Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for February 2016

Episodic ataxia type one

Does anyone else have this type and how does it affect people

Does anyone else have this type and how does it affect people

•9 years ago

ataxia, as a way of life, ugh

Yesterday, I went to my neuro and it seems the IVIg has cleared up my weird antibody issue ( thought to bring on the ataxia), and I no longer get long-term...

Yesterday, I went to my neuro and it seems the IVIg has cleared up my weird ant...

•9 years ago

Slurred speech. How did it start?

Dear all, I read the "slurred speech" post with interest. Many people replied to that post, so I'm guessing that it is not an uncommon symptom. If I can ask....

Dear all, I read the "slurred speech" post with interest. Many people replied t...

•9 years ago

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Miss June young

Hi there I am a 31 year old women and my 8 year old niece has recently been diagnosed with ataxia, she has very low mobility And uses a wheelchair now when her...

Hi there I am a 31 year old women and my 8 year old niece has recently been diag...

•9 years ago

Ataxia and Living Alone

I was diagnosed about 15 months ago. I rely on a Tri-Walker to get around, and I live alone. Is this possible, in people's experience? I live in Scotland,...

I was diagnosed about 15 months ago. I rely on a Tri-Walker to get around, and I...

•9 years ago

Questions about ataxia.

My name is Max. I have ataxia. Does anyone suffer with slurred speech like I do with ataxia.

My name is Max. I have ataxia. Does anyone suffer with slurred speech like I d...

•9 years ago

Episodic type 1 ataxia

Has anyone else got episodic type 1 Ataxia?

Has anyone else got episodic type 1 Ataxia?

•9 years ago

Ataxia and employment

My 18 yr old son has CA, diagnosed when he was 10. He is currently looking for work. He has been to the Disabilities Employment Adviser who put him in touch...

My 18 yr old son has CA, diagnosed when he was 10. He is currently looking for w...

•9 years ago

Question about condition

my husband started taking seizure like episodes when he was 25 also had short term memory loss and extremely bad tremor . They stopped ten years later but...

my husband started taking seizure like episodes when he was 25 also had short te...

•9 years ago

Daughter with unlabelled ataxia

Hi, I have been a member of this forum for a few weeks and have reading the posts with interest and compassion. Back in november my daughter was diagnosed with...

Hi, I have been a member of this forum for a few weeks and have reading the post...

•9 years ago

Friedrichs ataxiapotential new treatment

Hi everyone as u may or may not know my 12 year old son was diagnosed with friedrichs ataxia 6 months ago Yesterday I was checking Internet for any new...

Hi everyone as u may or may not know my 12 year old son was diagnosed with fried...

•9 years ago

There is help out there

Hi all, thank you so much for all your posts to suggest help available and gadgets to buy to help my friend. Since I last posted there have been a few...

Hi all, thank you so much for all your posts to suggest help available and gadge...

•9 years ago

Quick moan

Just a moan my husband due to see consultant in Feb (9month app) rang to see if app booked told he is top of list my be March, getting worse, not sure if it's...

Just a moan my husband due to see consultant in Feb (9month app) rang to see if...

•9 years ago

Aids?

Hi there, I was diagnosed with sca2 last year (although I had symptoms since 2014). I am 25 and don't know anyone as young as me who has it too. I'm a bit...

Hi there, I was diagnosed with sca2 last year (although I had symptoms since 20...

•9 years ago

Thank you

ceri52, nigelrheath, Missile, dlhfeldman, jneilw51 & medea (I hope I haven't missed anyone out! Thank you all 🙂 for your replies, I never expected to receive...

ceri52, nigelrheath, Missile, dlhfeldman, jneilw51 & medea (I hope I haven't mis...

•9 years ago

Just Saying Hi

Hi all just joined this site so hi to all, i'm pete 61 in leeds i were diagnosed about 20yrs ago with cerebella ataxia its been a slow deteriation many years...

Hi all just joined this site so hi to all, i'm pete 61 in leeds i were diagnosed...

•9 years ago

Lying down and sitting..

Why am I so much better (even perfect) when I lay down (in silence) or sit down? When I am engaged in either, I feel normal... If the issue is that our heads...

Why am I so much better (even perfect) when I lay down (in silence) or sit down?...

•9 years ago

Had some results back

Hi I'm a new member and needing some answers. I've been under a neurologist for the past 18 months where I've had lots of tests done and have symptoms that...

Hi I'm a new member and needing some answers. I've been under a neurologist for ...

•9 years ago

Just saying hi😄

Hi Guys Just joined the group so hi to all! I'm Craig, 45, from Cardiff, UK. I was diagnosed with ataxia, peripheral neuropathy & other problems about 10...

Hi Guys Just joined the group so hi to all! I'm Craig, 45, from Cardiff, UK. I ...

•9 years ago

Hello.

I would like to know more about the balance vest?

I would like to know more about the balance vest?

•9 years ago

CANVAS and Ataxia

Hi everyone Has anyone got or heard of CANVAS as this is something added to Ataxia. I am not quite sure what it is ----but I have got it!! I have googled it...

Hi everyone Has anyone got or heard of CANVAS as this is something added to Atax...

•9 years ago

Travel insurance

Hi, My neurologist believes that I have some form of spinocerebellar ataxia, but MRIs and other tests have proved negative. I have not had genetic testing. I...

Hi, My neurologist believes that I have some form of spinocerebellar ataxia, b...

•9 years ago

Walking Sticks and back aches

I have no idea why I but this "post" landed up in The Haven, a breast cancer site. I do no have that disease. Thank God. I have been trying to get off that...

I have no idea why I but this "post" landed up in The Haven, a breast cancer si...

•9 years ago

Links

Hi i am new to this site and so bear with. I was diagnosed with with cerebella formative attaxia at age 7, my parents were told i had contracted it through...

Hi i am new to this site and so bear with. I was diagnosed with with cerebella f...

•9 years ago

My story ... Movement is the most important thing ... A health unit that supports your condition!

Hello! My name is Esteban Grieb, I’m 39 years old, I was born in Buenos Aires, Argentina and I now live in Steyr, Austria. I was diagnosed Friedrich’s Ataxia...

Hello! My name is Esteban Grieb, I’m 39 years old, I was born in Buenos Aires, ...

•9 years ago

Fredericks ataxia

Hi I'm new too all this. My 6 yr old daughter has been diagnosed just last Wednesday. I've been noticing clumsiness from about age of 1 1/2 yr old she was...

Hi I'm new too all this. My 6 yr old daughter has been diagnosed just last Wedne...

•9 years ago

Medical bracelet

I have been falling over a lot the last few months, a few friends have suggested a medical bracelet with the name of my condition and my name as I do worry if...

I have been falling over a lot the last few months, a few friends have suggeste...

•9 years ago

How to help my husband?

I was diagnosed with SCA1. I don't have any symptoms yet. My husband can't deal with it. He's really old fashioned and don't want to speak about his feelings...

I was diagnosed with SCA1. I don't have any symptoms yet. My husband can't deal ...

•9 years ago

What Next?

Hi new to the site. My husband has been diagnosed with cerebella ataxia and just recently had a scan and has Parkinson's plus. He is unable to walk with out a...

Hi new to the site. My husband has been diagnosed with cerebella ataxia and just...

•9 years ago

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