Ataxia UK
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I have been back to London, the last lot of tests came back negative but I do feel quite relieved as one the types gave a bleak future. But not knowing has made me quite positive as I have learnt to take each day as it comes & what will be will be ! As for my daughter they feel she will be a healthy carrier so happy with that result.

Keep smiling :) xxxx

7 Replies

Good for you and all the best! N


I've had tests and tests, my Consultant says negative results, in my case, weren't a good thing as without a type of ataxia and no cause what little treatment there may have been isn't available. The slog continues, sorry to give a negative slant but that is what I have been told 0(((


On a positive note, that's wonderful news! I was diagnosed with Sporadic Cerebellar Ataxia 10 years ago. I've had all the tests, including genetic, all negative. Therefore, I have no idea why I have ataxia. I'm at the "acceptance" stage now, which is so refreshing! I have two grown children, as well as two very young grandchildren. Of course, I hope they never have to deal with ataxia! My best to you...,;o)


Hi Wendygirl

Pleased you got negative results. This is something to be pleased about. You seem a positve person, so enjoy everyday as it comes.



Great that your results were negative and that your daughter will only be a carrier. Take each day as it comes and stay positive.

I have been told that there is a possibility of 46 different genes that can be responsible for my ataxia. As the technology is advancing and soon will be able to test for all at the same time I am waiting until then for further tests. Doesn't make any difference anyway as just have to deal with it as best we can


When you say tests what are they? Blood tests, lumber puncture, electrical tests, MRI? My wife had had all these and apart from MRI showing shadows(not sure that's the right term), all results negative. Are there other tests available?


Hello mikebo

I have had all the tests you have mentioned too but these test were to find out what type I have, they have been trying to find the faulty gene.



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