Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for November 2018

Amantadine?

Does anyone take Amantadine for CA or MSA?Helpful? xx N

Does anyone take Amantadine for CA or MSA?Helpful? xx N

•6 years ago

I HATE UNEVEN PAVEMENTS

•6 years ago

THE CHANGE

HI! JUST WANTED TO HEAR EVERYONES THOUGHTS ON ATAXIA THROUGH THE MENAPAUSE [ MEN & women ]. MENTAL HEALTH PROBS AND THOSE COPING WITH ATAXIA AFTER A VERY...

HI! JUST WANTED TO HEAR EVERYONES THOUGHTS ON ATAXIA THROUGH THE MENAPAUSE [...

•6 years ago

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Help Given

I was struggling on an uneven pavement today when an elderly lady assisted me off the pavement and on to the road, seconds after that an elderly gentleman...

I was struggling on an uneven pavement today when an elderly lady assisted me of...

•6 years ago

BACKDATED PAYMENT FOR ESA

I filled in a form they sent me and sent it off,DOES ANYONE KNOW HOW LONG IT WILL TAKE TO GET???

I filled in a form they sent me and sent it off,DOES ANYONE KNOW HOW LONG IT WIL...

•6 years ago

Gait trainers

Has anyone researched these machines (they are sort of like walkers but with much more support to help people with balance/co-ordination problems continue...

Has anyone researched these machines (they are sort of like walkers but with muc...

•6 years ago

New to FA.

Hi. We found out in June our 11 year old has FA. Her balance has gotten worse. I am interested in weighted vest. Ahe does archway andnhis yeat its rough.

Hi. We found out in June our 11 year old has FA. Her balance has gotten worse. ...

•6 years ago

BIG GIVE 2018

Hi all. From tomorrow (Tuesday 27th November) until 4th December AtaxiaUK will be asking for donations via The Big Give. For every pound donated, it will...

Hi all. From tomorrow (Tuesday 27th November) until 4th December AtaxiaUK will b...

•6 years ago

advice

I have had a copy(s) of the brochure from Ataxia UK, and submitted them to the DWP and the court, for my tribunal. They have returned it to me, having read it...

I have had a copy(s) of the brochure from Ataxia UK, and submitted them to the D...

•6 years ago

Multiple Systom Atrophy

Having had time to digest things and do some research , I have looked at Parkinson’s Plus Syndrome and I understand there are three possible illnesses that...

Having had time to digest things and do some research , I have looked at Parkins...

•6 years ago

Veins

Hi all, my neurologist talked the other day about an injection into the vein. Can anyone shed some light on this for me?

Hi all, my neurologist talked the other day about an injection into the vein. Ca...

•6 years ago

ataxia caused by fall

IS THERE ANYBODY OUT THERE WHOSE ATAXIA WAS CAUSED BY FALLING HARD ON THE BACK OF THE HEAD?

IS THERE ANYBODY OUT THERE WHOSE ATAXIA WAS CAUSED BY FALLING HARD ON THE BACK O...

•6 years ago

Dietary Change Worth it?

Hi All I have been very recently diagnosed with Ataxia SPG7 I have been wondering if changing my diet would help as i don't deal with tablets well You all had...

Hi All I have been very recently diagnosed with Ataxia SPG7 I have been wonderi...

•6 years ago

Students

Hi all, I went to a training day yesterday to help the next generation of students, well at least I think that was what it was for. While I was there I saw...

Hi all, I went to a training day yesterday to help the next generation of studen...

•6 years ago

Any Canadian folks on here

Hi I’m in Toronto Ontario wondering if any of you folks are on here

Hi I’m in Toronto Ontario wondering if any of you folks are on here

•6 years ago

Looking

Morning name is Shahid Khokhar from Crawley West Sussex looking for Ataxia near or not to far I don’t Drive love to meet and make friends.

Morning name is Shahid Khokhar from Crawley West Sussex looking for Ataxia near ...

•6 years ago

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Jelly Legs

Hi all, my legs are like jelly today, I can walk but it's a real effort. I don't want to give in and it's very difficult because people don't understand why I...

Hi all, my legs are like jelly today, I can walk but it's a real effort. I don't...

•6 years ago

Sth Yorkshire Support Group

Members, old and new, from Sheffield and surrounding areas are invited to the next meeting at The Circle, Rockingham Lane, Sheffield, on Thursday 6th December...

Members, old and new, from Sheffield and surrounding areas are invited to the ne...

•6 years ago

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Ataxia BigGive

Hi one and all. It is getting close to Ataxia BigGive time. Help raise funds for research by donating to their cause. With no Government funding - SHAME ON...

Hi one and all. It is getting close to Ataxia BigGive time. Help raise funds for...

•6 years ago

Respiratory problems caused due to ataxia ...major problem

My father is suffering from spinocerebrallar ataxia and it's been 7yrs and due to this disease....not only coordination is affected but there are several more...

My father is suffering from spinocerebrallar ataxia and it's been 7yrs and due t...

•6 years ago

Clinical trial of Niagen for treatment of a neurological disorder.

So yesterday while just doing a general search I came across an old bit of news and a new clinical trial that I was surprised I had not previously uncovered....

So yesterday while just doing a general search I came across an old bit of news ...

•6 years ago

Acute Cerebella Ataxia - 4 years old

Hi, my son was diagnosed with aca following chicken pox virus in feb this year, his symptoms seem to resolve within 2-3 weeks. He started school in September...

Hi, my son was diagnosed with aca following chicken pox virus in feb this year, ...

•6 years ago

Newly SPG7 diagnosed

I have (finally!!) Diagnosed with SPG7. Trying to understand what it means, to expect. I have looked online but just can't find out what it's like to live day...

I have (finally!!) Diagnosed with SPG7. Trying to understand what it means, to e...

•6 years ago

Knees

Yesterday I was looking for something In the back of the bottom cupboard so I scooted down. I couldn't get back up, luckily my daughters was here and she...

Yesterday I was looking for something In the back of the bottom cupboard so I sc...

•6 years ago

PIP Assessment

My partner had a pip assessment this morning.One full hour of questions.Thank God that's over with as my partner was becoming extremely anxious. Now let's see...

My partner had a pip assessment this morning.One full hour of questions.Thank Go...

•6 years ago

Oxford Ataxia Centre at John Radcliffe Hospital

Has anyone been to the Oxford Ataxia Centre? I have an appointment there next week and it would be great to know what to expect. I haven't had the best luck...

Has anyone been to the Oxford Ataxia Centre? I have an appointment there next we...

•6 years ago

Posted on Facebook by Ataxia uk

I thought it would be good to share this on here for those of you who perhaps don’t have social media links. Have you taken part in this very important...

I thought it would be good to share this on here for those of you who perhaps do...

•6 years ago

Students

My Neurologist wants me to go to the hospital (they are paying for a taxi etc.)for the students has anyone else had such experience? Maridale

My Neurologist wants me to go to the hospital (they are paying for a taxi etc.)f...

•6 years ago

out of work

Hi evryone..not been on here for a while..hope your all keeping busy well into my problem then....Ive just been made redundant and my think its because I...

Hi evryone..not been on here for a while..hope your all keeping busy well into m...

•6 years ago

Excersise

Had a visit to physio yesterday and he's given me different excersise to do as I felt the others I had wasn't pushing me enough. Last night I kept bumping in...

Had a visit to physio yesterday and he's given me different excersise to do as I...

•6 years ago

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