Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for June 2020

MOTOMED VIVA2

WANTED!.......Motomed viva2 Please let me know if you have one to sell Thanks

Hidden

•4 years ago

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Has anyone tried Arginine. Saw this article and was thinking about trying it. Any suggestion.

https://www.news-medical.net/news/20200525/Researchers-identify-a-natural-amino-acid-as-potential-treatment-for-polyQ-diseases.aspx

https://www.news-medical.net/news/20200525/Researchers-identify-a-natural-amino...

mpagganwala

•4 years ago

14 Replies

Ataxia Clinic

Hi All, I have an appointment later on in the year at the London Ataxia Clinic and was wondering if I will get anything out of it as I see a top neurologist...

Hi All, I have an appointment later on in the year at the London Ataxia Clinic ...

Jacqui-A

•4 years ago

15 Replies

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Effects of Lockdown on walking

Until this awful pandemic I attended the gym three or four times per week. I concentrated my activities on my legs, spending time on the treadmill and...

Until this awful pandemic I attended the gym three or four times per week. I con...

Piero

•4 years ago

11 Replies

Thank you!

Dear all Thank you to all those that replied to me about your experiences of neurology appointments during lockdown. The Medical Advisory Panel (MAP) met...

Dear all Thank you to all those that replied to me about your experiences of neu...

HarryB

Administrator•4 years ago

1 Reply

New Photo ID cards

Hi there fellow ataxians. Just wondering does anyone know when the new photo ID cards are likely to be sent out? Not sure if anyone’s back in the office yet....

Hi there fellow ataxians. Just wondering does anyone know when the new photo ID...

Legs-alive

•4 years ago

4 Replies

My Garden picture .. Suffolk, England

Thanks to Veteran250 Don for telling me how its done, I can share a pic of my garden .. cant get out there yet as hubby has built new steps from living room...

Thanks to Veteran250 Don for telling me how its done, I can share a pic of my ga...

PatsyIpswich

•4 years ago

2 Replies

WET ROOM

Dear friends We are looking at converting my bathroom into a properly accessible wet room. As part of that we are researching Wash Dry Toilets. We’d like to...

Dear friends We are looking at converting my bathroom into a properly accessib...

Litty

•4 years ago

21 Replies

Balance Socks Review

Hi everyone, I did mention that I would write about my experience in using the Balance socks. I have been using them for a month. The verdict is YES. I had to...

Hi everyone, I did mention that I would write about my experience in using the B...

Amynah

•4 years ago

4 Replies

Neuroligist

After some info, my son age 22 has cerebellar Ataxia, diagnosed at 13, had regular appointments with neuroligist but since being an adult he has seen a...

After some info, my son age 22 has cerebellar Ataxia, diagnosed at 13, had regul...

lindadoc

•4 years ago

13 Replies

Recently discovered MRI Techniques

https://www.newswise.com/articles/advanced-mri-scans-may-improve-treatment-of-tremor-parkinson-s-disease?sc=dwhn

https://www.newswise.com/articles/advanced-mri-scans-may-improve-treatment-of-tr...

wobblybee

•4 years ago

2 Replies

Play a board game online with AtaxiaUK

Ever played a board game online? Join us for our first ever board game activity session with our InControl officer Shana on Friday at 1-2pm. We only have a few...

Ever played a board game online? Join us for our first ever board game activity ...

wobblybee

•4 years ago

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Online activities during lockdown

In these days of being stuck at home can anyone recommend good online games, activities, film clubs etc. My husband can't do anything that requires...

In these days of being stuck at home can anyone recommend good online games, act...

cocobibi

•4 years ago

13 Replies

A Korean Scientist Discovers Breakthrough Treatment for Parkinson’s Disease

Did anyone of you across the pond see this?...

sonofapeter

•4 years ago

3 Replies

Experience of neurology during the coronavirus crisis. Asking for your help!

Dear all We have a virtual meeting of the Medical Advisory Panel of Ataxia UK in a couple of weeks. One of the topics we will be discussing is how neurology...

Dear all We have a virtual meeting of the Medical Advisory Panel of Ataxia UK in...

HarryB

Administrator•4 years ago

15 Replies

Paul456 Profile

Hello all my first time writing. A little about myself. I served in the forces (Army) from 1975 till 1989 when I left I found a job in charge of security for...

Hello all my first time writing. A little about myself. I served in the forces...

Hidden

•4 years ago

28 Replies

A new type of MRI

https://www.technologynetworks.com/neuroscience/news/the-brain-scanner-you-can-wear-like-a-hat-335799#.Xt5LXraT4mk.facebook

https://www.technologynetworks.com/neuroscience/news/the-brain-scanner-you-can-w...

wobblybee

•4 years ago

Be the first to reply

Episodic Ataxia w/ tremors & twitching

Hey everyone.. I have suspected Episodic Ataxia type2, severe episodes of imbalance and coordination issues, vertigo and vomiting, crossed eyes, double vision,...

Hey everyone.. I have suspected Episodic Ataxia type2, severe episodes of imbala...

Episodic_Ataxia

•4 years ago

4 Replies

Carbamazepine Medication for muscle locks, cramps & spasms-confused

Has anybody been prescribed Carbamazepine for the above? I’ve been taking baclofeon but it doesn’t seem to be helping in the slightest, so my neurologist has...

Has anybody been prescribed Carbamazepine for the above? I’ve been taking baclof...

Legs-alive

•4 years ago

4 Replies

How have you adjusted to lockdown?

Hello everyone, I'm writing an article for the Ataxia Magazine about adjusting to lockdown and having ataxia. If you're happy to contribute to this, please...

Hello everyone, I'm writing an article for the Ataxia Magazine about adjusting t...

Hidden

•4 years ago

11 Replies

Newly diagnosed resource

Hi everyone! I hope you're keeping safe and well? We're looking at creating a new resource via email for people who have been newly diagnosed with ataxia. In...

Hi everyone! I hope you're keeping safe and well? We're looking at creating a ne...

Hidden

•4 years ago

3 Replies

Move over fatigue coming through!

I loved my spin classes but couldn’t stay awake when I got home . And didn’t want to give them up but had to in the end as it led to me having several bad...

I loved my spin classes but couldn’t stay awake when I got home . And didn’t w...

Sphinx21

•4 years ago

4 Replies

Neck Spasms = Cervical Dystonia?

Hi everyone. I have SCA3 and recently started experiencing neck spasms. They happen out of the blue and often after I have turned my head left or right. Is...

Hi everyone. I have SCA3 and recently started experiencing neck spasms. They hap...

Pie1

•4 years ago

11 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for June 2020

MOTOMED VIVA2

Has anyone tried Arginine. Saw this article and was thinking about trying it. Any suggestion.

Ataxia Clinic

Effects of Lockdown on walking

Thank you!

New Photo ID cards

My Garden picture .. Suffolk, England

WET ROOM

Balance Socks Review

Neuroligist

Recently discovered MRI Techniques

Play a board game online with AtaxiaUK

Online activities during lockdown

A Korean Scientist Discovers Breakthrough Treatment for Parkinson’s Disease

Experience of neurology during the coronavirus crisis. Asking for your help!

Paul456 Profile

A new type of MRI

Episodic Ataxia w/ tremors & twitching

Carbamazepine Medication for muscle locks, cramps & spasms-confused

How have you adjusted to lockdown?

Newly diagnosed resource

Move over fatigue coming through!

Neck Spasms = Cervical Dystonia?

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive