Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for March 2021

Headaches

Does anyone else suffer headaches in the evening? Almost every evening around 6-7 I get a headache, I put it down to being on my feet too long during the day...

Does anyone else suffer headaches in the evening? Almost every evening around 6-...

EireAtaxic

•4 years ago

14 Replies

Psilocybin

I’m Matt I got spinocerebellar ataxia from a stroke when I was 12. For the past year or more, I have been interested in the neurogenesis of psilocybin...

I’m Matt I got spinocerebellar ataxia from a stroke when I was 12. For the past ...

matttm

•4 years ago

12 Replies

This Website

ON the date of my visit to the Neurologist I get up early, I travel for about five and a half hours, I wait in the waiting room for half an hour, I then see...

ON the date of my visit to the Neurologist I get up early, I travel for about fi...

Hidden

•4 years ago

4 Replies

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Ataxia related tinnitus

My sinuses seem to have been worse than usual over the past week, to the point that I couldn't hear anything yesterday. Possible infection. Tinnitus very bad...

My sinuses seem to have been worse than usual over the past week, to the point t...

EireAtaxic

•4 years ago

13 Replies

Has your mental and physical health taken it’s toll in lockdown my friends?

Hi everyone I don’t know about you but my mobility has really suffered during lockdown I have lost a lot of strength hence affecting my balance further good...

Hi everyone I don’t know about you but my mobility has really suffered during lo...

Sphinx21

•4 years ago

11 Replies

Does anyone have an all terrain wheelchair that they can recommend or alternatively one that they recommend to avoid please?

If anyone can recommend an all terrain wheelchair I'd be very grateful. I'm looking into purchasing one with aide from the state (France) here. I'd like to...

If anyone can recommend an all terrain wheelchair I'd be very grateful. I'm loo...

ww-wibblywobbly

•4 years ago

7 Replies

Possible help!

Hi all, Has anybody tried Taltirelin OD tablets, according to the website, they are supposed to treat Ataxia. Any feedback would be great. Stay safe...

Hi all, Has anybody tried Taltirelin OD tablets, according to the website, they...

Jacqui-A

•4 years ago

6 Replies

Gluten ataxia

I think gluten sensitivity may be the cause of my ataxia (it has not been formally diagnosed) and would like to know if there is anyone with the same and their...

I think gluten sensitivity may be the cause of my ataxia (it has not been formal...

penelope2

•4 years ago

24 Replies

Has anyone ever tried this?

https://bio-japan.net/taltirelin-OD-tablets-5mg

mpagganwala

•4 years ago

2 Replies

Memory problems 🥺

Does anyone have memory problems and if so do you think ataxia plays a part ?

Sphinx21

•4 years ago

13 Replies

Web Address

Try this address: https://ataxia.org/2021-annual-ataxia-conference/

BobR47

•4 years ago

Be the first to reply

US National Ataxia Foundation 2021 Annual Conference

Second try. Apparently I didn't know how to save the first one properly. Wondering if any if you in the UK were aware of the just finished National Ataxia...

Second try. Apparently I didn't know how to save the first one properly. Wonderi...

BobR47

•4 years ago

2 Replies

Can anyone else share the heart ache you feel when approached about being drunk when you have Cerebellar Ataxia?

I was going to pick up a prescription from a near by chemist with my daughter we parked up went down in the lift picked up the prescription and back to the car...

I was going to pick up a prescription from a near by chemist with my daughter we...

Sphinx21

•4 years ago

35 Replies

Q&A Zoom Meeting today 10 March 2021

Today at 2pm we are holding a Q&A session with Prof Paola Giunti and Suzanne Booth from the London UCL/UCLH Ataxia Centre. They will present information and...

Today at 2pm we are holding a Q&A session with Prof Paola Giunti and Suzanne Boo...

wobblybee

•4 years ago

7 Replies

Oxford/Astra Zeneca Vaccine

I've had my first dose of the vaccine, at last! I had to fight for it, but that's another story, a long one too. Anyhow, I had the Oxford/Astra Zeneca and It...

I've had my first dose of the vaccine, at last! I had to fight for it, but that'...

memielou

•4 years ago

26 Replies

How does ataxia progress

Hi everyone, I am big time confused! I have SCA1 and want to know how ataxia progresses - since October last year my walking, my speech, my digestion, my sleep...

Hi everyone, I am big time confused! I have SCA1 and want to know how ataxia pro...

Amynah

•4 years ago

14 Replies

Fundraising idea

It seems that we have amazing talent amongst us. Artists creating beautiful handmade items like painting, clothes, jewellery, et cetera. Artists creating...

It seems that we have amazing talent amongst us. Artists creating beautiful hand...

majajefferies

•4 years ago

3 Replies

Late onset Freidreich's Ataxia and relationships

My brother has normal onset FA (symptoms starting around 8 or 9 years) so I grew up knowing what it is but being the "normal" sibling. I began to develop...

My brother has normal onset FA (symptoms starting around 8 or 9 years) so I grew...

PurpleFingerNinja

•4 years ago

12 Replies

Ill Health pension

I am trying to work out what to do for the best for my family. I am married, have two children in their teens and a mortgage. I have had a occupational health...

I am trying to work out what to do for the best for my family. I am married, hav...

vw43

•4 years ago

15 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for March 2021

Headaches

Psilocybin

This Website

Ataxia related tinnitus

Has your mental and physical health taken it’s toll in lockdown my friends?

Does anyone have an all terrain wheelchair that they can recommend or alternatively one that they recommend to avoid please?

Possible help!

Gluten ataxia

Has anyone ever tried this?

Memory problems 🥺

Web Address

US National Ataxia Foundation 2021 Annual Conference

Can anyone else share the heart ache you feel when approached about being drunk when you have Cerebellar Ataxia?

Q&A Zoom Meeting today 10 March 2021

Oxford/Astra Zeneca Vaccine

How does ataxia progress

Fundraising idea

Late onset Freidreich's Ataxia and relationships

Ill Health pension

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive