Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for November 2016

Voice recognition software

My son's TA scribes for him at school. I was just wondering if anyone uses voice recognition software and if it's any good.

My son's TA scribes for him at school. I was just wondering if anyone uses voice...

castle0365

•7 years ago

8 Replies

Shoes for leg splints!?!

Hi all, Meg (14) has picked up her leg splints today which she really wasn't happy about but we told her that she could have some new shoes to soften the...

Hi all, Meg (14) has picked up her leg splints today which she really wasn't hap...

Hidden

•7 years ago

6 Replies

'Wijit

ello, I'm new to this. I was diagnosed in 1980 as having FA. and I've since married and had 2 healthy daughters. They have both now left home and my husband...

ello, I'm new to this. I was diagnosed in 1980 as having FA. and I've since ma...

flawlesssFayx

•7 years ago

4 Replies

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Lets Share Exercises We Do!

Its that time of year for sharing, so why not share an exercises that makes us feel better, here's mine hold one leg out and make crazy 8 circles with it....

Its that time of year for sharing, so why not share an exercises that makes us f...

foffee11

•7 years ago

4 Replies

MSA

I had my appointment with my neurologist on Wed 23 .It was an okay meeting with the same diagnosis - cerrabellar syndrome with possible MSA. He wants me to...

I had my appointment with my neurologist on Wed 23 .It was an okay meeting with...

Rankin63

•7 years ago

9 Replies

MSA or CA? What's going on?

Recently two neurologists (who work together) told me that I might have developed MSA--which stands for Multiple Systems Atrophy. They aren't sure and sent me...

Recently two neurologists (who work together) told me that I might have develope...

neta

•7 years ago

41 Replies

chest infection and ataxia

i was recently told i had ataxi though which type will test for in january i keep getting chest infections that dont respond to antibiotics my gp said my lungs...

i was recently told i had ataxi though which type will test for in january i kee...

Guyb

•7 years ago

11 Replies

Living my life

Hi all. Just wanted to share my feelings and hope everyone is as well as they can be. My symptoms were gradual after suffering complications following surgery...

Hi all. Just wanted to share my feelings and hope everyone is as well as they ca...

bevvick1964

•7 years ago

11 Replies

Lunasin

HI Has anyone tried lunasin Simon

simon111

•7 years ago

1 Reply

Fighting Ataxia

Hello all, It's easy to say but many people seem to feel that help means asking on here or somewhere similar but much of this Ataxia thing can be beaten, or...

Hello all, It's easy to say but many people seem to feel that help means askin...

Ant1

•7 years ago

4 Replies

Advice please.

We are thinking about getting a games console for the children this Christmas. Our son is 9 and has FA. Any suggestions on which would be easier to control. We...

We are thinking about getting a games console for the children this Christmas. O...

castle0365

•7 years ago

1 Reply

Walking stick

I feel the time had come to buy a folding walking stick as the weather is getting icy in the UK. I have been looking on Amazon as an option but end up getting...

I feel the time had come to buy a folding walking stick as the weather is gettin...

JillJ

•7 years ago

5 Replies

Fairly new to Ataxia

hi, I'm Peter from Knaresborough, in North Yorkshire. I was diagnosed last year, but only received a little bit of support from an ocupational therapist I met...

hi, I'm Peter from Knaresborough, in North Yorkshire. I was diagnosed last year,...

peterallison

•7 years ago

13 Replies

diagnosisataxia

diagnosed after hospital stay with progressive cerebellar ataxia which is progressing more quickly than I expected

diagnosed after hospital stay with progressive cerebellar ataxia which is progr...

petbar

•7 years ago

5 Replies

Cure Of Ataxia

How can one be able to strentghen nervous system and which exercise or medical step will be favourable to cure or overcome worse effects of Ataxia ?

How can one be able to strentghen nervous system and which exercise or medical s...

Hidden

•7 years ago

17 Replies

Dancing

hi, just thought I share my progress with you. On Friday evening I actually managed to dance without falling over :). Even if it was my strange style of...

hi, just thought I share my progress with you. On Friday evening I actually mana...

wibblywobbly

•7 years ago

17 Replies

New medication

Hi has any one ever heard of flunarizine my neurologist has started me on it cause of my dizzy episodes

Hi has any one ever heard of flunarizine my neurologist has started me on it cau...

Loubie82

•7 years ago

3 Replies

stick holder

Hi I thought I had posted a link to a dropbox folder giving instructions about the mods needed to make "the stick stick" [the words used in the ATXIAN...

Hi I thought I had posted a link to a dropbox folder giving instructions about t...

wobelyjohn

•7 years ago

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Tremor

I have had ataxia for over 20 years - I am now blind and in a wheelchair and have very poor dexterity. This week, during the night, I had a bad episode of...

I have had ataxia for over 20 years - I am now blind and in a wheelchair and hav...

patriciagrant

•7 years ago

2 Replies

Ataxia diagnosed - neurologist wont test for genetic link any help

Hi my husband has just been diagnosed with ataxia, not sure if its genetic, neurologist thinks it is his epilepsy medication but i am not so sure as his...

Hi my husband has just been diagnosed with ataxia, not sure if its genetic, neur...

rankin1st

•7 years ago

8 Replies

500 Miles

Unashamed plug. I've just walked 500 miles, between Girona and Murcia in Spain, to raise ataxia awareness and funds for Ataxia UK (now £900). The story in 38...

Unashamed plug. I've just walked 500 miles, between Girona and Murcia in Spain,...

Iain_100

•7 years ago

6 Replies

Exercise and Ataxia

Dear all, Here is some news of my progress. I continue to do my exercises daily and now feel much more independent. At home I am able to do everything I mean...

Dear all, Here is some news of my progress. I continue to do my exercises daily...

isabelalfaiate

•7 years ago

20 Replies

over 40's routine health check

Hi, I have FA and was diagnosed in 1991. I recently turned 40 and am now getting letters from my GP to have a check up. I know it's a routine letter about...

Hi, I have FA and was diagnosed in 1991. I recently turned 40 and am now getting...

RCBrownMBE

•7 years ago

3 Replies

weight loss

I am suffering too much weight loss help

gatzer16

•7 years ago

1 Reply

Weight loss

Hi everyone Me again Over last 3/4 weeks I've lost 3kg but bloods normal not fat so I guess muscle Ring any bells? Rodgers Andover

Hi everyone Me again Over last 3/4 weeks I've lost 3kg but bloods normal not fat...

Sqd-2415_hoc

•7 years ago

1 Reply

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for November 2016

Voice recognition software

Shoes for leg splints!?!

'Wijit

Lets Share Exercises We Do!

MSA

MSA or CA? What's going on?

chest infection and ataxia

Living my life

Lunasin

Fighting Ataxia

Advice please.

Walking stick

Fairly new to Ataxia

diagnosisataxia

Cure Of Ataxia

Dancing

New medication

stick holder

Tremor

Ataxia diagnosed - neurologist wont test for genetic link any help

500 Miles

Exercise and Ataxia

over 40's routine health check

weight loss

Weight loss

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive