Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for October 2018

Strange Feeling

Sorry in advance as I am not very good describing the feeling I have so ere goes...My legs are very wobbly and weak,my legs are not wanting to do what I want...

Sorry in advance as I am not very good describing the feeling I have so ere goes...

claire01

•5 years ago

28 Replies

Sheffield meeting

Hi all. Just a reminder, Sheffield and District Group meeting tomorrow (1st November) at The Circle, Rockingham Lane, Sheffield S14FW at 11.00am. ALL WELCOME

Hi all. Just a reminder, Sheffield and District Group meeting tomorrow (1st Nove...

Capricorn9157

•5 years ago

Be the first to reply

Death, Everyone afraid to talk of it?

I know many avoid talking of the word Death. I'm sorry to be so blunt but howthe heck will we know if we don't ask, right? Is it not nice ti ask has anyone...

I know many avoid talking of the word Death. I'm sorry to be so blunt but howth...

4Heavenly

•5 years ago

15 Replies

Want to take advantage of all our features? Just log in!

Depressed/anxious/hopeless!

I'm new here. Writing this partly to record the history of my present condition: Around 2012 I tripped on a pot-hole & fell backwards, hit the back of my head...

I'm new here. Writing this partly to record the history of my present condition...

dennisataxia

•5 years ago

10 Replies

Does anyone have gene mutation ATP1a3?

Good Morning, My daughter has Cerebella Ataxia. She has recently received results from genetic testing which was carried out approximately 4 years ago. This...

Good Morning, My daughter has Cerebella Ataxia. She has recently received result...

Leona89

•5 years ago

Be the first to reply

MRI of brain - cerebellum atrophy or normal?

I just had a genetic test done trying to figure out which type of Ataxia. No results yet. Anyway, I have also had an MRI which showed no cerebellum atrophy. My...

I just had a genetic test done trying to figure out which type of Ataxia. No res...

1lazybug

•5 years ago

29 Replies

Change of name

Just to let you all know that i am the former wibblywobbly. I had to add the ww as i have had to change my email address. This was due to some horrible...

Just to let you all know that i am the former wibblywobbly. I had to add the ww...

ww-wibblywobbly

•5 years ago

6 Replies

stiff person syndrome

is there other people out there & how are they coping,mine is in the legs

golfingsue

•5 years ago

11 Replies

Ataxia in New Zealand/Australia

Are there any groups of Ataxia in Australia/NZ?

AtaxiaCarer

•5 years ago

4 Replies

Question for you all

My son got the chicken pox vaccine when he was 2 years old and got cerrebellitis virus from it. It was so severe I almost lost him. He was hospitalized for...

My son got the chicken pox vaccine when he was 2 years old and got cerrebellitis...

Dizzykid

•6 years ago

7 Replies

New Diagnosis

My husband had a DAT Scan and we were told to wait for the results for 10 days . On day 11 we hadn’t heared anything , once during this process results had...

My husband had a DAT Scan and we were told to wait for the results for 10 days ....

Nichod100

•6 years ago

15 Replies

SCA 44

Has anyone been diagnosed with SCA 44?

lonesome

•6 years ago

Be the first to reply

A new light shines on SCA3. Far infrared light therapy?

Someone pointed me to this awhile back, and I remember being intrigued, but I never followed through on studying it. Today, I caught some conversation on the...

Someone pointed me to this awhile back, and I remember being intrigued, but I ne...

sunvox

•6 years ago

20 Replies

Sheffield and District support meeting

Hi one and all. Just to let you know, the next meeting of the Group will be 11.00am Thursday 1st November at The Circle, Rockingham Ln, Sheffield S1 4FW. All...

Hi one and all. Just to let you know, the next meeting of the Group will be 11.0...

Capricorn9157

•6 years ago

4 Replies

Confused about eye problems

When one looks at my eyes, all seems normal. In the meantime I have "downbeat" nystagmus which is only visible to experts who look for it and more crucially,...

When one looks at my eyes, all seems normal. In the meantime I have "downbeat" ...

neta

•6 years ago

3 Replies

Diabetes and Ataxia???

I was just recently told I was borderline diabetic (manage by diet) , and I asked the doctor if it would have any bearing on my Ataxia, to which he said NO,...

I was just recently told I was borderline diabetic (manage by diet) , and I aske...

peterallison

•6 years ago

4 Replies

Nystagmus worse after vestibular physio?

My nystagmus is worse after vestibular physio. I can’t find anything about this online. Has anyone got any thoughts on this?

My nystagmus is worse after vestibular physio. I can’t find anything about this ...

