Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,037 members • 4,576 posts

All posts for May 2017

Exercise

Good evening. My dad has sca6 and is unable to exercise safely. I worry that he cannot stay fit/healthy without exercise. Therefore how does he go about...

Good evening. My dad has sca6 and is unable to exercise safely. I worry that he ...

•7 years ago

No idea.

I am new to this group, because of my balance problem, and not being able to walk about outside, the RAF is giving me an electric powerchair.....will my...

I am new to this group, because of my balance problem, and not being able to wal...

•7 years ago

Introducing me

I am a 73 year old man, found Ataxia website by accident.....I have a balance problem and often fall over indoors.

I am a 73 year old man, found Ataxia website by accident.....I have a balance pr...

•7 years ago

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Coping with Scoliosis?

I have been diagnosed with Friedreich's Ataxia, well in 1982!!! Now I am fairly progressed, in a w/c 24/7, got a raisable bed with vertical lift, just use...

I have been diagnosed with Friedreich's Ataxia, well in 1982!!! Now I am fairly...

•7 years ago

anyone in the Nottingham area with gluten ataxia or a support group ?

Hi . glad to be back on. my condition is getting worse ! having more falls , more pain, more balance problems ,more confusion , yet I stick to my diet . would...

Hi . glad to be back on. my condition is getting worse ! having more falls , mor...

•7 years ago

Hello All

I'm new to this and thought I'd share my experiences. I'm 63 and was diagnosed with Sporadic Cerebellar Ataxia 6 or 7 years ago although with hindsight I've...

I'm new to this and thought I'd share my experiences. I'm 63 and was diagnosed w...

•7 years ago

Freedom to Crutch to Walker

Hi everyone, I am curious to know if - what has happened to me - has happened to you as well. In August 2013 I was diagnosed with SCA1 in July 2015 I started...

Hi everyone, I am curious to know if - what has happened to me - has happened to...

•7 years ago

Where do you think we will be with ataxia in 20 years time

Just a question to see where we think we will be with research with ataxia in 20 years time x

Just a question to see where we think we will be with research with ataxia in 20...

•7 years ago

Neurologist

I should have had my annual appointment with my neurologist in November but still haven't had heard anything. Since nothing much comes of these appointments I...

I should have had my annual appointment with my neurologist in November but stil...

•7 years ago

Alcar thoughts?

Hi All I have cerebellar ataxia and am currently taking 500mg daily of Alcar (Acetyl-L-Carnitine). I was wondering about others thoughts on Alcar and daily...

Hi All I have cerebellar ataxia and am currently taking 500mg daily of Alcar (Ac...

•7 years ago

PQQ protects the brain

http://www.lifeextension.com/Magazine/2016/4/How-PQQ-Protects-the-Brain/Page-01 Hello, please take a look at this link, it is about a very powerful...

http://www.lifeextension.com/Magazine/2016/4/How-PQQ-Protects-the-Brain/Page-01 ...

•7 years ago

Potential First-in-Class therapy for spinocerebellar ataxia

http://www.livingwithataxia.org/t/potential-first-in-class-therapy-for-spinocerebellar-ataxia/5831/8 Just a link here, they are testing this new drug bhv-4157...

http://www.livingwithataxia.org/t/potential-first-in-class-therapy-for-spinocere...

•7 years ago

DWP

Since the 5th November 2015 I have been waiting for a home assessment, I was told that I should get one as I am entitled, I fought through an ESA appeal last...

Since the 5th November 2015 I have been waiting for a home assessment, I was tol...

•7 years ago

Hello

Hello I have just joined being recently diagnosed with SCA 17. First time I have really considered my mortality. Apart from my weird gait, occasional falls...

Hello I have just joined being recently diagnosed with SCA 17. First time I hav...

•7 years ago

Scary when this happens

Every now and then when I bend my leg to go down a step my thigh gives out or rather the strength in my muscle in my thigh lets me down and I fall. Does...

Every now and then when I bend my leg to go down a step my thigh gives out or r...

•7 years ago

Shooting pains

hi all, I've been having shooting pains coming up my calf or shin from ankle for the last few days. The pain only lasts a matter of seconds but it is very...

hi all, I've been having shooting pains coming up my calf or shin from ankle for...

•7 years ago

The End?

Here are my current symptoms: I now use a walker indoors and avoid the outdoors. My bladder never feels empty. My vision is both blurry and near sighted...

Here are my current symptoms: I now use a walker indoors and avoid the outdoors....

•7 years ago

Can't sleep.Weird dreams....Thought I

Got up picked up My mobile and there was a message??2nd time this has happened not scary just Bazar!!Put a jumper on frozen ...Phone is still plugged in no...

Got up picked up My mobile and there was a message??2nd time this has happened n...

•7 years ago

Urgent advice req

Hi I recently been told I've got ataxia type unknown. Yeah I'm struggling to get head round it. I've got shakes confusion cant string sentence together 247 but...

Hi I recently been told I've got ataxia type unknown. Yeah I'm struggling to get...

•7 years ago

May I pick your brain?

Hi Everyone I wonder if I could pick your brain...? It has been suggested to me that I go and see someone at The National Hospital for Neurology and...

Hi Everyone I wonder if I could pick your brain...? It has been suggested to me ...

•7 years ago

ME

I was also diagnosed with ME I tested suspicious for Glandular fever and toxoplasmosis?This is years ago?It all went away (To be honest a lot of my symptoms...

I was also diagnosed with ME I tested suspicious for Glandular fever and toxopla...

•7 years ago

MSAG

Ii I had an educational visit to my local hospital at the end of March with my neurologist and 6 of his colleagues and was given a diagnosis of probable MSA....

Ii I had an educational visit to my local hospital at the end of March with my ...

•7 years ago

Wind

Why is it when it's very windy outside I get very very sleepy like I'm in a coma State of Mind

Why is it when it's very windy outside I get very very sleepy like I'm in a coma...

•7 years ago

Fundraising

Hi where is the best place to send fundraising for ataxia x

Hi where is the best place to send fundraising for ataxia x

•7 years ago

Critical illness

Does anyone know if ataxia is classed as a critical illness

Does anyone know if ataxia is classed as a critical illness

•7 years ago

Help

Hi Does anyone else have this problem and any solutions greatly accepted. I have SCA2 and am 55 years old and have been diagnosed about 7 years. My balance is...

Hi Does anyone else have this problem and any solutions greatly accepted. I hav...

•7 years ago

Has this happened to you?

Does anyone find that although they hear what's being said they momentarily are unable to speak? My husband came home from work last night and I awkwardly got...

Does anyone find that although they hear what's being said they momentarily are ...

•7 years ago

SCA7 and hearing

Hi I have SCA7, and am blind and in a wheelchair, with speech and dexterity difficulties. However, a new problem seems to be that I have a time gap of a few...

Hi I have SCA7, and am blind and in a wheelchair, with speech and dexterity diff...

•7 years ago

Coughing

Does anyone have problems when initially lying down in bed with coughing? I can only sleep on my side so I don't know if it's my wind pipe easing/settling...

Does anyone have problems when initially lying down in bed with coughing? I can...

•7 years ago

ESA Assessment

Hi Can anyone tell me what kind of questions are asked at the Health Assessment for ESA. My friend has cerebellar ataxia and struggles very much with walking...

Hi Can anyone tell me what kind of questions are asked at the Health Assessment ...

•7 years ago

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