Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for July 2012

has anyone had an infusion for osteoporosis?were there any side effects

laddie

•12 years ago

8 Replies

20 yrs and still hiding

had this attaxia thing for 20 yrs now and i have never spoke till now. had the daily remarks of how drunk i apparently am and all sorts of horrible things...

had this attaxia thing for 20 yrs now and i have never spoke till now. had the d...

cclive35

•12 years ago

8 Replies

Driving licence

Just received my driving licence back after two and a half years without. I have to renew it though every three years but hey so what! At least I have it...

Just received my driving licence back after two and a half years without. I hav...

Hidden

•12 years ago

3 Replies

Want to take advantage of all our features? Just log in!

I am still able to work thankfully but a blue badge would help as I get nervous crossing roads etc, is a parking badge a possibility ?

Donnybluewayne

•12 years ago

9 Replies

Has anyone bought a Step-Safe Ferrule?

I need to add about an inch to my walking stick and have been considering a Ferrule called Step-Safe, and wondered if anyone has one. If you do, I will be...

I need to add about an inch to my walking stick and have been considering a Ferr...

Wyndham

•12 years ago

1 Reply

What support did you get after diagnosis, and how were you told?

I found out I had Ataxia when I was copied on a letter from my Neurologist to my GP. It wasn't even a personal letter to me. There was no explanation of...

I found out I had Ataxia when I was copied on a letter from my Neurologist to my...

Wyndham

•12 years ago

12 Replies

Symptoms Come and Go

Over the last week I have had a few days - actually portions of days - where my symptoms have almost disappeared. By this I am referring to the "wobbliness"...

Over the last week I have had a few days - actually portions of days - where my ...

Wyndham

•12 years ago

3 Replies

At what time do you get up/go bed? Do you nap during the day?

Hidden

•12 years ago

12 Replies

Is there a support group for young people with CA, my son is 14 and feels a bit isolated, we are just outside Glasgow

lindadoc

•12 years ago

7 Replies

Which mobile 'phone?

I've had an 'ordinary' mobile for a couple of years now. Unfortunately my dexterity has deteriorated and the buttons are too small. Can anyone suggest a...

I've had an 'ordinary' mobile for a couple of years now. Unfortunately my dexte...

SussexDodo

•12 years ago

11 Replies

Branches of Ataxia uk/Support groups

Does anybody know of any groups in or near Bexhill East Sussex Please? I thought it might be nice to meet with some people who wouldnt take the pee if you...

Does anybody know of any groups in or near Bexhill East Sussex Please? I thought...

Andy-C

•12 years ago

2 Replies

Ataxia Symptom???????????

Hi, This posting is hard and very embaressing for me, I have cerebellar Ataxia, when i notice changes in how my body works i can normally decide...

Hi, This posting is hard and very embaressing for me, I have cerebe...

Andy-C

•12 years ago

12 Replies

if someone is on benefits and they recieve 45thousand. And they spend most of it on purpose to get down to 16 thousand can they claim

gembo

•12 years ago

5 Replies

Exercising

Hi, I am a 72 year old male with Cerebellar Ataxia, affecting my co-ordination and balance. Do you think an exercise bike would be beneficial?

Hi, I am a 72 year old male with Cerebellar Ataxia, affecting my co-ordination ...

aidee

•12 years ago

9 Replies

Travel Insurance nightmare

Trying to do the right thing, I telephoned Lloyds TSB today to notify the Travel Insurance section about my recently diagnosed Ataxia. What a mistake. Apart...

Trying to do the right thing, I telephoned Lloyds TSB today to notify the Travel...

Wyndham

•12 years ago

10 Replies

Driving license

I have been waiting for well over a year to have my license back after contacting DVLA of my condition. I think this has been a very long time waiting for the...

I have been waiting for well over a year to have my license back after contactin...

Hidden

•12 years ago

9 Replies

Memory speech and dizziness

I have all these please checkout the Hughes syndrome website on Healthunlocked it may help someone Good luck Karen

I have all these please checkout the Hughes syndrome website on Healthunlocked ...

daisyd

•12 years ago

2 Replies

walking difficulties

To Albioon As you have walking problems why not try using two sticks as used by hickers I find these very reasuribg with my balance problems and people...

