Ataxia UK | HealthUnlocked

Ataxia UK

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Sad news from Litty's husband

This is Ian, Litty's husband here. I am very sorry to tell you that Litty sadly ...

Sleep apnea

Hi friends I was recently diagnosed with CA and was wondering if anyone new if s...

l am a newcomer, and i want to know all about SCA2、ataxia and tartarine.

我来自中国,于 2021 年 8 月被诊断出患有 SCA2-43。我一直在按照 Joe Peck 先生的建议进行锻炼和服用补充剂。现在病情没有明显进展。我想听听...

Speech

Has anybody got any tips yo help with speech problem thankyou

New Yankee to community

It’s been 2 years battling this beast🥵 6 months ago new neurologist put me on b...

Self-propelled wheelchairs

Self-propelled wheelchairs I find I am unable to walk far without getting very w...

USA group information???

Anyone know USA ataxia group???

Appalling Outpatients Appointment

I want to share the awful treatment I had at my appointment with the Neurology c...

Drinking alcohol

I am new to ataxia. Does anyone else suffer when drinking alcohol I can drink a ...

CBD for SCA

I have been testing half a year now with CBD-oil. Normally I've been using 20-25...

energy varies greatly from day to day

I was diagnosed with Spinal Cerebellar Ataxia type 6 about a year ago. Among ot...

Recommendations on a portable mobility scooter/trike

That can carry crutches as well, something that works with our balance issues. A...

Ataxia / menopause

Is there any chance that menopause could efffect ataxia I'm going there the meno...

Virtual reality for rehabilitation

I’ve just read a research article that describes the positive benefits of virtua...

does weather affect you ataxia ?

My Ataxia symptoms - dizziness, speech, balance - get worse with cold or damp we...

Gluten and food avoiding to help Ataxia?

Hi everyone, Health Unlocked is helpful with topics and information but also mak...

New country

I’m looking at moving to a new country that never gets to hot, to cold and only ...

heartburn

Does anybody here suffer from heartburn? With me it suddenly started 2 days ago....

TRH Analogue Talterin

I'm 55y male from Helsinki w SCA-7/43 repet Just found out that in Japan there...

Maybe invest in a stationary bike :)

Years ago another member showed a link to research in China hinting that simple ...

Heart Ablation improves balance

Hi Guys, Had Astra Zenica Vaccination, ended up in hospital with Atrial Fibrilla...

Life changes

As the Cerebellar is slowly being damaged and because it’s linked to many other ...

Do you have views on newborn genetic testing for the ataxias?

Do you have views on whether it's right to test for conditions that don't have c...

Degeneration in non-genetic ataxia

My brother has cerebellar ataxia caused by a lymphoma (now defeated). He feels t...

Rare Revolution Magazine are recruiting! 📢

Calling out to all siblings with a rare disease, aged 8-25, for a virtual resear...

I have seen some protocols in the literature for the treatment of SCA with buspirone.

I have seen some protocols in some Chinese literature for the treatment of SCA w...

Hello people

Hi all, a bit about me. I was diagnosed in 2007, but had small issues 2 years be...

Compression socks

Hi, I wear socks in bed - I've been told that compression socks would be better....

Looking for recommendations for Travel insurance with ataxia

Good morning & a very happy Easter to you all. Just a quick question, I’m going...

Condolences

Dear Ian I was so sorry to hear of Litty's passing and send my condolences. I o...
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About us

Ataxia UK is the national charity for people affected by ataxia. Membership is free and open to anyone affecte...

Read more about Ataxia UK
0207 582 1444