Ataxia UK | HealthUnlocked

I am investigating very seriously.Can anyone recommend a hospital or two for ataxia treatment in Germany? Not many, just certain hospitals.

Has anyone researched stem cells in Thailand or been there?

I was recently chatting with my elder Brother about Ataxia….. he told me that I was born with body tremors, but as far as I know, it was never investigated. I...

What has been your experience (both personal and advice from your neurologist) regarding moderate (1-7 drinks per week with no more than 2 a day) alcohol...

Does anyone know a good place as an ataxia hospital in Germany?

In 2023, the gene that causes a type of late-onset spinocerebellar ataxia called SCA27B was discovered. Since then, researchers have been developing a genetic...

hi, that’s me back to using a wheelchair. I have been trying to a void the wheelchair for a while. But my ataxia is getting the better of me.

Look at this article, dated back in 2008, https://www.innovations-report.com/life-sciences/a-improved-gene-therapy-treatment-machado-joseph-119799/. 2008? 16...

Hi all I am having ataxia symptom since around age of 21, was only get it diagnose around age 26, this year i am 32 by the way. My doctor could not diagnose...

SCA disease is very passive in my country. This tweet is our meeting place. https://x.com/Konur48728623?t=xK9rmD8Bz_QLOfW0_5QG6g&s=09

Does anyone here have Opsoclonus Myoclonus Ataxia ( OMA)? Diagnosed with this apparently rare (in Adults & in UK). After a near fatal Viral Meningitis in...

I have been diagnosed with Idiopathic Cerebellum Ataxia for 6 years . My consultant recently arranged for a TG6 test at Sheffield hospital . The result came...

I have SCA6 and recently tested positive for Covid. I have none of the usual Covid symptoms but my Ataxia symptoms are much worse. Impossibly dizzy,...

Hi, After many years without a diagnosis, I finally got Whole Gene Sequencing done myself (with Nebula Genomics). In my data I screened ~1300+ neurology genes,...

Can anyone give me any information about the forthcoming West Country support group listed on Ataxia.uk's website for July please? What areas are covered and...

hi folks, I have FA (still ambulant with aids) and have been told I need a hip replacement. Does anyone have experience of a hip replacement as an FA sufferer...

Find out more and order your copy at https://disabilityisotherpeople.com/

Hi folks - which topper mattress would you suggest I buy - thanks,

🙂 Many of us have noticed changes in our Speech…it can be embarrassing and frustrating. If this becomes a real problem we’re generally referred to a Speech...

🙂If you are a Parent of a child diagnosed with ataxia…this is an opportunity to join a Webinair with a Specialist Paediatric Neurologist. UK TIME ……..7PM...

🙂 UK TIME…..7.30PM Join NAF on August 22nd at 1:30 pm CDT for our webinar on Gene Therapy. In this session, Dr. Carolyn Yrigollen will teach us what gene...

Thank you to everyone who responded to my question. The variety of opinions from by my specialists was reflected by the community response. I am aware that...

Sca.da yorgunluk oluyormu.Dusme . Ayaklara agri.

Is there anyone in the group from Turkey?