EleanorS

•6 years ago

6 Replies

Registration

Nearlly 18 months ago the importence of registration with ATAXIA UK was about impact,and looking at the bigger picture. Registration is FREE and open to ALL....

Nearlly 18 months ago the importence of registration with ATAXIA UK was about im...

DOTS01

•6 years ago

1 Reply

Ataxia UK

Morning one and all. If you havent already done so, I urge you to register with Ataxia UK (ataxia.org.uk). It is an organisation working for the good of us...

Morning one and all. If you havent already done so, I urge you to register with ...

Capricorn9157

•6 years ago

Be the first to reply

.?Scam

I had an email from someone using this site regarding money for cancer funds etc. I deleted it but beware. Jan

I had an email from someone using this site regarding money for cancer funds etc...

pollybanana

•6 years ago

4 Replies

South Yorkshire Ataxians and Families

Good day to one and all. Do you live in South Yorkshire? Able to travel to Barnsley / Doncaster / Barnsley Sheffield? AtaxiaUK need funds for research into...

Good day to one and all. Do you live in South Yorkshire? Able to travel to Barn...

Capricorn9157

•6 years ago

4 Replies

Ataxia Conference 2018

Hi all, have just got home from the conference weekend (after a diversion to Newcastle!!!!) and thought I would share some of my experiences. (Harriet, I...

Hi all, have just got home from the conference weekend (after a diversion to New...

Capricorn9157

•6 years ago

17 Replies

stiff persons syndrome

stiff person syndrome.I was diagnosed with ataxia 2 years ago but sheffield prof thinks i have stiff persons syndrome as my legs are getting so stiff.i am on...

stiff person syndrome.I was diagnosed with ataxia 2 years ago but sheffield prof...

golfingsue

•6 years ago

5 Replies

Car dealership

Through PIP I lease a car and get it serviced at the dealership. This is a dealership congratulation not a health thing. Several good things, the car...

Through PIP I lease a car and get it serviced at the dealership. This is a deal...

FFNick

•6 years ago

1 Reply

Nasal delivery of mannitol in rats reached the brain.

Never, ever try something based on some quack's remarks on the internet. Always talk to a doctor before trying something new. I found this paper today from a...

Never, ever try something based on some quack's remarks on the internet. Always...

sunvox

•6 years ago

2 Replies

ATAXIA AND GRIEF

MY HUSBAND ,who was my caregiver, passed in June.Do you think ataxia prolongs grief?

MY HUSBAND ,who was my caregiver, passed in June.Do you think ataxia prolongs gr...

kathie29

•6 years ago

15 Replies

any recommends？

I am a patient suffering from SCA3 for 3 years,and I cannot walk stable,I want to buy a electric bicycle for daily use, or Electric tricycle is OK,its need to...

I am a patient suffering from SCA3 for 3 years,and I cannot walk stable,I want t...

4ever2gether

•6 years ago

8 Replies

Ataxia

Ataxia USA? Looking for American residents with ataxia

swtb

•6 years ago

48 Replies

Speech delay in Ea2

For people with EA2: do you have continuous speech delay/dysarthria always or only during attacks?

For people with EA2: do you have continuous speech delay/dysarthria always or on...

Mariagg

•6 years ago

1 Reply

Water in ears

Ok question time again? I wash my hair in bath and last 2 times I have got water in my ear - I had a lot of ear ache as child and perforated my eardrum. Does...

Ok question time again? I wash my hair in bath and last 2 times I have got wate...

Litty

•6 years ago

4 Replies

Search posts

Latest poll

See all polls

How long have you or your relative/friend been diagnosed with ataxia?

Vote

Topics

All posts(503)

All things Ataxia UK(464)

Research projects(38)

Our publications(1)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for October 2018

Strange Feeling

Sheffield meeting

Death, Everyone afraid to talk of it?

Depressed/anxious/hopeless!

Does anyone have gene mutation ATP1a3?

MRI of brain - cerebellum atrophy or normal?

Change of name

stiff person syndrome

Ataxia in New Zealand/Australia

Question for you all

New Diagnosis

SCA 44

A new light shines on SCA3. Far infrared light therapy?

Sheffield and District support meeting

Confused about eye problems

Diabetes and Ataxia???

Nystagmus worse after vestibular physio?

Registration

Ataxia UK

.?Scam

South Yorkshire Ataxians and Families

Ataxia Conference 2018

stiff persons syndrome

Car dealership

Nasal delivery of mannitol in rats reached the brain.

ATAXIA AND GRIEF

any recommends？

Ataxia

Speech delay in Ea2

Water in ears

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive