Ataxia UK | HealthUnlocked

Ataxia UK

4,014 members4,548 posts

Ataxia Diagnosis.

hello my friends, after having had body tremors and shaking hand since I was a s...

Burning hot feet at night.

I get burning hot feet at night I have to get up a couple of times in a night. M...
carol31271 profile image

Recently diagnosed, need some help !

Hi everyone ! First thanks for this group it can be triggering but also bring s...
Evagdnn profile image

Tremors

Does anyone suffer from tremors with their Ataxia? I cannot use my hands at all ...
Ostap profile image

Hello

Hi I’ve got sca2 have asked many questions on here and had helpful replies. I us...
weegiz12345 profile image

PIP query

Hi, does anyone have advice on claiming PIP. I have just been granted my blue ba...
Poppylove1 profile image

SadSad

One time in my life I could walk, run and play sport. I could row for miles in ...
paul456 profile image

Experience of Ataxia post

I read a previous post that someone else wrote about how it feels to have Ataxia...
Frenchoak profile image

Helped Me

Just thought I would share the wee things that helped me last week. I arranged ...
Sea_ profile image

Millar 69

hi don it really has been bad to you I walk like a drunk man and I have to hold ...
Pjpuk profile image

Millar 69

I am a57 year old man used to work in a fencing firm was as fit as a butcher’s d...
Pjpuk profile image

speech

Can anyone tell me, I have issues with my talking it’s not a slur but wanting to...
Littlepopeye profile image

Rapid Decline - anyone experience this?

I am an 82 year old woman who was diagnosed two years ago with SCA6 which my mo...
Hickox profile image

Iceland

Has anybody been on a cruise to Iceland with ataxia it’s just I’m thinking of go...
paul456 profile image

Gluten ataxia

I'm going to try and get in touch with Sheffield I went gf in October my ataxia ...
Tazwaz profile image

menopause and ataxia!!

Partner has sca diagnosed 2007 , patient of Prof Hadjivassiliou at Sheffield. Sh...
TedTom profile image

I have ataxia SCA-7 / 43 rept

2 things you should try, please report. 1 I'm 56, damn old, half dead one ca...
Tommi_ profile image

Gluten ataxia

I was told I had ga last year about Nov I started a gf diet I like to know can y...
Tazwaz profile image

SCR6 Research

I had my yearly appointment with my neurologist yesterday and he mentioned he co...
paul456 profile image

Happy

The happier you are the better you are 😊
paul456 profile image

Autosomal Recessive Spastic Ataxia (POLR3A gene affected)

Hi, I was wondering if anyone else has been diagnosed with Autosomal Recessibe S...
JT0621 profile image

Gluten ataxia

I was diagnosed ga last yr but got steadily worse since I have been very careful...
Tazwaz profile image

Art for sale- all for £75 +P&P Ataxia fundraiser

A virtual Art fundraiser for Ataxia UK. Follow the link just to look if you li...

Skyclarys approved in the EU

The EMA approves the drug Skyclarys® to treat adults with Friedreich’s ataxia in...
wobblybee profile image

Do you or someone you know have a diagnosis of Autosomal Recessive Spinocerebellar Ataxia Type-17?

If you or someone you know has a genetically confirmed diagnosis of Autosomal Re...
Irmmy profile image

Question to the collective

As mentioned previously, I was diagnosed (Prof H/Sheffield) as having the SCA7 ...
Butcherpete profile image

Temperapedic foam or temperapedic foam hybrid with encased coils, that is the question

I need to help someone replace his mattress. He does have ataxia with mild, hem...
CHAMOUR profile image

Do you want to take part in research to help advance speech therapies for ataxias?

The University of Strathclyde and US company LSVT Global are recruiting for part...

🙂 In April……Carers Support Group Meeting

Join us for our next Carers support group meeting on Thursday 18th April from 14...

AtaxiaUK ROADSHOW 2024

Let's get this show on the road! The Ataxia UK Roadshow is coming to the dev...
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About us

Ataxia UK is the national charity for people affected by ataxia. Membership is free and open to anyone affecte...

Read more about Ataxia UK
0207 582 1444