dr as I was having...

Hi everyone, I was diagnosed with coeliac disease in December 2019 and have been...

Sparkstar2

•2 years ago

11 Replies

SCA6 and sleep

Hi everyone, I’ve noticed lately my husband will get up for work at 7:30 am I’m awake, then I fall back asleep until 10 or 11am. Completely out! I used to get...

Hi everyone, I’ve noticed lately my husband will get up for work at 7:30 am I’m ...

Mneutz

•2 years ago

4 Replies

Neuroplasticity

Happy New Year to all I hope this year is better than last. Just wondering if anybody has heard of Neuroplasticity it’s a method of re-wiring the brain using...

Happy New Year to all I hope this year is better than last. Just wondering if an...

paul456

•2 years ago

6 Replies

Hi can someone please help my partner has had sca unknown since 2006. Xmas eve he started having tremours

Partner has had sca since 2006 Xmas eve he started having tremors and getting disintoriated Says his body’s wobbling I can’t stop crying is tger anything I...

Partner has had sca since 2006 Xmas eve he started having tremors and getting di...

Pekingese2

•2 years ago

3 Replies

Covid-19 positive

I am triple jabbed and still tested positive on Christmas Eve. Lateral flow tests are still positive but I feel fine. Anyone else had a positive test? And...

I am triple jabbed and still tested positive on Christmas Eve. Lateral flow tes...

Cupcake12345

•2 years ago

9 Replies

Nilotinib/Tasigna for SCA 1,2,3,6,7, and 17 patients with low to no symptoms.

This is a drug which has been mentioned here numerous times over the years, but may finally have some real results. Unfortunately this post is likely not...

This is a drug which has been mentioned here numerous times over the years, but ...

CardiCorgi

•2 years ago

1 Reply

Nottingham lady

Happy New Year to everyone dealing with Ataxia. ❤️💙

turner47

•2 years ago

11 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for January 2022

16-30 Ataxia Support Group

Keep moving! :)

When testing doesn’t give an answer..what next

Exercise with fun!

critical illness insurance

Physical therapy

Human study of Nicotinamide Riboside for Ataxia Telang.

VAT exempt

Incontinence

Pilates

Severe lower back pain

Did anyone's symptoms return after going gluten free?

SCA6 and sleep

Neuroplasticity

Hi can someone please help my partner has had sca unknown since 2006. Xmas eve he started having tremours

Covid-19 positive

Nilotinib/Tasigna for SCA 1,2,3,6,7, and 17 patients with low to no symptoms.

Nottingham lady

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

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