To Albioon As you have walking problems why not try using two sticks as used...

tedjohnson

•12 years ago

1 Reply

Walking problems

Are there many out like me. I been told i have spino cellebellar Ataxia but despite 3 stays in hospital over the years the doctors still don’t really know...

Are there many out like me. I been told i have spino cellebellar Ataxia but des...

albion

•12 years ago

9 Replies

I have CA & suffer badly from restless legs getting cramps & twitches in my calves - does anyone else suffer &/or know of any treatments??

glosman

•12 years ago

14 Replies

Does anyone see a Professer Henry Houlden? For MSA?

dleif55

•12 years ago

2 Replies

Do you need to advise your insurer straightaway, even if Ataxia isn't affecting your driving (yet)?

I have advised the DVLA, but hadn't thought about insurance until I started reading some of the blogs here. Anyone know what the legal position is with this?

I have advised the DVLA, but hadn't thought about insurance until I started read...

Wyndham

•12 years ago

6 Replies

Protein Shakes

Hi, my son is nearly 20 and has FA, he is keen on keeping fit and strong and does regular excersises and would like to start having protein shakes/drinks to...

Hi, my son is nearly 20 and has FA, he is keen on keeping fit and strong and doe...

bakethat

•12 years ago

1 Reply

back pain

I have an sca with no number and suffer with back pain is weakness in core muscles a recognized problem my chiropractor said he thought my muscles were...

I have an sca with no number and suffer with back pain is weakness in core muscl...

Hidden

•12 years ago

7 Replies

Neurological Alliance publications

'The Neurological Alliance is a collaborative forum of a wide range of neurological charities. The Alliance campaigns for the highest standards of service and...

'The Neurological Alliance is a collaborative forum of a wide range of neurologi...

HarryB

Administrator•12 years ago

3 Replies

Who is a member/involved with their local neurological alliance?

HarryB

Administrator•12 years ago

3 Replies

Has anybody found Insurance companies upping their driving insurance premiums, as it is a reportable condition, the DVLA has to be informed

Donnybluewayne

•12 years ago

7 Replies

Neurology Visit

Well i have just received an appointment to see my neurologist this coming Sunday at 9:30. I am hoping for results of any description to be back now. My...

Well i have just received an appointment to see my neurologist this coming Sunda...

nana23

•12 years ago

7 Replies

Does fatigue play a major part in SCA, I get really tired a lot & it affects all my symptoms

berejena

•12 years ago

6 Replies

progression

Iwas told progression was an individual thing but I would like some idea of what to expect.I have recently been diagnosed after first noticing problems 18...

Iwas told progression was an individual thing but I would like some idea of what...

laddie

•12 years ago

6 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for July 2012

has anyone had an infusion for osteoporosis?were there any side effects

20 yrs and still hiding

Driving licence

I am still able to work thankfully but a blue badge would help as I get nervous crossing roads etc, is a parking badge a possibility ?

Has anyone bought a Step-Safe Ferrule?

What support did you get after diagnosis, and how were you told?

Symptoms Come and Go

At what time do you get up/go bed? Do you nap during the day?

Is there a support group for young people with CA, my son is 14 and feels a bit isolated, we are just outside Glasgow

Which mobile 'phone?

Branches of Ataxia uk/Support groups

Ataxia Symptom???????????

if someone is on benefits and they recieve 45thousand. And they spend most of it on purpose to get down to 16 thousand can they claim

Exercising

Travel Insurance nightmare

Driving license

Memory speech and dizziness

walking difficulties

Walking problems

I have CA & suffer badly from restless legs getting cramps & twitches in my calves - does anyone else suffer &/or know of any treatments??

Does anyone see a Professer Henry Houlden? For MSA?

Do you need to advise your insurer straightaway, even if Ataxia isn't affecting your driving (yet)?

Protein Shakes

back pain

Neurological Alliance publications

Who is a member/involved with their local neurological alliance?

Has anybody found Insurance companies upping their driving insurance premiums, as it is a reportable condition, the DVLA has to be informed

Neurology Visit

Does fatigue play a major part in SCA, I get really tired a lot & it affects all my symptoms

progression

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive